I started my endometriosis journey when I was fourteen; I was losing weight and always in chronic stomach pain. With saying this, the pain was not located in the "normal" place you would find endometriosis. We gave up looking for any hope until April 2011 (I was 17 that year). I ended up leaving my high school due to a severe bullying case. The doctors believed that this pain was possibly due to stress. He did send me to a gastro/intestinal specialist who did mention endometriosis but again due to the pain not being in a "normal place" he put me in for a colonoscopy and endoscopy for the bowel which resulted in nothing being found. This all resulted in me also being diagnosed with depression. I was living with being bullied and in this chronic pain that no one could explain. Finally a couple of months later my partner convinced me to go back after I experienced an unusual pain in the lower abdomen; my doctor then suggested that a trip to the gynaecologist was needed. I was put in for a laparoscopy in August 2011 and was diagnosed with stage four endometriosis. I went back to the gynaecologist who told me it would never ever attack me again. In January 2012, the pain started again. Neither the doctor or gynaecologist believed that it could be back so quickly and they kept putting the operation off until I was pestering them so much they put me back in for May 2012, less that 12 months later. Yes it was back and yes It was stage four again. I felt like I had been cheated. The gynaecologist has said that he no longer wants to operate on me due to how quickly it keeps coming back. Fast forward to this year, I'm starting to feel the pain in my lower abdomen and back again and I have also been dealing with meningitis. I haven't been to work in 6 weeks and I'm not sure when I'm due back. This has definitely affected my life, I may never get rid of the chronic disease, but I truly hope my chance to have children hasn't been robbed.
Thank you for sharing your story Adrienne. I'm so sorry to hear that you have been battling meningitis at the same time as all this but I'm glad to hear that you're finally making some progress with it. I hope you find a specialist soon who will actually try and help you deal with your endometriosis.
Can anyone relate to Adrienne's story? Has your doctor or specialist ever told you that after one surgery the endometriosis would never 'attack' again? Has your doctor or specialist ever given up on you like Adrienne's? Have you ever found that stress has made your endometriosis symptoms worse? Remember, everyone of us has a different story, and the more shared, the more we can learn. If you are interested in sharing your story, please email it to me at firstname.lastname@example.org along with a photo and I'll pop it on to here for others to read.