Health knowledge made personal

Wheelchair Kamikaze Patient Expert

New York, New York
Hi, my name is Marc, but in some circles I'm better known as the "Wheelchair Kamikaze". I was first diagnosed with primary progressive MS in 2003, and my disease has progressed to the point where I rely on a wheelchair for most of my mobility. Before getting sick, I worked in the... Full Bio
› Share page:

Posts

Sort by: Most recent | Name
Bits and Pieces: Back, Once Again by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia Here's yet another edition of Bits and Pieces, in which I assemble various MS related (and sometimes non-MS related) materials for your reading ... Read on »
What Does MS = To You? by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) March 14-20 is "MS Awareness Week", and the NMSS has sponsored a "MS =" program ( click here ), asking folks to describe what MS means to them in 60 characters or less. ... Read on »
Deconstructing Marc by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia . Multiple Sclerosis is an undeniably destructive force. To various degrees, which change from patient to patient, the disease picks apart bodie ... Read on »
Link to Blogtalk Radio Show on CCSVI by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) This past Monday night, I appeared on the Blogtalk Radio Internet program "CCSVI-Been There, Done That". The show featured a range of guests relating their different exper ... Read on »
Monday, March 7, 8 PM EST - CCSVI on Blog Talk Radio by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via CrunchBase I'll be joining host Amy Gurowitz and five other MSers who have undergone the CCSVI treatment procedure for a two-hour netcast of her show "MS ... Read on »
CCSVI: Trying to Take the "Hyper" out of “Hyperbole" by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image by soukup via Flickr Over the last several months, many of the Internet MS forums, chat rooms, and social networking sites have become places of sometimes hea ... Read on »
The Misdiagnosis of Multiple Sclerosis, and the Mystery of Me… by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia As most patients know, diagnosing Multiple Sclerosis is no easy matter. Despite sophisticated diagnostic tools and techniques, such as MRI imag ... Read on »
CCSVI Video: Interview with Dr. Paolo Zamboni and Dr. Jack Burks by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Sorry that things have been quiet here on Wheelchair Kamikaze for the last week or so, but I've been battling a bit of a bug. I hope you'll enjoy the following tasty tidbi ... Read on »
Thank You! by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Thanks to your votes, Wheelchair Kamikaze has won medGadget.com's 2010 Best Patient Blog award ( click here ). WK also won the award in 2009, which proves one thing beyo ... Read on »
Diversions by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image by al_dekleine via Flickr I've found that Multiple Sclerosis can become an all-consuming obsession to those suffering from it. Or, to be more precise, to th ... Read on »
Seeing Red by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia I'm generally a guy who is very slow to anger. I'm relatively even-tempered, and always try to remind myself that triumph and disaster, as Rud ... Read on »
CCSVI Video: Conversation with Dr. Dake and Dr. Mehta; Also, Some Shameless Self-Promotion by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Okay, first the shameless self-promotion. Wheelchair Kamikaze has been selected as a finalist for medgadget.com's 2010 "Best Patient Blog" award ( click here ). In what ... Read on »
CCSVI (and Me) on the Radio, and an NMSS CCSVI Research Update by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia Last October, a reporter from radio's version of Public Television, National Public Radio (commonly referred to as NPR), conducted a telephone inter ... Read on »
Latest MS Drug News; Much of It Bad… by Wheelchair Kamikaze Patient Expert 1 Comment Posted in: Blog Posts in Multiple Sclerosis (MS) Image by mtsofan via Flickr There’s been a spate of news in the last two weeks regarding existing and proposed MS drugs, much of it on the negative side. Several dr ... Read on »
Video of Dr. Michael Dake's CCSVI Presentation at Brandeis University by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) On January 10, 2011 the CCSVI Alliance sponsored a presentation by Dr. Michael Dake of Stanford University entitled "CCSVI and the MS connection". The event was held at Br ... Read on »
Bits and Pieces: Including NMSS Neuroregeneration Webcast Recap by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia Well, it's time for another edition of Bits and Pieces, my semi regular compilation of various items, mostly related to MS, which have recently ... Read on »
Live Webcast, "Repairing the Nervous System in MS: Progress and Next Steps": Tuesday, 01/11/11, 2... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) The National Multiple Sclerosis Society is holding a live webcast on Tuesday, January 11, at 2 PM, focusing on the latest research efforts in neurorepair and neuroregenera ... Read on »
The Acorn and the Tree by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image by 'PixelPlacebo' via Flickr Before my diagnosis, I might have been the last person you'd have expected to not crumble under the relentless hammering of progr ... Read on »
A Video Interview with My CCSVI Doctor by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia Sorry for the delay since my last post, but I've been a bit under the weather. Nothing serious, but as my fellow MSers know, just a touch of fe ... Read on »
Ho Ho Ho-Now Give Me Your Money by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image by George Eastman House via Flickr No, I don't want your stinkin' money, but if you are looking for places to do some charitable giving this holiday season (and ... Read on »