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WelcometoIllinois Patient Expert

Welcome to Illinois is a blog about Down syndrome (or Down's syndrome if you're British like me). I am a husband, a father, and a writer and I live in West London. In March 2008 my wife and I found out that our second son, G, who was born in September 2008, has Downâ??s syndrome. Our first... Full Bio
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Entries from March 2009 Spread the word All clear Happy World Down Syndrome Day... by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome I’m not going to say much about this as it’s not a word that’s actually used much over in the UK, and I do think some people have a tendency to get carried away about i ... Read on »
Spread the word by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome I’m not going to say much about this as it’s not a word that’s actually used much over in the UK, and I do think some people have a tendency to get carried away about i ... Read on »
All clear by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome The good news is that G’s six-month heart scan shows that everything is fine and he doesn’t even need to go for any more check-ups. We were pretty confident he was okay ... Read on »
Happy World Down Syndrome Day by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome As previously mentioned today is World Down Syndrome Day, marking 50 years since the publication of Professor Jerome Lejeune’s discovery that an extra copy of chromosome ... Read on »
“Everybody’s got a bit of disability” by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome I was completely wound up by the title of this post by Patricia Bauer (”Eliminating Down syndrome population: A good thing?”) and some of the apparently patronizing comm ... Read on »
Good arrows! by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome I’ve been really busy at work and at home which is why I haven’t posted much here and is also why I only just noticed that this blog has been awarded the Premios Dardos ... Read on »
What is Down’s syndrome? by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome This is great. Wise words from Annabelle: “What is Down syndrome”? You may ask. Well I will tell you. You see, if you have Down syndrome, you have one extra chromos ... Read on »
The legacy of Dr George Tiller by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome I have pondered whether or not to make reference to the murder of Dr George Tiller, also known – to some – as Tiller the Killer, thanks to his willingness to perform lat ... Read on »
Research points to potential in utero treatment for Down’s syndrome by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Researchers from Tufts Medical Center and Tufts University have published a paper that suggests it may be possible to develop prenatal therapies for Down’s syndrome. ... Read on »
The practical and ethical implications of non-invasive diagnostic testing by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome The Journal of the American Medical Association has published a commentary written by two doctors from the University of Connecticut Health Center, Farmington, on the pr ... Read on »
The education dilemma by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome The Guardian has published another interesting article about Down’s syndrome, this time about the question of inclusion within mainstream schools. According to the ar ... Read on »
Down’s syndrome and cancer by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome I meant to write about this the other day but I didn’t have time. Now it has been reported everywhere it is easier just to link to the reports: Nature has published a re ... Read on »
NHS screening head admits to accuracy failure of Down’s syndrome screening by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome The head of the UK’s screening programmes has admitted that the NHS has failed to roll-out more accurate screening tests for Down’s syndrome and that as a result a numbe ... Read on »
UK invests in DNA testing research by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome The Times is reporting that the UK’s Medical Research Council (MRC) is investing £7m in a national network of centres dedicated to DNA testing research, including the us ... Read on »
Happy birthdays by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome We were so busy celebrating J’s 3rd birthday yesterday I forgot to wish Prince Vince a Happy 3rd Birthday too. Happy Birthday Vince. Read on »
Down’s Syndrome Association campaign to improve information for parents by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome June 8-14 is Down’s Syndrome Awareness week in the UK and I just found out that the Down’s Syndrome Association’s campaign this year is a topic that I have written about ... Read on »
The latest Down’s syndrome statistics from England and Wales by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome I just noticed that the UK’s National Down Syndrome Cytogenetic Register has published its latest annual report sometime in the last two months. I haven’t seen any re ... Read on »