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Wheelchair Kamikaze Patient Expert

New York, New York
Blog: http://www.wheelchairkamikaze.com/
Hi, my name is Marc, but in some circles I'm better known as the "Wheelchair Kamikaze". I was first diagnosed with primary progressive MS in 2003, and my disease has progressed to the point where I rely on a wheelchair for most of my mobility. Before getting sick, I worked in the... Full Bio
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CCSVI (the Vascular Theory of MS): Separating Fact from Fiction by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Since the airing of a Canadian television newsmagazine piece on CCSVI, there has been a veritable frenzy on Internet chat rooms and bulletin boards regarding this radica ... Read on »
CCSVI and MS: Cause, Effect, or Neither? by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image by Getty Images via @daylife It's now been over 18 months since the news of Dr. Zamboni's vascular theory of MS, the CCSVI hypothesis, first made its w ... Read on »
CCSVI and The Liberation Treatment: A whole new approach to MS by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Canadian television network CTV tonight aired a 20 minute news report on Dr. Paolo Zamboni and the "Liberation Procedure", a surgical intervention he uses to clear the b ... Read on »
CCSVI As Punk Rock by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia I Want To Be Anarchy. This was the battle cry of a generation of young rock ‘n rollers, who, in the late 1970s, donned black leathe ... Read on »
CCSVI Live Web Forum April 14 by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) A few days ago, I received this notice from the National Multiple Sclerosis Society: On April 14, 12 p.m. ET the National Multiple Sclerosis Society and the American Ac ... Read on »
CCSVI Video: Conversation with Dr. Dake and Dr. Mehta; Also, Some Shameless Self-Promotion by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Okay, first the shameless self-promotion. Wheelchair Kamikaze has been selected as a finalist for medgadget.com's 2010 "Best Patient Blog" award ( click here ). In what ... Read on »
CCSVI Video: Interview with Dr. Paolo Zamboni and Dr. Jack Burks by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Sorry that things have been quiet here on Wheelchair Kamikaze for the last week or so, but I've been battling a bit of a bug. I hope you'll enjoy the following tasty tidbi ... Read on »
CCSVI, Already a Success... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) This month, CCSVI exploded onto the MS radar screen, as the Canadian news media picked up on the story and the University at Buffalo released positive results from th ... Read on »
CCSVI: Some Words of Caution by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia The subject of CCSVI (the vascular theory of MS) has proven to be incendiary, and has set the MS community ablaze. Initial studies into the hyp ... Read on »
CCSVI: The Evolution of the Revolution by Wheelchair Kamikaze Patient Expert 1 Comment Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia It's now been about 16 months since the first Multiple Sclerosis patients outside of Italy underwent the venoplasty treatment known as The Li ... Read on »
CCSVI: Three Years On, Some Thoughts and Observations by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia It seems almost incredible, but it's been nearly 3 years since I wrote my first Wheelchair Kamikaze post on C ... Read on »
CCSVI: Trying to Take the "Hyper" out of “Hyperbole" by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image by soukup via Flickr Over the last several months, many of the Internet MS forums, chat rooms, and social networking sites have become places of sometimes hea ... Read on »
Changes, Inside And Out by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Change (Photo credit: mbgrigby ) For many individuals, change is an unpleasant proposition. Most folks generally strive to maintain stability in their personal ... Read on »
Choosing the Right MS Doctor by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image by angelamaphone via Flickr I regularly receive inquiries from newly diagnosed patients asking for recommendations on "the best MS doctor". Often, the request comes ... Read on »
Coming Soon: Three New Oral MS Drugs by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image by higlu via Flickr With all of the ballyhoo going on about CCSVI , I think I've been guilty of ignoring some of the more "mainstream" news regarding MS res ... Read on »
Comments on April 14 CCSVI Live Web Forum by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) On Wednesday, April 14, a forum on the topic of CCSVI ( Cerebrospinal Venous Insufficiency ) was webcast live from the American Academy of Neurology conference in Toro ... Read on »
Deconstructing Marc by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia . Multiple Sclerosis is an undeniably destructive force. To various degrees, which change from patient to patient, the disease picks apart bodie ... Read on »
Details on My CCSVI "Liberation Procedure" by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image by Okko Pyykkö via Flickr Okay, folks, here's the skinny on my experience undergoing the CCSVI "Liberation Procedure", and the results obtained from it. For ... Read on »
Disability Mind Games by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image by juanignaciosl via Flickr This last week has been kind of rough. The combination of the wear and tear from my trip down to Bethesda to visit the NIH and my fi ... Read on »
Diversions by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image by al_dekleine via Flickr I've found that Multiple Sclerosis can become an all-consuming obsession to those suffering from it. Or, to be more precise, to th ... Read on »
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