Health knowledge made personal

Wheelchair Kamikaze Patient Expert

New York, New York
Hi, my name is Marc, but in some circles I'm better known as the "Wheelchair Kamikaze". I was first diagnosed with primary progressive MS in 2003, and my disease has progressed to the point where I rely on a wheelchair for most of my mobility. Before getting sick, I worked in the... Full Bio
› Share page:

Posts

Sort by: Most recent | Name
$150,000 in My Fridge, and I Feel like Crap by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Okay, to be completely accurate, about four weeks ago I did have $150,000 in my fridge, but now I only have about $100,000 sitting next to my butter dish. And that ... Read on »
'tis Better to Give… (Worthy MS Nonprofits for Holiday Giving) by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) English: Santa Claus as illustrated in , v. 56, no. 1449 (1904 December 7), cover. (Photo credit: Wikipedia ) (For those who receive these posts via email, ... Read on »
'Tis the Season by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image by Amarand Agasi via Flickr Alas, it's that time of year again, when folks of all races, creeds, and colors turn their attentions to friends, family, and the bro ... Read on »
11 Years Gimpy and the Lessons Learned, Part One by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) March 9, 2003 was a typical late winter’s day in New York City. The temperature was about 30°F, but the sun shone brightly, and in the late afternoon, feeling a little bore ... Read on »
11 Years Gimpy and the Lessons Learned, Part Two by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Caduceus Symbol - Medical Symbol MD (Photo credit: wcm1111 ) Last month I “celebrated” the 11th anniversary of my MS diagnosis with part one of Lessons Learn ... Read on »
A Bit, a Piece, and Some Photos… by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia Sorry about the nearly two-week gap since my last post, but in addition to earthquakes, hurricanes, and my birthday, I've also been deal ... Read on »
A Bump in the Road by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) I'm unhappy to report that I had to spend the last 5 days in the hospital. After undergoing a spinal injection of methotrexate as an experimental treatment to stop the prog ... Read on »
A Certain Kind of Crazy by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) (Photo credit: JenXer ) One of the unexpected upsides of my being stricken with MS (or whatever the hell it is that I have) is that dealing with the disease ... Read on »
A Christmas Miracle by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Well, it's now officially Christmas Eve, so I thought I'd post a little Wheelchair Kamikaze Christmas message. I decided to refrain from ranting and raving about hairy mon ... Read on »
A Few Bits and a Piece: Tecfidera Poll Continued, Interesting New MS Web Community, Hand Controls... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) I know, I know, faithful Wheelchair Kamikaze readers are thinking, “Geez, Marc just did a Bits and Pieces post last time around, and now he’s doing another one? What ... Read on »
A Few Bits, a Couple of Pieces, and a Happy Thanksgiving to All… by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) With Thanksgiving week upon us, I'm going to keep this one relatively short. Stay tuned, though, as next week I plan on posting a ... Read on »
A First-Hand Report – The Importance of Cerebrospinal Fluid (CSF) Flow in MS, and a Possible... by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Recently, several studies have illuminated the important role that the proper flow of cerebrospinal fluid (CSF) through the brain and central nervous ... Read on »
A Half-Century on Planet Earth by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) This past Tuesday, August 27, I joined the half-century club, celebrating my 50th birthday. It doesn’t seem all that long ago that 50 sounded pretty goddamned old, and ... Read on »
A Little Housekeeping by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Well, it appears for the moment that the recent storm of CCSVI related news has reached its climax with the release of the initial Buffalo study results, so I expect thin ... Read on »
A Patient's Perspective on CCSVI, in Words and Pictures (Part Four) by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) On July 15, 2011 it was my honor to give a presentation at the Patient Information Day of the Second Annual CCSVI Update Symposium, held at the Crowne Plaza Hotel in Times ... Read on »
A Patient's Perspective on CCSVI, in Words and Pictures (Part One) by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) On July 15, 2011 I was honored to give a presentation at the Patient Information Day of the Second Annual CCSVI Update Symposium, held at the Crowne Plaza Hotel in Times S ... Read on »
A Patient's Perspective on CCSVI, in Words and Pictures (Part Three) by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) On July 15, 2011, it was my honor to give a presentation at the Patient Information Day of the Second Annual CCSVI Update Symposium, held at the Crowne Plaza Hotel in Time ... Read on »
A Patient's Perspective on CCSVI, in Words and Pictures (Part Two) by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) On July 15, 2011 I was honored to give a presentation at the Patient Information Day of the Second Annual CCSVI Update Symposium, held at the Crowne Plaza Hotel in Times S ... Read on »
A Potentially Effective Treatment for Progressive MS: Hiding in Plain Sight? by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Methotrexate (Photo credit: Wikipedia ) While all of the varieties of Multiple Sclerosis are vile, especially troublesome are the progressive flavors of the ... Read on »
A Question of Control by Wheelchair Kamikaze Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Image via Wikipedia It's funny how sometimes snippets of conversation about a very specific topic can be insightful and enlightening on a much broader scale than o ... Read on »