Health knowledge made personal

xoxomarebear Patient Expert

Memphis, Tennessee
I am a contrarian, lawyer, problem child, Philly Eagles fan, amateur blogger, genius and Mama. I am a first-time parent, together with my beloved Husbatron, thrown into trial by fire learning to parent a child with a brain tumor in an inpatient hospital environment. My goals are to further my own... Full Bio
› Share page:

Posts

Sort by: Most recent | Name
Susan G. Komen Cures Lawyers' Income Woes? by xoxomarebear Patient Expert Posted in: Blog Posts in Cancer I am almost speechless following news that the Susan G. Komen Foundation uses donated funds to sue not the companies that spew chemicals into our water, not the pesticide a ... Read on »
Thanksgiving Need by xoxomarebear Patient Expert Posted in: Blog Posts in Cancer It seems like a lifetime ago that Vivienne was with us, fighting tough as nails style through chemo, transfusions and everything else. Not every family has to face th ... Read on »
An Ally Against Pediatric Cancer by xoxomarebear Patient Expert Posted in: Blog Posts in Cancer Today was an exciting day in the Bunnyverse. After traveling all over Bucks County and New Jersey in search of Airsoft gear, we returned drained but happy to ... Read on »
A Little Girl's Diary by xoxomarebear Patient Expert Posted in: Blog Posts in Cancer A Little Girl's Diary is the (painfully true) story of a little girl who died of Cystic Fibrosis in Texas, very, very many years ago. It is a sad reminder that sometimes w ... Read on »
Bad Advice, or Is This It? by xoxomarebear Patient Expert Posted in: Blog Posts in Cancer Through a circuitous path from a Gawker media website to an advice column through another link, I found an absolutely ridiculous website called "The Checkout Line". It's co ... Read on »
Rhabdoid Cancer Benefit: Matty’s Rhabdoid Tumor Research Foundation by xoxomarebear Patient Expert Posted in: Blog Posts in Cancer On January 23, 2009, The Knights of Columbus Union (NJ) Council will present local band Voice of Reason (music at link) in a $20 open-bar benefit show. The show will benefi ... Read on »
My Local Sports Team is Better Than Yours by xoxomarebear Patient Expert Posted in: Blog Posts in Cancer My local sports team (the Philadelphia Eagles) is surely better than your local sports team, but it has nothing to do with rankings, divisions or playoffs. ... Read on »
St. Jude CRH Researcher Honored by xoxomarebear Patient Expert Posted in: Blog Posts in Cancer A St. Jude Children's Research Hospital doctor, Charles Sherr M.D., Ph.D. who is c0-chair of Genetics and Tumor Cell Biology, has been named a 2009 Fellow in the American As ... Read on »
On Old Friend, Reintroduced by xoxomarebear Patient Expert Posted in: Blog Posts in Cancer If you read the archives of Viva la Vivi, you will hear a resource mentioned over and over (and over and over). When Vivienne was diagnosed, information online about AT/RT ... Read on »
I Did It, But.... by xoxomarebear Patient Expert Posted in: Blog Posts in Cancer I gave blood yesterday (and my Dad came to donate too!). It was a really emotional process for me, and in retrospect I think I should have expected and prepared for th ... Read on »
Please Give Blood by xoxomarebear Patient Expert Posted in: Blog Posts in Cancer In honor of Vivienne and as an action of thanks for those who donated blood and platelets that she needed so that we could pursue her treatment, I just made an appointment t ... Read on »
New Study at St. Jude by xoxomarebear Patient Expert Posted in: Blog Posts in Cancer A wonderful event has taken place at St. Jude that may prove a big step in saving the lives of children, like Vivi, who have rare brain cancers but are too young for tradition ... Read on »
REMINDER by xoxomarebear Patient Expert Posted in: Blog Posts in Cancer Just as a reminder, as I mentioned a few weeks ago, on this upcoming Monday September 28 please go out to lunch or dinner at Chili's, because the restaurant will be donating a ... Read on »
Angry by xoxomarebear Patient Expert Posted in: Blog Posts in Cancer Today was the hardest day in a long time. All day, I've been crying thinking about Vivi. And everything is setting me off - from people who want to deny healthcare to si ... Read on »
Commenting by xoxomarebear Patient Expert Posted in: Blog Posts in Cancer I believe the technical problems with commenting have been resolved. Please do not hesitate to email me if there are any problems! Read on »
Hate Mail by xoxomarebear Patient Expert 1 Comment Posted in: Blog Posts in Cancer I have some thoughts I would like to get out of my head, about a very nasty fellow named Rhabdoid Cancer. Since he doesn't have his own home, or a mailing address, or family ... Read on »
Childhood Cancer Awareness Month by xoxomarebear Patient Expert Posted in: Blog Posts in Cancer I have been contemplating a post honoring Childhood Cancer Awareness Month for quite some time now, but the death of Patrick Swayze to pancreatic cancer yesterday encouraged ... Read on »
Mark your Calendar: September 28 by xoxomarebear Patient Expert Posted in: Blog Posts in Cancer Join Chili's in the fight against childhood cancer. Create a Pepper. Chilis is donating all profits at its restaurants from September 28, 2009 to St. Jude ... Read on »
Please Help: Adrenocortical Carcinoma by xoxomarebear Patient Expert Posted in: Blog Posts in Cancer Viva la Vivi has been asked to get involved and spread the word, as a research study may begin if more participants with a rare genetic disorder can be found. I have ... Read on »
Thank You by xoxomarebear Patient Expert Posted in: Blog Posts in Cancer This post is just a big, loving, teary-eyed THANK YOU to those who have not forgotten about us. To the people who send nice text messages when we have stuff going on; To ... Read on »