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Wheelchair Kamikaze Patient Expert

New York, New York
Hi, my name is Marc, but in some circles I'm better known as the "Wheelchair Kamikaze". I was first diagnosed with primary progressive MS in 2003, and my disease has progressed to the point where I rely on a wheelchair for most of my mobility. Before getting sick, I worked in the... Full Bio
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Bits and Pieces: Can’t Please Everyone Edition (Also, MS and: Statin Drugs, Ancient Viruses,... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) For those readers who receive Wheelchair Kamikaze via email, this post contains videos that can only be viewed on the blog website ( click here ). In my meanderings ... Read on »
Pioneering MS Stem Cell Trial Needs Your Help! by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Z I've very rarely used Wheelchair Kamikaze to directly appeal for charitable donations to help any individual research project, as I've always been extremely wary of abu ... Read on »
11 Years Gimpy and the Lessons Learned, Part One by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) March 9, 2003 was a typical late winter’s day in New York City. The temperature was about 30°F, but the sun shone brightly, and in the late afternoon, feeling a little bore ... Read on »
Bits and Pieces: Arctic Vortex Edition by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Okay, I know it’s considered terribly mundane and just downright boring to talk about the weather, but the winter here in NYC and in much of the Midwest and Eastern US has r ... Read on »
My New Ride by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Well, I got myself a new rig. Yup, after five and half years the time has come to put my old wheelchair out to pasture, and to welcome a new mechanical monster into the ... Read on »
A Certain Kind of Crazy by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) (Photo credit: JenXer ) One of the unexpected upsides of my being stricken with MS (or whatever the hell it is that I have) is that dealing with the disease ... Read on »
Bits and Pieces: 1,000,000 Page Views Edition (Also: Lemtrada, Tysabri Risk/Reward, and Asinine... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Eyeballs (Photo credit: Skrewtape ) (If you have received this via email, the following post contains a slideshow and a video, which can be viewed on the Whe ... Read on »
'tis Better to Give… (Worthy MS Nonprofits for Holiday Giving) by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) English: Santa Claus as illustrated in , v. 56, no. 1449 (1904 December 7), cover. (Photo credit: Wikipedia ) (For those who receive these posts via email, ... Read on »
How Are You? by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) English: "Three Gentlemen Greeting Each Other" (Photo credit: Wikipedia ) How are you? I’ve always hated that question. It’s asked countless times a day, ... Read on »
Bits and Pieces: Tecfidera Poll Results Edition by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) (Photo credit: Ancratyne ) (For those readers who receive Wheelchair Kamikaze via email, this post contains a video that cannot be viewed in stand ... Read on »
$150,000 in My Fridge, and I Feel like Crap by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Okay, to be completely accurate, about four weeks ago I did have $150,000 in my fridge, but now I only have about $100,000 sitting next to my butter dish. And that ... Read on »
At What Price Health? (Repost) by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Well, I'm still in recovery mode from my last failed attempt at trying a new MS med. For all of those who have inquired, no, the medication was not Tecfidera, so if you ha ... Read on »
Remembering Stella (Repost) by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) (Some good news and some bad news. First, the bad news. After trying a new drug (for me) to calm my mysterious  beast, I am instead caught in the throes of a struggle with ... Read on »
Stem Cell Treatments for Multiple Sclerosis by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) For patients, physicians, and researchers alike, stem cells hold the tantalizing potential of turning back the tide of multiple sclerosis, repairing damaged brains and sp ... Read on »
A Half-Century on Planet Earth by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) This past Tuesday, August 27, I joined the half-century club, celebrating my 50th birthday. It doesn’t seem all that long ago that 50 sounded pretty goddamned old, and ... Read on »
Road Tripping by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) A big thanks to all the nice folks who sent well wishes last week for my trip up to Maine. I’m happy to report that the excursion went extraordinarily well, despite m ... Read on »
A Few Bits and a Piece: Tecfidera Poll Continued, Interesting New MS Web Community, Hand Controls... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) I know, I know, faithful Wheelchair Kamikaze readers are thinking, “Geez, Marc just did a Bits and Pieces post last time around, and now he’s doing another one? What ... Read on »
Bits and Pieces: Tecfidera Poll, Pharmaceutical Shenanigans, and More… by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Support medical research: Your life depends on it! (Photo credit: afagen ) (For those who receive these posts via email, the following contains several interact ... Read on »
An Ugly Profile by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) As every man, woman and child over the age of six living in the United States must be all too aware, the latest courtroom drama to grip the nation has been the trial ... Read on »
It's Not Easy Being Green by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) The Seven Vices - Envy, by Giotto (1306, Fresco, 120 x 55 cm, Cappella degli Scrovegni (Arena Chapel), Padua, Italy) (Photo credit: Wikipedia ) Envy. I’m no ... Read on »