FDA approves Soliris (Eculizumab) for atypical HUSby
) for use in atypical HemolyticUremicSyndrome .
To those saying, "Huh?": Read on!
Atypical HemolyticUremicSyndrome..., there was no treatment for aHUS. Plasmapheresis was the only thing that could be tried and that too with varying success...
The little boy with atypical HUSby
went through me. HUS. HemolyticUremicSyndrome. Where the body's defense mechanism against foreign... of the doctors here. That, for sure, is a good idea. They say they have the best treatment there. I hope the team...
Atypical HUS Patient conference at Newcastleby
and their family on atypical HemolyticUremicSyndrome on Saturday, June 11th. This is a great initiative by Dr... itself.
The conference will cover the basics of the disease, the complement system and treatment options including liver...
Why me? An answer at last!by
I recently stumbled upon a site for atypical HemolyticUremicSyndrome (aHUS), the disease that I have. It is such a rare disease - there are only about 300 people who have this disease in the US. A very small part...
Hopefully, some day...by
A video of a young little boy diagnosed with Atypical HemolyticUremicSyndrome, the disease that I have, being given the wonder drug, Eculizumab
Tomorrow is Rare Disease Dayby
I have a disease called Atypical HemolyticUremicSyndrome (aHUS). This disease is classified as an Ultra Rare Disease - less than one in a million adults are estimated to be affected. The problem...
Today is Rare Disease Dayby
I have atypical HemolyticUremicSyndrome (aHUS). In the US, there are only about 300 people who have this disease. Most of them are children. Adult aHUS is even more rare. I am not aware of any statistics...