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Molly Portland, Oregon
In early 2005, I was 28 years old and just beginning to break into a career as an opera singer.... More
thematrix777 North Las Vegas, Nevada
I am disabled with RSD (Reflex Sympathetic Dystrophy) for several years now. It is a relatively... More
Lisa Harvey Vittek Rocklin, California
My personal blog, http://www.cureforkayla.com, is dedicated to my daughter Kayla Vittek who was... More
Dr. Ahmad Javaid bangalore, IN
Dr.Ahmad Javaid. Physical therapy, certificate in spinal mobilizations and... More
Pernille U. California
I am a 35 year old woman living in Florida. A few years ago I was diagnosed with Limb Girdle... More
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tests for dystrophy Blogs and DiscussionsArticles

 
Duchenne Muscular Dystrophy and Heart Disease by Dr. Charlotte Thompson Medical Doctor "Redefining Disease, Genes and All." The article begins by stating that "Duchenne muscular dystrophy may not... involved in both conditions. Having cared for many, many patients with Duchenne muscular dystrophy...
The Early Diagnosis of Duchenne Muscular Dystrophy by Dr. Charlotte Thompson Medical Doctor  when a boy has Duchenne Muscular Dystrophy. This was highlighted in  a recent Journal of Pediatrics article. Having cared for boys with Duchenne dystrophy in six neuromuscular programs since 1957 when I directed  the...
RSD: A Teenager's View Living with Reflex Sympathetic Dystrophy by thematrix777 Patient ExpertHealth Maven , awful physical consequencesc of Reflex Sympathetic Dystrophy.He writes a lot of poetry and I posted... for solutions. I am a teenager suffering with Reflex Sympathetic Dystrophy or as I call it, RSD. You may know...
Muscular Dystrophy site by Rudy S. Patient Expert This is a great blog all about muscular dystrophy Link: Muscular Dystrophy. http://mdystrophy.wordpress.com/
Josh Winheld on Duchenne Muscular Dystrophy by David Patient Expert Josh Winheld has been sharing his thoughts about living with Duchenne Muscular Dystrophy... memoir, Worth the Ride: My Journey with Duchenne Muscular Dystrophy. ...
Woman with muscular dystrophy has to crawl off plane by Rudy S. Patient Expert There is an interesting discussion going on about this situation Link: F.R.I.D.A. . Woman with muscular dystrophy has to crawl off plane
A Close Up Look at Reflex Sympathetic Dystrophy by thematrix777 Patient ExpertHealth Maven This is one option available for RSD. It is not a cure, only a temporary lowering of the pain so the patient may be able to cope better. Please take a few minutes of your time to watch the video and see what over a million pe
2007 DFW Muscular Dystrophy Telethon by Marci Patient Expert ! Now after volunteering at the DFW Jerry Lewis Muscular Dystrophy Association Telethon at Lone Star Park at Grand Prairie... if it wasn't for the Muscular Dystrophy Association, who in turn provides so many services to these people...
Support, Information for those with Reflex Sympathetic Dystrophy by Laura Y. Patient Expert This crossed my desk recently due to my old chronic pain management roots: MDJunction has a nice support group/discussion forum for those with RSD (also known as Complex Regional Pain Syndrome or CRPS).  Candid discussions
Viagra For Muscular Dystrophy by Ed H. Doctor of Pharmacy beneficial treatment for muscular dystrophy when 5 years ago I gave some Viagra to a 57-year old patient of mine with limb girdle muscular dystrophy for the usual purpose. In June, 2005 he returned...

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Eastern Healing - Emotional Freedom...
A proven method known as Emotional Freedom Technique...
 
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Living with RSDS
Living with Regional Sympathetic Dystrophy Syndrome Karen Balzer      There is little question that I have regional sympathetic dystrophy syndrome (RSDS). Actually, it is more than "regional"; the condition affects my entire body, including my internal organs and my head.    Since 1991 I have suffered...crap

THINNING OF THE LEGS AND BUTTOCKS
Lypoatrophy/dystrophy seems to be related to AIDS/HIV from most readings and research I have done. I am no doctor but my friend at work has this (or has been diagnosed as this) and asked me to ask about it. She is 17 years old and has thinning on one side of her body (leg and buttock), her doctor said wait and see...crap

RSD IS THE TITLE
is there a RSD Forum out there? somewhere? SUE CARLINcrap

Which doctor knows best?
 just did an ultrasound test and said I  don't have any venous insufficiency and don't need compression hose. Any advice...crap

I have had rsd for 4 years and tried several treatments.Can you suggest anything else for me to try
for nerve pain and depression. I also suffer from abdominal pain which has baffled doctors as numerous tests...crap

Pain Attacks with RSD (Falling asleep or Zoning Out to Deal with the Pain)
Do other RSD sufferers deal with Pain Blackouts or Going to Sleep during a Pain Attack?   I really don't know how to describe what my body is doing, however I can eliminate the meds since it happens at random times of the day and night. I have tested this by not taking my meds to rule out if my meds...crap

Lipodystrophy and Emery-Dreifuss muscular dystrophy
Dear Dr. Dieterich,I have Emery-Dreifuss muscular dystrophy and my condition is associated with a marked absence of subcutaneous body fat. However, I have not experienced any facial lipodystrophy...? Douglas T. Dieterich, M.D. Lipodystrophy and Emery-Dreifuss muscular dystrophy Good question...crap

I need advise very badly
I have a rare type of Muscular Dystrophy and am in constant pain. I have been taking pain meds for many years but besides my MD/pain, I am having problems with my hair falling out, nervous anxiety, depression really bad, after I eat I get this lump on my neck like a swollen gland and there is more but the real...crap

Can I take a Flu shot and or the Swine Flu shot?
I have Reflex Sympathetic Dystrophy in my left extremity and have acute Bronchitis with a mild form of C.O.P.D., my question is, can I take a Flu shot and or the Swine Flu shot? JoTramellcrap