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Wheelchair Kamikaze Patient Expert

New York, New York
Hi, my name is Marc, but in some circles I'm better known as the "Wheelchair Kamikaze". I was first diagnosed with primary progressive MS in 2003, and my disease has progressed to the point where I rely on a wheelchair for most of my mobility. Before getting sick, I worked in the... Full Bio
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Another Medical Industrial Complex Outrage: Vital Drugs In Short Supply Because of Low Profit... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia Well, here's a story that warms the heart. The chemotherapy drug methotrexate, which has been used to treat progressive forms of MS and ... Read on »
One by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) One is the loneliest number, at least according to a song written by Harry Nilsson in 1967 (and made famous by Three Dog Night in 1 ... Read on »
Don't Get Stuck in the Suck by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) (For those who receive Wheelchair Kamikaze via e-mail, this post contains a video, which can only be viewed from the WK website) In one of my recent posts, I m ... Read on »
Bits and Pieces: CCSVI, Stem Cells, Big Pharma, Boobs, and A Sad Goodbye by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia ( For those readers who receive Wheelchair Kamikaze via email, this post contains videos, which can only be viewed on t ... Read on »
Shock and Awe by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Next week will mark five years since I was forced to "retire" due to my illness. It's been almost 9 years since I first received ... Read on »
Some New Photos to Ring in the New Year by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia What better way to celebrate the New Year than to post a bunch of new photos to my Wheelchair Kamikaze photo gallery? Wh ... Read on »
Bits and Pieces: Happy Holidays Edition by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) (note: for those who receive this via e-mail, this post contains some video links, which can only be acc ... Read on »
You Can't Be Too Strong by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) One of the great paradoxes of dealing with MS: it's a disease one of whose hallmark symptoms is weakness, yet it demands the utmost strength from those ... Read on »
Research Roundup: CCSVI, New Drugs, and Other Items of MS Interest by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) The last two months have brought a deluge of MS research data, much of it coming out of October's ECTRIMS (European Council on Tr ... Read on »
A Few Bits, a Couple of Pieces, and a Happy Thanksgiving to All… by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) With Thanksgiving week upon us, I'm going to keep this one relatively short. Stay tuned, though, as next week I plan on posting a ... Read on »
Mind the Gap by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) When riding on the London Underground (subway), passengers are warned to "mind the gap". This is a reminder to beware the space between the subw ... Read on »
Greed Trumps Common Sense Once Again, Courtesy Big Pharma by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image by Images_of_Money via Flickr The mix of money and medicine often makes for a strange brew. Far too often, conflicts arise between what is best ... Read on »
Another Day in Paradise by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia The day begins. My alarm clock goes off, and as consciousness slowly seeps in I find that I have been sleeping on my stomach, as is ... Read on »
Bits and Pieces: I'm Grumpy Edition by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Sorry about the long gap between these scribblings and my last post, but I've been dealing with computer issues for the better part of this week. When I say computer i ... Read on »
Progressive MS: A Deep Mystery Beginning To Reveal Its Secrets? by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia The words "progressive multiple sclerosis" carry with them a sense of dread and panic for most MS patients. When I was newly diagnosed, ... Read on »
Some New Photos, With a Twist by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) I've added some new photos to the Wheelchair Kamikaze photo gallery, but these are a little bit different than any of the other shots found there. Back before my neurologi ... Read on »
Bits and Pieces: End of Summer Edition by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image by Claudio.Ar via Flickr Well, here's another collection of various items of interest (well, at least of my interest), most of which have somethin ... Read on »
It Takes One to Know One by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia Receiving a diagnosis of multiple sclerosis, or any other dire illness, instantly transports a person to a very lonely place. They a ... Read on »
Say It Loud, I'm a Gimp and I'm Proud! by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image by Heinrich Klaffs via Flickr Apologies to James Brown for the title of this post, as his 1968 funk classic "Say It Loud, I'm Black and I'm Proud" ( cl ... Read on »
A Bit, a Piece, and Some Photos… by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia Sorry about the nearly two-week gap since my last post, but in addition to earthquakes, hurricanes, and my birthday, I've also been deal ... Read on »