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Members related to neurofibromatosis type 1
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“My daughter Destiny is 9 and she has Neurofibromatosis (Nf). All I do is tell her story... to everyone. She may have Neurofibromatosis but that doesn't stop her from striving to be that best that she can be everyday and touching...
As most of you know I was born with Neurofibromatosis type 2, a genetic disorder that causes... treatments and a cure for neurofibromatosis.This year I am serving as Team Captain at the Long Beach Marathon...
At some point in the future I have no doubt scientists will cure NF2. Cure would literally mean a person no longer has NF2 after the treatment. As of now that is not possible. NF2 is a chromosomal disorder, meaning it is pro
Eight years ago my rambunctious 2 year old was diagnosed with Neurofibromatosis Type 2. I wish it had been the first time we learned of it, but JT is actually the 5th person in our family...
When I sit down on Monday nights to watch House I expect to be mildly insulted and wickedly entertained. Unfortunately last night I was just shocked by the amount of ignorance spread by the writer's of the show. The episode
You know you’re a Crewbie when…
… you wake up to 300 emails every morning!
… you’ve never met your best friend in person!
… you know more about NF2 then your neurologist!
The NF2 Crew is an online support group for
Is it wrong to visit your own blog? Today I sat and skimmed through some of my past posts and noticed that most are about NF2, my Mom, and fundraising. If my blog is a written series of my life, I don't want to be one of 
Joseph Merrick was originally thought to be suffering from neurofibromatosis type I, a genetic... earlier). Unlike neurofibromatosis, Proteus syndrome (named for the shape-shifting god Proteus) affects... 
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Neurofibromatosis is a genetic disorder that mainly affects the ... » Read on
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