xoxomarebear's Posts

I Did It, But.... by xoxomarebear Patient Expert

Posted in: Blog Posts in Cancer I gave blood yesterday (and my Dad came to donate too!). It was a really emotional process for me, and in retrospect I think I should have expected and prepared for that more. ... Read on »

Please Give Blood by xoxomarebear Patient Expert

Posted in: Blog Posts in Cancer In honor of Vivienne and as an action of thanks for those who donated blood and platelets that she needed so that we could pursue her treatment, I just made an appointment to ... Read on »

New Study at St. Jude by xoxomarebear Patient Expert

Posted in: Blog Posts in Cancer A wonderful event has taken place at St. Jude that may prove a big step in saving the lives of children, like Vivi, who have rare brain cancers but are too young for tradition ... Read on »

REMINDER by xoxomarebear Patient Expert

Posted in: Blog Posts in Cancer Just as a reminder, as I mentioned a few weeks ago, on this upcoming Monday September 28 please go out to lunch or dinner at Chili's, because the restaurant will be donating a ... Read on »

Angry by xoxomarebear Patient Expert

Posted in: Blog Posts in Cancer Today was the hardest day in a long time. All day, I've been crying thinking about Vivi. And everything is setting me off - from people who want to deny healthcare to sick p ... Read on »

Commenting by xoxomarebear Patient Expert

Posted in: Blog Posts in Cancer I believe the technical problems with commenting have been resolved. Please do not hesitate to email me if there are any problems! Read on »

Hate Mail by xoxomarebear Patient Expert

1 Comment Posted in: Blog Posts in Cancer I have some thoughts I would like to get out of my head, about a very nasty fellow named Rhabdoid Cancer. Since he doesn't have his own home, or a mailing address, or family ... Read on »

Childhood Cancer Awareness Month by xoxomarebear Patient Expert

Posted in: Blog Posts in Cancer I have been contemplating a post honoring Childhood Cancer Awareness Month for quite some time now, but the death of Patrick Swayze to pancreatic cancer yesterday encouraged m ... Read on »

Mark your Calendar: September 28 by xoxomarebear Patient Expert

Posted in: Blog Posts in Cancer Join Chili's in the fight against childhood cancer.Create a Pepper.Chilis is donating all profits at its restaurants from September 28, 2009 to St. Jude Children's Research Ho ... Read on »

Please Help: Adrenocortical Carcinoma by xoxomarebear Patient Expert

Posted in: Blog Posts in Cancer Viva la Vivi has been asked to get involved and spread the word, as a research study may begin if more participants with a rare genetic disorder can be found. I have been aske ... Read on »

Thank You by xoxomarebear Patient Expert

Posted in: Blog Posts in Cancer This post is just a big, loving, teary-eyed THANK YOU to those who have not forgotten about us. To the people who send nice text messages when we have stuff going on; To tho ... Read on »

Daddy Feelings by xoxomarebear Patient Expert

Posted in: Blog Posts in Cancer Last night I had the pleasure of being visited by Vivienne in my dream. It was a somewhat difficult dream, in which Vivi had just been placed in my arms, back from wherever. ... Read on »

Wall of Angels by xoxomarebear Patient Expert

Posted in: Blog Posts in Cancer Vivienne has been honored by inclusion on the Wall of Angels, a stunning (but tear-jerking) visual tribute to children who earned their angel wings. Please visit the site, an ... Read on »

Vacation by xoxomarebear Patient Expert

Posted in: Blog Posts in Cancer Well, we are leaving for Maine tomorrow morning. I expressed sadness today, wishing that Vivi could come on vacation with us. I can't stop thinking about, wishing for, Vivi ... Read on »

Dreaming of Things That Will Never Be by xoxomarebear Patient Expert

Posted in: Blog Posts in Cancer I can't stop thinking today of what Vivi would be like, what she would be doing and saying, right now, had she not been afflicted with the awful AT/RT beast. Whenever I see l ... Read on »

You Will Need a Lot of Strength Here by xoxomarebear Patient Expert

Posted in: Blog Posts in Cancer I hope, if you are able to, that you visit the Wall of Angels. It exists as a tribute to the babies and children parents have lost over many years, and I will warn you that y ... Read on »

Who could look this calm, cool, ... by xoxomarebear Patient Expert

Posted in: Blog Posts in Cancer Who could look this calm, cool, collected, relaxed and happy? We were in isolation for C. diff. when this picture was taken. Justin and I were so frustrated, living in a hot ... Read on »

This is My World, Now by xoxomarebear Patient Expert

Posted in: Blog Posts in Cancer I am crying so hard, I can barely see to post this. As I said on Facebook earlier today, I almost wish it was possible to die of sadness, because if it were, She and I would ... Read on »

A Dream by xoxomarebear Patient Expert

Posted in: Blog Posts in Cancer Vivi came to me in a dream last night, chattering away. She was her size, not grown bigger, but we were in St. Jude and she was talking up a storm. Some of it was more or le ... Read on »

Help a Friend of Vivi by xoxomarebear Patient Expert

Posted in: Blog Posts in Cancer Please take just a moment of your time to show your support for the family of Vivi's friend Aiden, who fought his battle against AT/RT with Vivi at St. Jude and has joined her ... Read on »

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