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Wheelchair Kamikaze Patient Expert

New York, New York
Hi, my name is Marc, but in some circles I'm better known as the "Wheelchair Kamikaze". I was first diagnosed with primary progressive MS in 2003, and my disease has progressed to the point where I rely on a wheelchair for most of my mobility. Before getting sick, I worked in the... Full Bio
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Bits and Pieces: CCSVI and the FDA – Oy Vey! by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) I wonder if any Wheelchair Kamikaze readers are unfamiliar with the phrase "oy vey"? Given how shockingly worldwide the readership of this blog is, I have to imagin ... Read on »
Stuck in Solitary by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) When I started this blog, I decided I didn't want it to be a blow-by-blow account of my journey through the medical world, a symptom diary, or a journal of the trea ... Read on »
The Wheat from the Chaff by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Taking mental time trips back into my own past, I realize that much of what caused the healthy but neurotic me endless fretting, worrying, and anxiety was in retros ... Read on »
Pleased to Meet Me (Redux) by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Narcissus (Photo credit: pogobee ) (I've been fighting a bug this past week, and also dealing with some "personal issues" - don't those always sound madd ... Read on »
Parallel Universes by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Brugge Reflections (Photo credit: Wikipedia ) The very personal world that we consider ourselves to be part of is entirely determined by self-definition. Man ... Read on »
Bits and Pieces: a Smorgasbord of MS Info by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) A photograph of part of page 65, Woman's Home Companion, August, 1921, to get the 1921 Underwood logo (Photo credit: Wikipedia ) ... Read on »
Some New Photos, Some Shot with a New Toy by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) The camera in the iPhone 4S (Photo credit: Wikipedia ) It's been a while since I added new photos to the gallery (featured in the sidebar on t ... Read on »
Fear Factor by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) I'm scared. There, I said it. Actually, the word "scared" hardly suffices; I guess "terrified" would more fit the bill ... Read on »
The Long View by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) In the past, I've written much about the need to break down the potentially overwhelming tide of emotional and physical strain that comes part and parcel with chronic pr ... Read on »
Bits and Pieces: Weird Science Edition by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Regular Wheelchair Kamikaze readers have probably noticed that the blog has undergone several design changes during the last few weeks. Yes, I have ... Read on »
CCSVI: Three Years On, Some Thoughts and Observations by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia It seems almost incredible, but it's been nearly 3 years since I wrote my first Wheelchair Kamikaze post on C ... Read on »
Another Medical Industrial Complex Outrage: Vital Drugs In Short Supply Because of Low Profit... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia Well, here's a story that warms the heart. The chemotherapy drug methotrexate, which has been used to treat progressive forms of MS and ... Read on »
One by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) One is the loneliest number, at least according to a song written by Harry Nilsson in 1967 (and made famous by Three Dog Night in 1 ... Read on »
Don't Get Stuck in the Suck by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) (For those who receive Wheelchair Kamikaze via e-mail, this post contains a video, which can only be viewed from the WK website) In one of my recent posts, I m ... Read on »
Bits and Pieces: CCSVI, Stem Cells, Big Pharma, Boobs, and A Sad Goodbye by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia ( For those readers who receive Wheelchair Kamikaze via email, this post contains videos, which can only be viewed on t ... Read on »
Shock and Awe by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Next week will mark five years since I was forced to "retire" due to my illness. It's been almost 9 years since I first received ... Read on »
Some New Photos to Ring in the New Year by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia What better way to celebrate the New Year than to post a bunch of new photos to my Wheelchair Kamikaze photo gallery? Wh ... Read on »
Bits and Pieces: Happy Holidays Edition by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) (note: for those who receive this via e-mail, this post contains some video links, which can only be acc ... Read on »
You Can't Be Too Strong by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) One of the great paradoxes of dealing with MS: it's a disease one of whose hallmark symptoms is weakness, yet it demands the utmost strength from those ... Read on »
Research Roundup: CCSVI, New Drugs, and Other Items of MS Interest by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) The last two months have brought a deluge of MS research data, much of it coming out of October's ECTRIMS (European Council on Tr ... Read on »