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WelcometoIllinois Patient Expert

Welcome to Illinois is a blog about Down syndrome (or Down's syndrome if you're British like me). I am a husband, a father, and a writer and I live in West London. In March 2008 my wife and I found out that our second son, G, who was born in September 2008, has Downâ??s syndrome. Our first... Full Bio
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The burden of Down’s syndrome by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Anyone who reads a lot of Down’s syndrome-related news and blogs has probably already read the recent posts by “Skeptical OB” Dr. Amy Tuteur in which she asked whether w ... Read on »
A rubbish acceptance speech by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Thanks to Rickismom for nominating this blog for a Creative Blogger award. In fact, double thanks to Rickismom as I just discovered she also nominated this blog for an H ... Read on »
“I don’t really see her as any different” by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Check out this video of Kelly Fitzgerald, one of only two people in New Zealand with Down’s syndrome that have their full driver’s license. It is really inspirational to ... Read on »
Intellectual disability and human rights by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome The Council of Europe’s Commissioner for Human Rights, Thomas Hammarberg, has published an interesting viewpoint on attitudes to people with intellectual disabilities ca ... Read on »
Death panels for Down’s syndrome and the disappearing population by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Congresswoman Cathy McMorris Rodgers gained a lot of respect from me for her involvement in the Congressional Down Syndrome Caucus and its role in promoting the US Prena ... Read on »
A year ago today by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome …almost to the minute, a certain little boy was born. What a wonderful year its been. Read on »
The baseball star and the bumblebee by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Albert Pujols, the St Louis Cardinals baseball player, has a daughter with Down’s syndrome, and so regularly crops up in my searches for new on Down’s syndrome. I’ve bee ... Read on »
13,076 by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome There are a lot of statistics thrown around related to prenatal screening and Down’s syndrome, such as the percentage chance that the baby has Down’s syndrome, the accur ... Read on »
Developmental milestone by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome G just shoved his first thing (his hand) into the video recorder. You won’t find it in Gina Ford, but in my experience shoving things in the DVR is a critical modern ... Read on »
UK politicians form All Party Parliamentary Group on Down’s Syndrome by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Some time ago I lamented the fact that the UK didn’t have an equivalent of the US Congressional Down Syndrome Caucus. The Down’s Syndrome Association reports that has ... Read on »
Down’s syndrome is awesome by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Adjective: awesome 1. Causing awe or terror; inspiring wonder or excitement. As I was sat watching G feeding himself his lunch the other day I was suddenly stru ... Read on »
Down’s syndrome and health care reform by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Here are some excerpts from a statement by the US National Down Syndrome Congress on Health Care Insurance Reform. They really speak for themselves: “People with Do ... Read on »
UK NHS developing non-invasive diagnosis tests by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome The Guardian reports that the UK’s National Health Service has begun a program to develop non-invasive blood tests that will reduce the risk of ante-natal testing for a ... Read on »
How G survived the National Health Service death panels by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Sarah Palin has let loose on the topic of health care reform. In her latest Facebook outburst, as reported by Patricia E. Bauer among others, she stated: “The Ameri ... Read on »
What’s up Bub? by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Scientists at the U.S. Department of Energy’s Lawrence Berkeley National Laboratory and the University of Tennessee, Knoxville think they may have come up with a solutio ... Read on »
Don’t pray4trig.com by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Long-term readers (hi Mum!) may remember an exchange of views played out on this blog last year with a blogger who set up a blog called End Down Syndrome in a misguided ... Read on »
Father knows best? Male perspectives on Down’s syndrome suaght for new book by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Via The Accidental Advocate and Mommy Life comes news that a Mike Burgess is planning to collate the views of fathers of children with Down’s syndrome into a book. Wi ... Read on »
US groups are in denial over Down’s syndrome testing by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome I’ll be honest and state that when I first read Leticia Velasquez’s appeal for truth about prenatal testing as it relates to Down’s syndrome I wasn’t entirely sympatheti ... Read on »
Welcome to Illinois is now on Wellsphere by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome You can now read updates from Welcome to Illinois on the Wellsphere health knowledge network as part of the Down syndrome Community. Read on »
On the fallacy of accuracy by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome I could hardly not mention the so-called wrongful birth case of Deborah and Ariel Levy, the Oregan couple that is suing the doctor that carried out a CVS test for $14m a ... Read on »