Health knowledge made personal

Wheelchair Kamikaze Patient Expert

New York, New York
Hi, my name is Marc, but in some circles I'm better known as the "Wheelchair Kamikaze". I was first diagnosed with primary progressive MS in 2003, and my disease has progressed to the point where I rely on a wheelchair for most of my mobility. Before getting sick, I worked in the... Full Bio
› Share page:

Posts

Sort by: Most recent | Name
Winter’s Discontents by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) (Apologies to The Mamas and The Papas) All the leaves are brown, and the sky is gray I needed to go outside, on a winter’s day Struggled with socks, swea ... Read on »
iConquerMS – Your Chance to Help Bloody the Beast by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Okay, my fellow MSers, are you sick of sitting on the sidelines like powerless spectators observing a do or die contest that will determine your very own fate, waiting anxi ... Read on »
Bits and Pieces: Multiple Universes Edition (includingLemtrada,theMS-Gut Connection, Progressive... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) (For those receiving this via email, this post contains videos which can be viewed on the Wheelchair Kamikaze website – click here ) I’ve been reading about the ve ... Read on »
Patient Taking Tecfidera Develops PML, Later Dies – Outlier or Harbinger of Things to Come? by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Last week, in disclosing the company’s quarterly financial report, pharmaceutical giant Biogen revealed that a patient taking its oral MS drug Tecfidera had developed th ... Read on »
My Body, My Self by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) In Mel Brooks’ 1981 comedy “The History of the World, Part 1”, a scene set during the French Revolution features a member of the aristocracy rushing to tell King Louis ... Read on »
Bits and Pieces: Autumn Equinox Edition (also Tysabri, MS and HIV, viruses, relapse rates,... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Personification of Autumn (Currier & Ives lithograph, 1871) (Photo credit: Wikipedia ) Well, according to the full scale replica of Stonehenge that I have si ... Read on »
Supplements, My Supplements by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Arabic herbal medicine guidebook (Photo credit: Wikipedia ) Using natural supplements to help treat MS is always a topic of much interest amongst patient ... Read on »
The Problem with Progression, Revisited by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) English: Cropped version of :Image:Domino effect.jpg (Photo credit: Wikipedia ) The good folks who administer the website MultipleSclerosis.net ( click h ... Read on »
Man Bites Dog (or, MS Patient Beats Insurance Company after Stem Cell Transplant, to the Tune of... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) (c) GoGraph / lhfgraphics Oh, the many pleasures of Multiple Sclerosis. In addition to the physical and psychological toll taken by the disease, MS ... Read on »
HSCT – Will This Form of Stem Cell Therapy Soon Become the Standard ofCare for Many MS... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) English: Cervical spine MRI with enhancement showing multiple sclerosis (Photo credit: Wikipedia ) Hematopoietic Stem Cell Therapy, now there’s a mouthful. ... Read on »
Bits and Pieces: Writer's Block Edition (Also: Tecfidera, Crying Jags, the Price of MS Drugs,... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Cover of Gojira [Blu-ray] (For those who receive Wheelchair Kamikaze via email, this post contains videos that can be viewed on the Wheelchair Kamikaze website ... Read on »
Me, In Front Of The Camera (Yikes!) by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) (For those receiving this via email, this post contains a video which can be viewed at the Wheelchair Kamikaze website – click here ) As is evidenced by the Wheelch ... Read on »
Must Watch TV – "When I Walk" Airing Monday, June 23 by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Last year I wrote about a remarkable MS themed film called When I Walk that was making the rounds of local film festivals. In part funded through a Kickstarter crowdfu ... Read on »
The Great Pretender by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) (For those receiving this via email, this post contains a video that can be viewed on the Wheelchair Kamikaze website- click here ) Yes, I'm the great pretender ... Read on »
Remembering Robert Kennedy by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia (I rarely deviate from the MS/disability theme of this blog, but there are some things that are more important than multiple sclerosi ... Read on »
To Work or Not to Work – Employment and MS by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Multiple sclerosis can be a wrecking ball of a disease, its potential effects threatening to impact virtually all aspects of life. Though the newest MS therapie ... Read on »
Bits and Pieces: Neurologists' Conference Edition (also: Tysabri,Tecfidera, Marijuana, Mold,... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) (For those who receive Wheelchair Kamikaze via email, the following post contains videos which can be seen on the WK website – click here ) It’s time once again ... Read on »
Suspended by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) A reliable staple of science fiction space adventures is the concept of “suspended animation”, whereby astronauts traveling to far off galaxies are put into a kind of hi ... Read on »
11 Years Gimpy and the Lessons Learned, Part Two by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Caduceus Symbol - Medical Symbol MD (Photo credit: wcm1111 ) Last month I “celebrated” the 11th anniversary of my MS diagnosis with part one of Lessons Learn ... Read on »
Bits and Pieces: Can’t Please Everyone Edition (Also, MS and: Statin Drugs, Ancient Viruses,... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) For those readers who receive Wheelchair Kamikaze via email, this post contains videos that can only be viewed on the blog website ( click here ). In my meanderings ... Read on »