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Very informative webinar on Atypical Hemolytic Uremic Syndrome with Dr. Tim Goodship by Kamal S. Patient ExpertHealth Maven Many nephrologists in India very rarely come across a patient with Atypical HUS . For many patients,  diagnosis with this disease becomes an endless journey of uncertainties. So little information is available on this d
Why me? An answer at last! by Kamal S. Patient ExpertHealth Maven I recently stumbled upon a site for atypical Hemolytic Uremic Syndrome (aHUS), the disease that I have. It is such a rare disease - there are only about 300 people who have this disease in the US. A very small part...
Hopefully, some day... by Kamal S. Patient ExpertHealth Maven A video of a young little boy diagnosed with Atypical Hemolytic Uremic Syndrome, the disease that I have, being given the wonder drug, Eculizumab
Tomorrow is Rare Disease Day by Kamal S. Patient ExpertHealth Maven I have a disease called Atypical Hemolytic Uremic Syndrome (aHUS). This disease is classified as an Ultra Rare Disease - less than one in a million adults are estimated to be affected. The problem...
Plasmapheresis versus Eculizumab versus Status Quo by Kamal S. Patient ExpertHealth Maven So, I have this rare disease called Atypical Hemolytic Uremic Syndrome (aHUS). There are probably.... This genetic defect makes me vulnerable to Hemolytic Uremic Syndrome (HUS). The vaccinations that I took...
FDA approves Soliris (Eculizumab) for atypical HUS by Kamal S. Patient ExpertHealth Maven In a significant development the FDA in the USA approved Soliris ( Eculizumab ) for use in atypical Hemolytic Uremic Syndrome . To those saying, "Huh?": Read on! Atypical Hemolytic Uremic Syndrome...
Today is Rare Disease Day by Kamal S. Patient ExpertHealth Maven I have atypical Hemolytic Uremic Syndrome (aHUS). In the US, there are only about 300 people who have this disease. Most of them are children. Adult aHUS is even more rare. I am not aware of any statistics...
The little boy with atypical HUS by Kamal S. Patient ExpertHealth Maven went through me. HUS. Hemolytic Uremic Syndrome. Where the body's defense mechanism against foreign...
Soliris - do we really need to wait? by Kamal S. Patient ExpertHealth Maven My primary kidney disease is atypical Hemolytic Uremic Syndrome (aHUS). This is a very rare disease in adults. It is more common in children. The problem with rare diseases is that they do not...
Atypical HUS Patient conference at Newcastle by Kamal S. Patient ExpertHealth Maven The Center for Life at Newcastle upon Tyne, UK, is organizing a conference for patients and their family on atypical Hemolytic Uremic Syndrome on Saturday, June 11th. This is a great initiative by Dr...

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Diagnosis ... weeks later to confirm the diagnosis. If the tests show the presence of antiphospholipid antibodies, you will ... » Read on