I don't have ARPKD. I have ADPKD, the adult onset type. But here is a video to touch your heart about what some families who struggle with ARPKD are going through:
Need a tissue? Yeah. Me too.
Dealing with PKDby
There are 2 types of PKD: the common one is a kidneydisease and the other is a kinesigenic disorder. I have the disorder which is pretty rare to have and most people get it from their parents...