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I am a late-deafened vegetarian wife and Mommy of 2 running to raise funds for the Chidlren's... More

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Hi ESHAxo, Several years ago, research teams at the National Institutes of Health (NIH) National Institute of Neurological Disorders and Stroke (NINDS) located the exact position of the NF1 gene on chromosome 17. The produc
Hi ESHAxo,   Neurofibromatosis is a genetically-inherited disease in which nerve tissue grows.... Neurofibromatosis affects males and females equally and is dominant (only one copy of the affected gene is needed...
Fellow Fighter Destiny-Neurofibromatosis by megse5 Patient Expert “My daughter Destiny is 9 and she has Neurofibromatosis (Nf). All I do is tell her story... to everyone. She may have Neurofibromatosis but that doesn't stop her from striving to be that best that she can be everyday and touching...
5 weeks to 26.2! by Olivia Hernandez Patient Expert As most of you know I was born with Neurofibromatosis type 2, a genetic disorder that causes... treatments and a cure for neurofibromatosis.This year I am serving as Team Captain at the Long Beach Marathon...
Propolis Bio30 by Olivia Hernandez Patient Expert At some point in the future I have no doubt scientists will cure NF2. Cure would literally mean a person no longer has NF2 after the treatment. As of now that is not possible. NF2 is a chromosomal disorder, meaning it is pro
My hero... by Olivia Hernandez Patient Expert Eight years ago my rambunctious 2 year old was diagnosed with Neurofibromatosis Type 2. I wish it had been the first time we learned of it, but JT is actually the 5th person in our family...
NF2 on House by Olivia Hernandez Patient Expert When I sit down on Monday nights to watch House I expect to be mildly insulted and wickedly entertained. Unfortunately last night I was just shocked by the amount of ignorance spread by the writer's of the show. The episode
The NF2 Crew by Olivia Hernandez Patient Expert You know you’re a Crewbie when… … you wake up to 300 emails every morning! … you’ve never met your best friend in person! … you know more about NF2 then your neurologist! The NF2 Crew is an online support group for
Who We Are by Olivia Hernandez Patient Expert Is it wrong to visit your own blog? Today I sat and skimmed through some of my past posts and noticed that most are about NF2, my Mom, and fundraising. If my blog is a written series of my life, I don't want to be one of
Answer to Quiz Question by Dr. Brian M. Medical DoctorHealth Maven Joseph Merrick was originally thought to be suffering from neurofibromatosis type I, a genetic... earlier). Unlike neurofibromatosis, Proteus syndrome (named for the shape-shifting god Proteus) affects...

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Introduction Neurofibromatosis is a genetic disorder that mainly affects the ... » Read on
Causes Neurofibromatosis is caused by a faulty gene. ... » Read on