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Zipperhead .. Patient Expert

Tucson, Arizona
Peace officer's wife, mother of 2, middle school teacher on leave; Chiari Malformation, vascular & arthrochalasis Ehlers-Danlos, Syringobulbia, unsucessfully treated Tethered Cord. Primary damage due to EDS & 9 months of meningitis that has caused my brain to be taken over by progressive... Full Bio
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Huffington Post article reader? More information for you!

Hello everyone! Long time no write, I know. I've been considering a return but wasn't sure about it. Then today I received a message saying they...

Kidneys, Ehlers-Danlos tearing apart, Forget regret, be at peace

I'm not sure why I bothered to re-post the "Church's and society's bastards" blog post like I did. All of one person from before made contact with...

Seizures, Kidneys

I get out of the house on Thursday, wahoo! I need to schedule the city's SunVan (disability services) to take me to my neuro appt. That's lousy....

Ehlers-Danlos Intervention

We're watching the last few minutes of Intervention, and we are all floored by this woman blaming Ehlers-Danlos for her problems. When it came...

Holding out Hope

There comes a point in life where one realizes that if you are unhappy, then sitting around and talking about it time after time isn't going to...

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ellijaygal wrote on Zipperhead ..'s Whiteboard. Feb 14 2012
AZGIRL02 wrote on Zipperhead ..'s Whiteboard. Feb 05 2010
Zipperhead .. posted Shelby's class Dec 16 2009
Zipperhead .. posted Parenthood Dec 16 2009

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Zipperhead ..'s Whiteboard
Feb 14 2012 by ellijaygal
I am so surprised to run across your blog. Our lives are paralell, but I am older. I am 47. I was married to a peace officer for 21 years. I have EDS, Chiari, and have had two tethered cord surgeries. I was a paralegal not a teacher! haha There aren't a lot of us who have had the tethered cord surgeries that are adults.
 
Feb 05 2010 by AZGIRL02
No one will listen to me! I am so frustrated.  I have been told that I don't have Chiari, however I have "low lying" cerebellar tonsils, 3-4 mm. I have been symptomatic for weeks, ringing in ears, dizzy, pain/pressure at the base of head etc......Does anyone know a doctor who will listen to me. I don't want to keep going thru all these unnessary tests. ktietz@cox.net
 
Dec 07 2009 by stipeygirl75
Hi, I read all your blog posts and I am very sorry to hear what you are going through. I also have food sensitivities and have to be really careful what I eat (I have EDS, Chiari, and who knows what else :) ) I read recently that EDSers have higher rates of food allergies. Anyway - I just wanted to say "hi"!
 

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