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xtopher1974 Brooklyn, New York
Hi! I'm a late deafened adult with NF2. I'm also HIV+. All total, I'm doing pretty well. Just like... More

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NF2 on House by Olivia Hernandez Patient Expert in his head. After a bit of investigating he is diagnosed with "NF2 cancer" and told treatment.... How can they disregard the potential ignorance they are spreading about NF2 though? I do not have cancer...
The NF2 Crew by Olivia Hernandez Patient Expert your best friend in person! … you know more about NF2 then your neurologist! The NF2 Crew is an online support...) who realized they were all late-deafened by NF2. They joined together with the intent of supporting...
Merlin(T ... by Medical Quack Patient ExpertHealth Maven   Merlin(TM).net Patient Care Network is First Cardiac Rhythm ST. PAUL, Minn.--(BUSINESS WIRE)--April 18, 2007--St. Jude Medical, Inc. (NYSE:STJ) today announced U.S. Food and Drug Administration (FDA) approval of the Me
Merlin #2 You Son of a… by patientanonymous Patient ExpertHealth Maven I couldn’t believe what happened yesterday.  I still can’t! For the second time in three years, Merlin #2 and I had a fight about him prescribing me my meds! What the…? Holy…  Forget burning me in effigy.   Just toss me
Merlin #1 And Two REALLY Hot Women by patientanonymous Patient ExpertHealth Maven I went to see Merlin #1 today. I wanted to hug him. Is it permissible to hug your psychiatrist? Recall that my GP gently placed her hand on my back when I saw her and I looked like I was on death’s door when she guided me
Arsey Neuro is Fucking Fired!!! by patientanonymous Patient ExpertHealth Maven This is how the conversation began with Merlin #2 this morning. Merlin #2, shaking hands in air with frustration, facial expression to match: “JUST WHAT KIND OF NEUROLOGIST DO YOU HAVE???” PA, with Aspie face and rather
Merlin #2 and Stoopid Guvmunt But…(!) by patientanonymous Patient ExpertHealth Maven I saw Merlin #2 today, and the first thing he said to me was, “How much weight have you lost?!” *laughing* I responded in my typical fashion, not knowing what the fuck I look like, with a blank stare.  This was of course af
RHIOs: Onward Ho! by Christina Thielst Patient ExpertHealth Maven One of my RHIO friends Bruce Merlin Fried has a wonderful commentary in iHealthBeat.  He asks which way we should go and I say "onward ho"!  We need to continue to collaborate in our local, state and national communities an
St. Jude Medical Announces FDA Approval of New Features with Merlin for Implantable Cardiac Devices by Medical Quack Patient ExpertHealth Maven The implantable medical devices are getting smarter and the FDA has approved the new functionality.  In recent posts I have mentioned the work being done with Microsoft HealthVault with several devices including implants fro
A Most Appropriate MP3? by patientanonymous Patient ExpertHealth Maven In light of my appt. with Merlin #2 this afternoon, I really can not think of a better song to stream for MP3 of the Moment. “She’s Lost Control” by Joy Division

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