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Members related to central neurofibromatosis
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“My daughter Destiny is 9 and she has Neurofibromatosis (Nf). All I do is tell her story.... She may have Neurofibromatosis but that doesn't stop her from striving to be that best that she can be everyday and touching...
As most of you know I was born with Neurofibromatosis type 2, a genetic disorder that causes... treatments and a cure for neurofibromatosis.This year I am serving as Team Captain at the Long Beach Marathon...
At some point in the future I have no doubt scientists will cure NF2. Cure would literally mean a person no longer has NF2 after the treatment. As of now that is not possible. NF2 is a chromosomal disorder, meaning it is pro
Is it wrong to visit your own blog? Today I sat and skimmed through some of my past posts and noticed that most are about NF2, my Mom, and fundraising. If my blog is a written series of my life, I don't want to be one of
You know you’re a Crewbie when…
… you wake up to 300 emails every morning!
… you’ve never met your best friend in person!
… you know more about NF2 then your neurologist!
The NF2 Crew is an online support group for
When I sit down on Monday nights to watch House I expect to be mildly insulted and wickedly entertained. Unfortunately last night I was just shocked by the amount of ignorance spread by the writer's of the show. The episode 
Joseph Merrick was originally thought to be suffering from neurofibromatosis type I, a genetic... earlier). Unlike neurofibromatosis, Proteus syndrome (named for the shape-shifting god Proteus) affects... 
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