Why me? An answer at last!by
Kamal S.
I recently stumbled upon a site for atypical HemolyticUremicSyndrome (aHUS), the disease that I have. It is such a rare disease - there are only about 300 people who have this disease in the US...
Hopefully, some day...by
Kamal S.
A video of a young little boy diagnosed with Atypical HemolyticUremicSyndrome, the disease that I have, being given the wonder drug, Eculizumab
Atypical HUS Patient conference at Newcastleby
Kamal S.
The Center for Life at Newcastle upon Tyne, UK, is organizing a conference for patients and their family on atypical HemolyticUremicSyndrome on Saturday, June 11th. This is a great initiative by Dr...
Plasmapheresis versus Eculizumab versus Status Quoby
Kamal S.
So, I have this rare disease called Atypical HemolyticUremicSyndrome (aHUS). There are probably.... This genetic defect makes me vulnerable to HemolyticUremicSyndrome (HUS). The vaccinations that I took...
Informative brochure released by the aHUS Foundationby
Kamal S.
The atypical HUS Foundation has just released a very informative brochure about the disease. The brochure can be downloaded from here .
The brochure explains the disease in simple terms and also talks about the types and t
Update on the little boy with aHUSby
Kamal S.
I had written a few days back about Sai Karthik, the 3 year old boy with atypical HUS, the disease that I have. Karthik's parents took him to CMC, Vellore, one of the best hospitals in the country where he was put on plasmap
FDA approves Soliris (Eculizumab) for atypical HUSby
Kamal S.
In a significant development the FDA in the USA approved Soliris ( Eculizumab ) for use in atypical HemolyticUremicSyndrome .
To those saying, "Huh?": Read on!
Atypical HemolyticUremicSyndrome...
Soliris - do we really need to wait?by
Kamal S.
My primary kidney disease is atypical HemolyticUremicSyndrome (aHUS). This is a very rare disease in adults. It is more common in children. The problem with rare diseases is that they do not...
the future
Me and my hus band are posiive and I would like to have a baby my husband is taking efavirenz and crap
in coma for 10 days
My hus has been in coma for 10 days after a sroke he is positive.This is the second sroke, he is ocrap
Hepatic failure
Maria is a 20 years old HIV infected. She is transfused for thalassemia major. At present she has crap
Hep C from haemodialysis?
Hi there, At the beginning of the year I contracted Haemolytic UremicSyndrome and required two weeks of haemodialysis, nine blood transfusions and plasma exchange. I did get tested for HIV and Hep C about five months after the fact, which was negative for both. But I am still concerned because I am pregnant...crap
VALTREX AND HIV
recipients) developed a condition called Thrombotic Thrombocytopenic Purpura/HemolyticUremicSyndrome...crap
HIV and the Kidneys
in the kidney, affecting the function)
Thrombotic thrombocytopenic purpura/Hemolyticuremicsyndrome (a... syndrome (a problem with kidney function that may be caused by changes in the functioning of the kidney...crap
Renal Complications of HIV/AIDS
thrombocytopenic purpura/hemolyticuremicsyndrome
Diseases in which the interior of the blood vessels is severely damaged. These syndromes can result in not only kidney failure, but also central nervous system changes... failure
None
Tenofovir (Viread)
Acute kidney failure; Fanconi's syndrome
Adjust dose according...crap
Parvo 19 virus
). This is a common childhood viral syndrome, which includes an evanescent rash often referred to as "slapped" cheek...-related problems like hereditary spherocytosis or hemolytic anemia.4. Hydrops Fetalis and Congenital Infection...crap