Corticosteroids (Prednisone)by
Lauren B.
Corticosteroids are often prescribed to cystic fibrosis patients as a way to decrease inflammation in the body. When given in an initially large (sometimes called a “burst”) then tapering dose, corticosteroids such as pred
Understanding Bowel Movementsby
Lauren B.
Much to the chagrin and embarrassment of CF patients everywhere, bowel movements are an important part of our lives. In many ways our bowel movements serve as a benchmark that lets us know how things are going, so to spe
Types of Airway Clearance Devicesby
Lauren B.
Cystic fibrosis patients have abnormally thick, stick mucus that is difficult to remove from their airways. In order to prevent infection a combination of medications and airway clearance techniques are used. In the past, th
Topic of the Month: CF Mythsby
Lauren B.
This month I will be focusing on dispelling some of the most common myths surrounding cystic fibrosis. As always, I welcome your comments and questions on the subject.
GearUp4CF.orgby
Nathan L.
Our CF/TX friend, Eva (65redroses.livejournal.com) is helping her dad raise money for CF in a really cool way.
Bill Markvoort is joining GearUp4CF to raise money for the Canadian Cystic Fibrosis Foundation by riding ac
Understanding Cystic Fibrosis Associated Arthritisby
Lauren B.
As cystic fibrosis patients are surviving longer into their adult years and “middle age,” some may find themselves experiencing episodes of arthritis. Although cystic fibrosis associated arthritis has been observed to af
How I Let my Employer Know I Have CFby
Lauren B.
I was very discrete and private about CF for a long time. I didn't start blogging until 2 years ago which was after I had already gotten a job. You'll notice that my last name does not appear on my blog, nor does my location
Parents: Communicating the Reality of CF to your Childby
Lauren B.
My parents filled me in on the details about CF gradually, rather than dropping a big "by the way, it's terminal" bomb on my head. Here are some thoughts I can share that may ease the burden of telling your child about the h
Review: Domata Living GF/CF Flourby
Rachel R.
The nice folks at Domata Living GF/CF Flour sent me a 5 lb bag of their all purpose flour to try and review.
I do my best to give fair reviews, and want to disclose that these folks have purchased a text ad on my recipe
Why be aware of cystic fibrosis?...by
Lisa E. L.
Why be aware of cystic fibrosis? As many as 1 in 25 people in the US is a CF carrier. And that’s a pretty high carrier rate for a condition that most people don’t know about.
Cystic fibrosis, or CF, is an inherited disease