Health knowledge made personal

Wheelchair Kamikaze Patient Expert

New York, New York
Blog: http://www.wheelchairkamikaze.com/
Hi, my name is Marc, but in some circles I'm better known as the "Wheelchair Kamikaze". I was first diagnosed with primary progressive MS in 2003, and my disease has progressed to the point where I rely on a wheelchair for most of my mobility. Before getting sick, I worked in the... Full Bio
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Makes No Sense at All by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) My Uncle Paul was a good man. He was the kind of guy that New York City used to mint by the thousands, before the high finance types too ... Read on »
Gimme Some Truth by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Truth (Photo credit: Wikipedia ) A few minutes before midnight two Fridays ago, most people would've considered my situation (partially and increasingly paralyz ... Read on »
Adventures Outside the Box: Attempting a Naturopathic Treatment by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Dioscorides’ Materia Medica, c. 1334 copy in Arabic, describes medicinal features of cumin and dill. (Photo credit: Wikipedia ) Since my disease has proven t ... Read on »
Bits and Pieces-It's Not the Heat, It's the Stupidity Edition - CCSVI, MS Misdiagnosis, Medical... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) heat miser! (Photo credit: picturemommy ) Summertime, and the living is easy. Except if you have MS, in which case the heat of summer brings with it the splendo ... Read on »
Internet Down by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Sorry for the lack of a recent post, but my Internet service is down. Posting this via iPhone. I will have a new post up as soon as I'm back in the 21st-century. In the ... Read on »
What Are the Odds? by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Okay, I'll admit it. Despite my best attempts to stay in the moment, live my life mindfully, and not get overwhelmed with regrets about the past or worries about the fut ... Read on »
Taking the Good with the Bad (Some New Photos for the Gallery)… by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) (Just a quick note: due to the high volume of e-mail generated by this blog, and the increasing challenges posed by my illness, I will regretfully no longer be able to a ... Read on »
Tipping Points by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) The progression of disability brought about by progressive MS can be likened to the circumstance of a bucket placed under a leaky roof, slowly filli ... Read on »
Bits and Pieces: CCSVI and the FDA – Oy Vey! by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) I wonder if any Wheelchair Kamikaze readers are unfamiliar with the phrase "oy vey"? Given how shockingly worldwide the readership of this blog is, I have to imagin ... Read on »
Stuck in Solitary by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) When I started this blog, I decided I didn't want it to be a blow-by-blow account of my journey through the medical world, a symptom diary, or a journal of the trea ... Read on »
The Wheat from the Chaff by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Taking mental time trips back into my own past, I realize that much of what caused the healthy but neurotic me endless fretting, worrying, and anxiety was in retros ... Read on »
Pleased to Meet Me (Redux) by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Narcissus (Photo credit: pogobee ) (I've been fighting a bug this past week, and also dealing with some "personal issues" - don't those always sound madd ... Read on »
Parallel Universes by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Brugge Reflections (Photo credit: Wikipedia ) The very personal world that we consider ourselves to be part of is entirely determined by self-definition. Man ... Read on »
Bits and Pieces: a Smorgasbord of MS Info by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) A photograph of part of page 65, Woman's Home Companion, August, 1921, to get the 1921 Underwood logo (Photo credit: Wikipedia ) ... Read on »
Some New Photos, Some Shot with a New Toy by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) The camera in the iPhone 4S (Photo credit: Wikipedia ) It's been a while since I added new photos to the gallery (featured in the sidebar on t ... Read on »
Fear Factor by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) I'm scared. There, I said it. Actually, the word "scared" hardly suffices; I guess "terrified" would more fit the bill ... Read on »
The Long View by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) In the past, I've written much about the need to break down the potentially overwhelming tide of emotional and physical strain that comes part and parcel with chronic pr ... Read on »
Bits and Pieces: Weird Science Edition by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Regular Wheelchair Kamikaze readers have probably noticed that the blog has undergone several design changes during the last few weeks. Yes, I have ... Read on »
CCSVI: Three Years On, Some Thoughts and Observations by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia It seems almost incredible, but it's been nearly 3 years since I wrote my first Wheelchair Kamikaze post on C ... Read on »
Another Medical Industrial Complex Outrage: Vital Drugs In Short Supply Because of Low Profit... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia Well, here's a story that warms the heart. The chemotherapy drug methotrexate, which has been used to treat progressive forms of MS and ... Read on »
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