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Katie C. San Francisco, California
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Great news in the fight against Wegener’s. by Katie C. Patient Expert was found to be effective in a study across nine medical centers including 197 patients with Wegener’s granulomatosis... With Wegener’s one of my greatest fears has always been having to someday be put...
A Wegener’s cookbook. by Katie C. Patient Expert Not sure how to help your friends/family like me with Wegener’s Granulomatosis (WG) or a similar vasculitis? I found this today, although it’s been out for quite some time: From Kitchens Around the World...
Wegener’s + RA treated without Cytoxan. by Katie C. Patient Expert I found this case report — and was stoked — while seeking some information about Wegener’s diagnoses combined with other auto-immune issues (Crohn’s specifically):“ Limited Wegener’s granulomatosis...
Genetics Home Reference: granulomatosis with polyangiitis by nih.gov and airways) and the kidneys. This disorder is also commonly known as Wegener granulomatosis. A characteristic... Testing Registry: Wegener's granulomatosis Johns Hopkins Vasculitis Center: How is Wegener's...
1 out of 25,000. by Katie C. Patient Expert With an orphan disease like Wegener’s, no one (in my daily life outside of the hospital walls... yet, but I thought this was one of the most straightforward and articulate descriptions of Wegener’s I’ve yet to see...
That ticking isn't just for women anymore. by Katie C. Patient Expert When my doctor recently told me that the next drug in line for Wegener's disease would likely ruin my chances of ever having children, I have to say—I began thinking about my biological clock for the first...
Reason to celebrate? Obama & Paws by Katie C. Patient Expert Check out this piece about Dejane Kidder—a young girl in Santa Rosa whose adoptive mother died of Wegener’s just 3 years ago: Finding reason to celebrate When asked what she was thankful...
Whipple's Disease by Dr. Anshu Gupta Patient Expert Whipple's disease is a rare infectious disease that typically infects the bowel. It causes malabsorption primarily but may affect any part of the body including the heart, lungs, brain, joints, and eyes. It interferes wit
CNS Whipple disease by Dr. Brian M. Medical DoctorHealth Maven Somebody asked me the other day about CNS Whipple disease. I said that I thought it was an instestinal infection and didn't think it had a CNS manifestation. I thought wrong. Caused by Tropheryma whippelii, a gram positive i
CNS Whipple's disease factsheet by Dr. Brian M. Medical DoctorHealth Maven The topic of CNS Whipple’s disease came up in a recent email exchange, so I thought I’d share with you a fact sheet on the disease: DESCRIPTION: First described by George Whipple in 1907, Whi

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Causes ... otherapy, certain inflammatory disorders , such as Wegener's Granulomatosis (a very rare condition that causes blister-like l ... » Read on