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atypical hemolytic uremic syndrome membersMembers related to atypical hemolytic uremic syndrome

 
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atypical hemolytic uremic syndrome Blogs and DiscussionsArticles

 
Why me? An answer at last! by Kamal S. Patient ExpertHealth Maven I recently stumbled upon a site for atypical Hemolytic Uremic Syndrome (aHUS), the disease that I have. It is such a rare disease - there are only about 300 people who have this disease in the US. A very small part...
FDA approves Soliris (Eculizumab) for atypical HUS by Kamal S. Patient ExpertHealth Maven In a significant development the FDA in the USA approved Soliris ( Eculizumab ) for use in atypical Hemolytic Uremic Syndrome . To those saying, "Huh?": Read on! Atypical Hemolytic Uremic Syndrome...
Atypical HUS Patient conference at Newcastle by Kamal S. Patient ExpertHealth Maven and their family on atypical Hemolytic Uremic Syndrome on Saturday, June 11th. This is a great initiative by Dr... in atypical HUS and it is great that he is organizing this conference. So little is known about this disease...
The little boy with atypical HUS by Kamal S. Patient ExpertHealth Maven went through me. HUS. Hemolytic Uremic Syndrome. Where the body's defense mechanism against foreign.... No other symptoms." "Oh no", I thought to myself. This was the atypical form. The exact same thing...
Hopefully, some day... by Kamal S. Patient ExpertHealth Maven A video of a young little boy diagnosed with Atypical Hemolytic Uremic Syndrome, the disease that I have, being given the wonder drug, Eculizumab
Tomorrow is Rare Disease Day by Kamal S. Patient ExpertHealth Maven I have a disease called Atypical Hemolytic Uremic Syndrome (aHUS). This disease is classified as an Ultra Rare Disease - less than one in a million adults are estimated to be affected. The problem...
Plasmapheresis versus Eculizumab versus Status Quo by Kamal S. Patient ExpertHealth Maven So, I have this rare disease called Atypical Hemolytic Uremic Syndrome (aHUS). There are probably.... This genetic defect makes me vulnerable to Hemolytic Uremic Syndrome (HUS). The vaccinations that I took...
Today is Rare Disease Day by Kamal S. Patient ExpertHealth Maven I have atypical Hemolytic Uremic Syndrome (aHUS). In the US, there are only about 300 people... of a life without dialysis. Atypical HUS is what is officially called a 'rare disease'. Today, February...
Soliris - do we really need to wait? by Kamal S. Patient ExpertHealth Maven My primary kidney disease is atypical Hemolytic Uremic Syndrome (aHUS). This is a very rare disease in adults. It is more common in children. The problem with rare diseases is that they do not...
Informative brochure released by the aHUS Foundation by Kamal S. Patient ExpertHealth Maven The atypical HUS Foundation has just released a very informative brochure about the disease... Page 5 of the brochure!) It has been put together by the Foundation for Children with Atypical HUS...

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Symptoms ... y one in five women this involves the pregnant women having (H) hemolytic anemia (the blood cells begin to break down), (EL) ele ... » Read on
Treatment ... of antipsychotics that were developed during the 1950s, and atypical antipsychotics - a newer generation of antipsychotics t ... » Read on