Peace officer's wife, mother of 2, middle school teacher on leave; Chiari Malformation, vascular & arthrochalasis Ehlers-Danlos, Syringobulbia, unsucessfully treated Tethered Cord. Primary damage due to EDS & 9 months of meningitis that has caused my brain to be taken over by progressive...
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I am so surprised to run across your blog. Our lives are paralell, but I am older. I am 47. I was married to a peace officer for 21 years. I have EDS, Chiari, and have had two tethered cord surgeries. I was a paralegal not a teacher! haha There aren't a lot of us who have had the tethered cord surgeries that are adults.
No one will listen to me! I am so frustrated. I have been told that I don't have Chiari, however I have "low lying" cerebellar tonsils, 3-4 mm. I have been symptomatic for weeks, ringing in ears, dizzy, pain/pressure at the base of head etc......Does anyone know a doctor who will listen to me. I don't want to keep going thru all these unnessary tests.
ktietz@cox.net
Hi, I read all your blog posts and I am very sorry to hear what you are going through. I also have food sensitivities and have to be really careful what I eat (I have EDS, Chiari, and who knows what else :) ) I read recently that EDSers have higher rates of food allergies. Anyway - I just wanted to say "hi"!
