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treatments for dystrophy membersMembers related to treatments for dystrophy

 
Lisa Harvey Vittek Rocklin, California
My personal blog, http://www.cureforkayla.com, is dedicated to my daughter Kayla Vittek who was... More
Jeff .. Berwick, Pennsylvania
I was diagnosed with Polycystic Kidney Disease in 1997, started dialysis in August 2007, and had... More
justjay Deer Park, Washington
I was born with Duchenne muscular dystrophy (DMD) and have a good outlook on life. I'm in a... More
thematrix777 North Las Vegas, Nevada
I am disabled with RSD (Reflex Sympathetic Dystrophy) for several years now. It is a relatively... More
Pernille U. California
I am a 35 year old woman living in Florida. A few years ago I was diagnosed with Limb Girdle... More
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treatments for dystrophy Blogs and DiscussionsArticles

 
Viagra For Muscular Dystrophy by Ed H. Doctor of Pharmacy beneficial treatment for muscular dystrophy when 5 years ago I gave some Viagra to a 57-year old patient of mine with limb girdle muscular dystrophy for the usual purpose. In June, 2005 he returned...
New Radio Show on RSD (Reflex Sympathetic Dystrophy) by thematrix777 Patient ExpertHealth Maven on a wide variety of health issues, highlighting RSD ( Reflex Sympathetic Dystrophy ). All aspects will be discussed. From the latest in treatments, medications, physical therapy...
Muscular Dystrophy site by Rudy S. Patient Expert This is a great blog all about muscular dystrophy Link: Muscular Dystrophy. http://mdystrophy.wordpress.com/
Josh Winheld on Duchenne Muscular Dystrophy by David Patient Expert Josh Winheld has been sharing his thoughts about living with Duchenne Muscular Dystrophy... memoir, Worth the Ride: My Journey with Duchenne Muscular Dystrophy. ...
Woman with muscular dystrophy has to crawl off plane by Rudy S. Patient Expert There is an interesting discussion going on about this situation Link: F.R.I.D.A. . Woman with muscular dystrophy has to crawl off plane
The Early Diagnosis of Duchenne Muscular Dystrophy by Dr. Charlotte Thompson Medical Doctor  when a boy has Duchenne Muscular Dystrophy. This was highlighted in  a recent Journal of Pediatrics article. Having cared for boys with Duchenne dystrophy in six neuromuscular programs since 1957 when I directed  the...
Duchenne Muscular Dystrophy and Heart Disease by Dr. Charlotte Thompson Medical Doctor "Redefining Disease, Genes and All." The article begins by stating that "Duchenne muscular dystrophy may not... involved in both conditions. Having cared for many, many patients with Duchenne muscular dystrophy...
A Close Up Look at Reflex Sympathetic Dystrophy by thematrix777 Patient ExpertHealth Maven This is one option available for RSD. It is not a cure, only a temporary lowering of the pain so the patient may be able to cope better. Please take a few minutes of your time to watch the video and see what over a million pe
2007 DFW Muscular Dystrophy Telethon by Marci Patient Expert ! Now after volunteering at the DFW Jerry Lewis Muscular Dystrophy Association Telethon at Lone Star Park at Grand Prairie... if it wasn't for the Muscular Dystrophy Association, who in turn provides so many services to these people...
Support, Information for those with Reflex Sympathetic Dystrophy by Laura Y. Patient Expert This crossed my desk recently due to my old chronic pain management roots: MDJunction has a nice support group/discussion forum for those with RSD (also known as Complex Regional Pain Syndrome or CRPS).  Candid discussions

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Eastern Healing - Emotional Freedom...
A proven method known as Emotional Freedom Technique...
 
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treatments for dystrophy trusted partner sitesTrusted Partner Sites

 
Living with RSDS
Living with Regional Sympathetic Dystrophy Syndrome Karen Balzer      There is little question that I have regional sympathetic dystrophy syndrome (RSDS). Actually, it is more than "regional..., I used to have to wear gloves. Fortunately, I began to receive morphine by infusion pump and this treatment has greatly...crap

THINNING OF THE LEGS AND BUTTOCKS
Lypoatrophy/dystrophy seems to be related to AIDS/HIV from most readings and research I have done. I am no doctor but my friend at work has this (or has been diagnosed as this) and asked me to ask about it... infection or side effects of treatment....crap

So Many Varieties and Degrees of Overwhelmed
I painted this when I was diagnosed with reflex sympathetic dystrophy. Over the years, my ability to create has been severely compromised by pain and fatigue. In truth my ability to a great... and the assumed entitlement to comment on my medications, my treatments - what cannot feel like anything much less...crap

Body Distortion -- Lipodystrophy
Lipodystrophy (lipid = fat; dystrophy = disorder) Lipodystrophy syndrome is the term... better. The standard Serostim dose of the past was 6 mg injected daily, but treatment activists.... Although these lower doses, taken daily, are now being studied for lipodystrophy treatment by the manufacturer (Serono...crap

Will fat come back?
Hello and thanks for the opportunity to ask these questions. In regards to lipoatrophy/dystrophy, will human physiology allow our bodies to recoup the lost/dead/transferred fat deposits back to their original locations (i.e. cheeks/arms/butt/legs) once a viable treatment for lipoatrophy/dystrophy...crap

How long after a trauma do RSD (crps) symptoms begin? Do others wonder if their treatment actually
Doctors originally thought my RSD was due to a drill drop with puncture wound on my right foot.  But after seeing some of the newer research I am wondering if the invasive treatment I had could actually....  The fifth irrigation treatment hurt way more than the ones prior and within an hour my...crap

Anyone taking Rituxan that not only has RA, but also the following? . . .
. . . muscular dystrophy, osteoperosis, neuropathy and COPD? Anybody?? I know this sounds horrific, IT IS!! My mother suffers from all of these diseases and has tried EVERYTHING and... could we know if this is the right treatment (aside from lots of prayer!) I certainly don't expect...crap

Is there anything I can do to help my mom ease her pain from RSD/CRPS? Maybe alternative treatments?
 pain was much worse though.. I was wondering if there are any alternative treatments that work. Things I can do...crap

RSD IS THE TITLE
is there a RSD Forum out there? somewhere? SUE CARLINcrap