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Wheelchair Kamikaze Patient Expert

New York, New York
Hi, my name is Marc, but in some circles I'm better known as the "Wheelchair Kamikaze". I was first diagnosed with primary progressive MS in 2003, and my disease has progressed to the point where I rely on a wheelchair for most of my mobility. Before getting sick, I worked in the... Full Bio
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Bits and Pieces: Short-Term Memory Edition (including MS drug news, restless genitals, natural... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) (For those readers who receive these posts via email, the following contains lots of multimedia eye and ear candy that can’t be accessed via email. I wouldn’t want you t ... Read on »
National MS Society Decision Makers Take Big Bucks from Big Pharma by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) As I detailed in two recent Wheelchair Kamikaze essays, the American National Multiple Sclerosis Society has repeatedly rejected grant proposals to help fund the only FD ... Read on »
Interview With A Kamikaze by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) I was recently contacted and asked for an interview by fellow MSer Meagan Freeman, who writes the excellent blog “Multiple Sclerosis, Motherhood, and Other Traumatic Exp ... Read on »
National MS Society FAIL: UPDATE – The NMSS Responds by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) First, I’d like to thank all who helped contribute to the online dialogue (some might even call it a brouhaha) spurred by my last post on this blog ( click here ), whi ... Read on »
National MS Society FAIL! Repeatedly Refuses to Fund Only Ongoing FDA Approved MS Stem Cell... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) The National Multiple Sclerosis Society (NMSS), by far the largest MS nonprofit organization in the US, has three times rejected grant applications from the Tisch Mult ... Read on »
A Stem Cell Scam Unravels… by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) As many MS patients are aware, stem cells represent one of the great hopes for vanquishing multiple sclerosis by way of their tantalizing potential for repairing damag ... Read on »
A Call to the Cosmic Complaint Department… by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Hello…? Mr. Universe…? Mrs. Universe…? Sir…? Ma’am…? Anybody…? Well, if you’re listening, I think there’s been a terrible mistake. You see, ... Read on »
Ho Ho Heave by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Well, it seems that I got a bit of an early Christmas present this year – in the form of THE FLU! Not a present I asked for, wanted, or needed. I guess I opened the window a ... Read on »
Winter’s Discontents by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) (Apologies to The Mamas and The Papas) All the leaves are brown, and the sky is gray I needed to go outside, on a winter’s day Struggled with socks, swea ... Read on »
iConquerMS – Your Chance to Help Bloody the Beast by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Okay, my fellow MSers, are you sick of sitting on the sidelines like powerless spectators observing a do or die contest that will determine your very own fate, waiting anxi ... Read on »
Bits and Pieces: Multiple Universes Edition (includingLemtrada,theMS-Gut Connection, Progressive... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) (For those receiving this via email, this post contains videos which can be viewed on the Wheelchair Kamikaze website – click here ) I’ve been reading about the ve ... Read on »
Patient Taking Tecfidera Develops PML, Later Dies – Outlier or Harbinger of Things to Come? by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Last week, in disclosing the company’s quarterly financial report, pharmaceutical giant Biogen revealed that a patient taking its oral MS drug Tecfidera had developed th ... Read on »
My Body, My Self by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) In Mel Brooks’ 1981 comedy “The History of the World, Part 1”, a scene set during the French Revolution features a member of the aristocracy rushing to tell King Louis ... Read on »
Bits and Pieces: Autumn Equinox Edition (also Tysabri, MS and HIV, viruses, relapse rates,... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Personification of Autumn (Currier & Ives lithograph, 1871) (Photo credit: Wikipedia ) Well, according to the full scale replica of Stonehenge that I have si ... Read on »
Supplements, My Supplements by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Arabic herbal medicine guidebook (Photo credit: Wikipedia ) Using natural supplements to help treat MS is always a topic of much interest amongst patient ... Read on »
The Problem with Progression, Revisited by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) English: Cropped version of :Image:Domino effect.jpg (Photo credit: Wikipedia ) The good folks who administer the website MultipleSclerosis.net ( click h ... Read on »
Man Bites Dog (or, MS Patient Beats Insurance Company after Stem Cell Transplant, to the Tune of... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) (c) GoGraph / lhfgraphics Oh, the many pleasures of Multiple Sclerosis. In addition to the physical and psychological toll taken by the disease, MS ... Read on »
HSCT – Will This Form of Stem Cell Therapy Soon Become the Standard ofCare for Many MS... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) English: Cervical spine MRI with enhancement showing multiple sclerosis (Photo credit: Wikipedia ) Hematopoietic Stem Cell Therapy, now there’s a mouthful. ... Read on »
Bits and Pieces: Writer's Block Edition (Also: Tecfidera, Crying Jags, the Price of MS Drugs,... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Cover of Gojira [Blu-ray] (For those who receive Wheelchair Kamikaze via email, this post contains videos that can be viewed on the Wheelchair Kamikaze website ... Read on »
Me, In Front Of The Camera (Yikes!) by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) (For those receiving this via email, this post contains a video which can be viewed at the Wheelchair Kamikaze website – click here ) As is evidenced by the Wheelch ... Read on »