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Wheelchair Kamikaze Patient Expert

New York, New York
Hi, my name is Marc, but in some circles I'm better known as the "Wheelchair Kamikaze". I was first diagnosed with primary progressive MS in 2003, and my disease has progressed to the point where I rely on a wheelchair for most of my mobility. Before getting sick, I worked in the... Full Bio
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Bits and Pieces: Doomsday/Happy Holidays Edition by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) English: An engraved illustration of Santa Claus and what may be Mrs. Santa Claus from the 1878 book "Lill's Travels in Santa Claus Land and Other Stories" ... Read on »
On Me Missing Me by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) I miss me. Reduced to its essence, the Gordian knot of emotions in which I find myself evermore entwined as my disease progresses ... Read on »
Why Must Being Sick Be Such Hard Work? by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Being sick sucks. Of course, this notion is self-evident. Nobody in their right mind wants to be sick. For those who are otherw ... Read on »
Bits and Pieces: Batten Down The Hatches Edition by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) First, thanks to everybody who inquired about my well-being after Superstorm Sandy hit the New York-New Jersey area. Luckily, I live in the uptown ... Read on »
Please Stand By (and a hooray for me) by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) My apologies for the lack of a recent post, but my peculiar flavor of creeping paralysis has been especially troublesome of la ... Read on »
Multiple Sclerosis: The Ugly Truth by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) (Warning: the following essay contains frank descriptions of the physical ravages that can result from Multiple Sclerosis, and may be disturbing to some readers. Those w ... Read on »
I Got A Rock by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) (For those who receive these posts by email, this essay contains a video, which can only be viewed on the blog’s website, www.wheelchairkamikaze.com ) In ... Read on »
Bits and Pieces: Pharmaceutical Follies Edition by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Oh, those pharmaceutical companies, always generating such tremendous tidings of joy and overwhelming warm and fuzzy feelings in the hearts of their adoring ... Read on »
Our System for Treating the Sick Is Sick Itself; No Cure In Sight by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Hippocrates: a conventionalized image in a Roman "portrait" bust (19th century engraving) (Photo credit: Wikipedia ) I’ve recently come across a spate of ne ... Read on »
A First-Hand Report – The Importance of Cerebrospinal Fluid (CSF) Flow in MS, and a Possible... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Recently, several studies have illuminated the important role that the proper flow of cerebrospinal fluid (CSF) through the brain and central nervous ... Read on »
Makes No Sense at All by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) My Uncle Paul was a good man. He was the kind of guy that New York City used to mint by the thousands, before the high finance types too ... Read on »
Gimme Some Truth by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Truth (Photo credit: Wikipedia ) A few minutes before midnight two Fridays ago, most people would've considered my situation (partially and increasingly paralyz ... Read on »
Adventures Outside the Box: Attempting a Naturopathic Treatment by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Dioscorides’ Materia Medica, c. 1334 copy in Arabic, describes medicinal features of cumin and dill. (Photo credit: Wikipedia ) Since my disease has proven t ... Read on »
Bits and Pieces-It's Not the Heat, It's the Stupidity Edition - CCSVI, MS Misdiagnosis, Medical... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) heat miser! (Photo credit: picturemommy ) Summertime, and the living is easy. Except if you have MS, in which case the heat of summer brings with it the splendo ... Read on »
Internet Down by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Sorry for the lack of a recent post, but my Internet service is down. Posting this via iPhone. I will have a new post up as soon as I'm back in the 21st-century. In the ... Read on »
What Are the Odds? by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Okay, I'll admit it. Despite my best attempts to stay in the moment, live my life mindfully, and not get overwhelmed with regrets about the past or worries about the fut ... Read on »
Taking the Good with the Bad (Some New Photos for the Gallery)… by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) (Just a quick note: due to the high volume of e-mail generated by this blog, and the increasing challenges posed by my illness, I will regretfully no longer be able to a ... Read on »
Tipping Points by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) The progression of disability brought about by progressive MS can be likened to the circumstance of a bucket placed under a leaky roof, slowly filli ... Read on »
Bits and Pieces: CCSVI and the FDA – Oy Vey! by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) I wonder if any Wheelchair Kamikaze readers are unfamiliar with the phrase "oy vey"? Given how shockingly worldwide the readership of this blog is, I have to imagin ... Read on »
Stuck in Solitary by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) When I started this blog, I decided I didn't want it to be a blow-by-blow account of my journey through the medical world, a symptom diary, or a journal of the trea ... Read on »