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I began my blog as a way to give of myself and share what I am learning in my healing journey.... More
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DSM V and Rett Syndrome by Kev Leitch Healthy Living ProfessionalHealth Maven also encompass Rett Syndrome, proposing dropping it entirely. Rett was originally included in the DSM.... RSRT scientific advisory board member and Rett Syndrome researcher Huda Zoghbi , M.D. discussed...
Curing Rett Syndrome: How do we get there? by rettmom Patient Expert I want to encourage everyone whose lives are touched by a young lady with Rett Syndrome to watch this presentation given by Monica Coenraads. It gives a wonderful overview of what Rett Syndrome is as well...
October is International Rett Syndrome Awareness Month by Dr. Deb Patient Expert Rett Syndrome (RTT) is a developmental disorder that affects 1 out of 10,000 children... chromosome. First described in 1966 by Austrian physician, Andreas Rett, RTT is a challenging syndrome...
Rett Syndrome Awareness Month by rettmom Patient Expert These home movies were taken before Rett Syndrome began to take away Brooklyn's ability.... During October, since it is Rett Syndrome Awareness month, I of course try my best to spread the word about Rett...
Hey all you Rett Syndrome fa ... by rettmom Patient Expert Hey all you Rett Syndrome families out there.....we ALL know that Rett Syndrome Awareness month is just around the corner! One of the best ways that I educate people about Rett is through the PURPLE CARD! This card...
Girl Power 2 Cure - Let's Cure Rett Syndrome Together by rettmom Patient Expert I am SO excited to share the Rett Syndrome PSA that Girl Power 2 Cure created!! Please share this with others - help us educate the world about Rett!
Atypical Rett Syndrome… Wait I thought only girls get that… Apparently not! by Strapples Patient Expert the finalization of my diagnosis of Atypical Rett Syndrome. Some of you may know that Rett Syndrome is a X linked... around. Classic Rett Syndrome and Atypical Rett Syndrome are somewhat similar however Atypical Rett allows...
Rett Syndrome on THE VIEW!!! by rettmom Patient Expert about Rett Syndrome today! She shared THIS BLOG POST yesterday and I want to share it with you. I am so PUMPED.....National television exposure for Rett Syndrome! WOOOHOOOOO!!!
Memoirs of a geisha… I mean stove… sorry. Memoirs of a stove. and Rett Syndrome, it’s FINAL!!! and a B-Day Car by Strapples Patient Expert diagnosis of Atypical Rett Syndrome, we are so happy to have this, it finally gives us a security in knowing what I have and me no longer being one giant unknown. I was officially diagnosed with Rett Syndrome Yesterday at 2:40 PM CDT...
Garden of Hope for Rett Syndrome by rettmom Patient Expert Garden of Hope for Rett Syndrome from Girl Power 2 Cure on Vimeo . Hey Blog readers.....have you been wondering how YOU might be able to get involved with raising some money for Rett Syndrome research

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