Muscular Dystrophy siteby
Rudy S.
This is a great blog all about muscular dystrophy Link: Muscular Dystrophy. http://mdystrophy.wordpress.com/
Josh Winheld on Duchenne Muscular Dystrophyby
David
Josh Winheld has been sharing his thoughts about living with Duchenne Muscular Dystrophy... memoir, Worth the Ride: My Journey with Duchenne Muscular Dystrophy.
...
The Early Diagnosis of Duchenne Muscular Dystrophyby
Dr. Charlotte Thompson
when a boy has Duchenne Muscular Dystrophy. This was highlighted in a recent Journal of Pediatrics article. Having cared for boys with Duchenne dystrophy in six neuromuscular programs since 1957 when I directed the...
Duchenne Muscular Dystrophy and Heart Diseaseby
Dr. Charlotte Thompson
"Redefining Disease, Genes and All." The article begins by stating that "Duchenne muscular dystrophy may not... involved in both conditions.
Having cared for many, many patients with Duchenne muscular dystrophy...
A Close Up Look at Reflex Sympathetic Dystrophyby
thematrix777
This is one option available for RSD. It is not a cure, only a temporary lowering of the pain so the patient may be able to cope better.
Please take a few minutes of your time to watch the video and see what over a million pe
2007 DFW Muscular Dystrophy Telethonby
Marci
!
Now after volunteering at the DFW Jerry Lewis Muscular Dystrophy Association Telethon at Lone Star Park at Grand Prairie... if it wasn't for the Muscular Dystrophy Association, who in turn provides so many services to these people...
Support, Information for those with Reflex Sympathetic Dystrophyby
Laura Y.
This crossed my desk recently due to my old chronic pain management roots:
MDJunction has a nice support group/discussion forum for those with RSD (also known as Complex Regional Pain Syndrome or CRPS). Candid discussions
THINNING OF THE LEGS AND BUTTOCKS
Lypoatrophy/dystrophy seems to be related to AIDS/HIV from most readings and research I have done. I am no doctor but my friend at work has this (or has been diagnosed as this) and asked me to ask about it... AND BUTTOCKS This forum is for use by HIV+ patients or doctors with questions related to symptoms of known HIV...crap
Lipodystrophy and Emery-Dreifuss muscular dystrophy
Dear Dr. Dieterich,I have Emery-Dreifuss muscular dystrophy and my condition is associated... to alleviate the lipodystrophy symptoms in patients with nuclear lamin mutations, as well as patients on HAART? Douglas T. Dieterich, M.D. Lipodystrophy and Emery-Dreifuss muscular dystrophy Good question...crap
Body Distortion -- Lipodystrophy
Lipodystrophy (lipid = fat; dystrophy = disorder)
Lipodystrophy syndrome is the term used to describe a range of symptoms that include changes in body shape and metabolic changes (for the latter, see... anyone experiencing any of the symptoms that can indicate lactic acidosis to see their doctor immediately. Increased...crap
Living with RSDS
Living with Regional Sympathetic Dystrophy Syndrome
Karen Balzer
There is little question that I have regional sympathetic dystrophy syndrome (RSDS). Actually, it is more than "regional"; the condition affects my entire body, including my internal organs and my head.
Since 1991 I have suffered...crap
RSD again?
disease which is a fatal degenerative brain disease that causes many strange neurological symptoms...crap
Fatigue, joint pain ? could it be RSD or Fentanyl side effects or withdrawal?
I have had RSD for over 10 years. Around the time that I developed RSD, I started having symptoms.... I use to change them every 72 hours. I don't have as many episodes of these symptoms now but I still have them. I was not on any of the other meds I am taking when I first had these symptoms except for possibly Fentanyl...crap