Today is Rare Disease Dayby
I have atypical Hemolytic Uremic Syndrome (aHUS). In the US, there are only about 300 people who have this disease. Most of them are children. Adult aHUS is even more rare. I am not aware of any statistics...
Tomorrow is Rare Disease Dayby
I have a disease called Atypical Hemolytic Uremic Syndrome (aHUS). This disease is classified as an Ultra Rare Disease - less than one in a million adults are estimated to be affected. The problem...
I don't know of any documented evidence or articles off hand, but I do have personal experience with this. Food allergies can definitly cause acid reflux. I thought we were avoiding all of my daughter's allergens and she was
Newborn Screening for Cystic Fibrosis Offers Hopeby
on anything that explains it. Then you find it.
Cystic fibrosis is the most common genetic disease... it. You are frustrated that the doctors never even thought of testing your child for this monster disease, and you wonder...