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Wheelchair Kamikaze New York, New York
Hi, my name is Marc, but in some circles I'm better known as the "Wheelchair Kamikaze".... More
alan karachi, PK
ladidiaz asbury park, New Jersey
. Berkeley, California
Flower California
Just finding out about PBC and trying to deal with it.   Tired a lot.  I also had Lyme... More

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Bernie Mac by Rebecca .. Patient Expert was never a spokesman for sarcoidosis. Unlike Michael J. Fox with Parkinson’s disease or Lance Armstrong with cancer... folks was how this doctor seriously downplayed his underlying disease. She said something to the effect...
Justify Yourself by Rebecca .. Patient Expert ). I do not understand how the question of whether or not sarcoidosis is an auto-immune disease... to follow the recommendations of physicians who think of sarcoidosis as an auto-immune disease...
This Is All So Familiar by Rebecca .. Patient Expert . “You are fragile,” he said. “It doesn’t take much to set off your disease.” It’s really quite amazing... nothing to do but get through it, though. Well, that and get a shitload of IV prednisone, to try and knock the disease back into submission...
Update by Rebecca .. Patient Expert are from the disease attacking two cranial nerves—my old friend, the vestibulocochlear nerve that maintains balance... disease I’ve had for nearly nine years—and then gets disappointed. The guru did mention a new drug...
Miraculous by Rebecca .. Patient Expert in. The sarcoidosis guru put me in touch with a non-profit called NORD– National Organization for Rare Diseases... with rare diseases, including sarcoidosis, NORD offers patient assistance programs. One such program helps...
Exactly When Did I Sign Up for the Ultra-Marathon? by Rebecca .. Patient Expert over eight years ago. I’ve had brief interludes when the disease loosens its grip on me, but I’ve... of disease and loss. I find it ironic that nearly all of my present life goals require the endurance I’ve...
Incommunicado by Rebecca .. Patient Expert how weakened the two years of chemo and the many years of disease have left me. It took all of my focus...
Genre Busting by Rebecca .. Patient Expert of prednisone to treat the disease riled up my anxiety. I swirled and spun, feeling helpless, amid repetitive...
Music Soothes the Savage—But Possibly Not the Sarcoid or 7-Year Old Boy—Beasts by Rebecca .. Patient Expert the disease brought. I felt like I wasn’t participating in Andrew’s life. Before Andrew and chronic illness...
Chemo and Sarcoidosis Brain—Or Is It Brane? by Rebecca .. Patient Expert . How else can I present it? We deal with enough crappy side effects from my disease that manufacturing a crisis about how to spell...

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Causes ... medical conditions, such as cancer, or kidney disease can also increase your risk of developing kidney stones. ... » Read on
Introduction ... us in a pre-existing lung cavity that has been caused by a lung disease such as tuberculosis, abscess, or sarcoidosis. The spore ... » Read on