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GFJungle South-Central, Michigan
Celiac RN and Mom of 2 celiac kids - on an expedition to navigate the way through a gluten filled... More
Teresa .. Newnan, Georgia
Thanks so very much for taking the time to stop by.  It's truly an honor to have you... More
Michelle Melbourne, AU
I have been living with dysautonomia for 3 years. Trying to manage my health, kids, husband and... More
I am a 21 year old college student in Alabama with Dysautonomia as a primary disease. That means... More

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Fast Facts About Familial Dysautonomia by Lisa E. L. Patient Expert will have Familial Dysautonomia. (See autosomal recessive inheritance ) Genetic testing, also called “carrier...: familial dysautonomia, ashkenazi jewish diseases, carrier testing, genetic testing, genes, inheritance...
Familial Dysautonomia, also call... by Lisa E. L. Patient Expert will have Familial Dysautonomia. (See autosomal recessive inheritance ) Genetic testing, also called “carrier...: familial dysautonomia, ashkenazi jewish diseases, carrier testing, genetic testing, genes, inheritance...
Dysautonomia by Rachel M. Patient Expert … While checking blood pressure, the Internist made me stand up quickly. Then, he diagnosed me with Dysautonomia... to the condition. It was grouped as hysteria or depression. People thought the cause of Dysautonomia was lack...
Help for Dysautonomia in Lyme Disease by Connie S. Patient Expert Lyme disease often causes dysautonomia, a disruption of autonomic nervous system function... out of whack. Manifestations of dysautonomia include conditions such as POTS (postural orthostatic tachycardia...
Tilt Table Test in Qld by Rachel M. Patient Expert to medication for her dysautonomia. I wouldn’t get into pros and cons of having the test done. I just wanted... In previous post, I mentioned that Tilt Table Test is not available in Qld, Australia. My kind...
Emotion Behind Tears by Rachel M. Patient Expert I don’t have Dysautonomia diagnosis. Please allow me to use the term here because I cannot think of any other way to describe it. ~ * ~ Why do I cry when Dysautonomia crash happens...
Preparing the Ground by T Patient ExpertHealth Maven I spoke with my doctor this morning. He was puzzled once again at my test results. He thought for sure the RNase L panel would confirm for him that I have an active viral infection. He said "the test...
My Proud Team by Rachel M. Patient Expert him to think I am challenging him. He knows about dysautonomia and he tried testing it several times. So far... Table Test (TTT) at the next appointment. It was getting late and he had a long busy day, so I felt...
Almost every ethnic or demograph... by Lisa E. L. Patient Expert Canavan Disease Familial Dysautonomia Fanconia Anemia Gaucher Disease Mucolipidosis IV Niemann...
Living The Surreal Life by T Patient ExpertHealth Maven because it might really happen now that I know I have dysautonomia (if I end up fainting during the test). Luckily... something up because it increase the dysautonomia symptoms. Today I'm digesting some upsetting things that occurred...

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frustration!
specialist. He told me he thought I had a form of dysautonomia called "P.O.T.S" which is often comorbid with migraines. He sent me to my Canadian neurologist, who referred me to another specialist to get the test done to DX. I was made to believe the test was june 12, so the neuro told me to get off topamax...crap

My teenagers
My daughter and I have Dysautonomia and are biplolar. In my opinion these play off one an other which makes it all worse. My older son is doing fine in college with his fish oil. That is all I require also. My daughter is a challenge and I wish I had some answers for her. Her room is a mess. She is so up and down...crap

MVP, pvc, svt?
How to cope with pvc, svt, dysautonomia at 39 yrs old - I want my life back. I was diagnosed with mvp 10 yrs ago and done well with no meds until 10 months ago started having pvc, svt, and great anxiety. Now I am on metoprolol 3x day and xanax up to 3x day. I want my life back. Having pvcs daily...crap

Question about a safe dosage of NSAIDS
HI~I have lupus along with vasculitis and dysautonomia[msa]. I am on oxycontin for severe pain associated with the lupus and was wondering if it is safe to continue to take a doasage of Ibuprophen at 800mg 2x a day or if I can go higher? I should also mention that I am on a maintenance dose of 5...crap

How do you deal with basal migraines?
. first thought I might have dysautonomia, but the tests were negative.  How do they test for basal...crap

Heart surgery effect on Dsyautonomia condition?
, a connective tissue disorder- until that time, I had no idea I had any form of dysautonomia. (or tethered cord... for my POTS - which is the form of Dysautonomia I have been dx. with - although I'm not sure if that...crap

Seriously in need of Help;
Dysfunction or Dysautonomia, Postural Orthostatic Tachycardia Syndrome or POTS, and Nerurocardiogenic Syncope...crap

Medication changes complicating seizure disorder- how long until things settle down?
? My seizures may actually be a part of a Dysautonomia condition- do you know anything about seizures or fits...crap

Put heart disease to rest and get some sleep!
studies we know very little about the subject. Indeed, even the newest and most expensive of our tests... surgery; psychiatric-depression; neurologic-dysautonomia, concussion, grieving, etc). Use of alcohol...crap

Panic Attacks and Mitral Valve Prolapse: A Mimicker's Deception?
also have something known as dysautonomia, an imbalance of the autonomic nervous system (ANS), which would indicate... if you don’t have a family history, get tested anyway. A diagnosis of mitral valve prolapse or MVPS...crap