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Debbie US
AZ Syringo (SM) & Chiari (CM) Support Group We offer care, friendship & support by... More

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Sean Astin's connection to Chiari and Syringomyelia by Zipperhead .. Patient Expert Please go to ASAP to listen to Sean Astin's PSA (Public Service Announcement) regarding Chiari Malformation and Syringomyelia. Astin is known for The Lord of the Rings trilogy, as well as movies
Good News Research by Caroline Patient Expert Chiari I malformation associated with syringomyelia: a retrospective study of 316... procedures of treatment for Chiari I malformation (CMI) associated with syringomyelia and evaluate...
To Blog or not to Blog..... by Caroline Patient Expert That has been the question on my mind for almost a year since I was diagnosed with syringomyelia and then later chiari 0, cranial settling, occult tethered cord and ?EDS. I've gone back and forth, should I or...
EEEEEEE!!!!!! by Puglet .. Patient Expert Gotta syrinx? Syringomyelia? Strangeness in the spinal column due to all the wacky goodness of Chiari 1 malformation? Or, as I like to put it, a " spinal bubble of doom " ? Rachel drew a picture...
Dear Boy Who Has Found All My Blogs by Puglet .. Patient Expert It would be helpful for you to google syringomyelia or syrinx or chiari 1 malformation instead of using my terminology of " spinal bubble of doom". While it amuses me to no end to call it the Spinal Bubble of Doom...
Sharing info, caregiver resources by Zipperhead .. Patient Expert From time to time I post resources on ASAP (American Syringomyelia Alliance Project... the research for a cure for Chiari and Syringomyelia. We can however still make a difference. One method...
Babette blanket FINISHED! by Zipperhead .. Patient Expert Day will be my CafePress Chiari/Syringomyelia store's 3rd anniversary. It's hard to believe it's... at the American Syringomyelia Alliance Project , also known as ASAP, a 501(c)(3). I have a design...
Is your brain too big or is your head too small? by Caroline Patient Expert of symptoms. As well 57% of this sub-group also had syringomyelia illustrating the disruption in CSF flow... cm without any weight given to clinical symptoms or presence of syringomyelia is in my opinion, nonsensical...
What is she talking about? by Caroline Patient Expert that forms in the center of the spinal cord. If you have a syrinx then you have syringomyelia. Syringomyelia... of syringomyelia is pain in the neck, shoulders and back, numbness and weakness in the arms and legs, and inability...
Dr. Oro's Chiari Times Blog by Geoff Medical DoctorHealth Maven , presented three cases with CM-I/syringomyelia and syncope. A 52 y/o woman without warning would blackout... with CM-I. The following year, Alarcon et al. reported a 66 y/o woman with CM-I and syringomyelia had headache, syncope...

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