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WelcometoIllinois Patient Expert

Welcome to Illinois is a blog about Down syndrome (or Down's syndrome if you're British like me). I am a husband, a father, and a writer and I live in West London. In March 2008 my wife and I found out that our second son, G, who was born in September 2008, has Downâ??s syndrome. Our first... Full Bio
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“He’s a little Down’s boy isn’t he?” by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Since we received the diagnosis that G would be born with Down’s syndrome one of the things I have feared most, to be completely honest, is the comments that would be made ... Read on »
“Everybody’s got a bit of disability” by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome I was completely wound up by the title of this post by Patricia Bauer (”Eliminating Down syndrome population: A good thing?”) and some of the apparently patronizing comm ... Read on »
13,076 by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome There are a lot of statistics thrown around related to prenatal screening and Down’s syndrome, such as the percentage chance that the baby has Down’s syndrome, the accur ... Read on »
A rubbish acceptance speech by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Thanks to Rickismom for nominating this blog for a Creative Blogger award. In fact, double thanks to Rickismom as I just discovered she also nominated this blog for an H ... Read on »
A year ago today by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome …almost to the minute, a certain little boy was born. What a wonderful year its been. Read on »
All clear by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome The good news is that G’s six-month heart scan shows that everything is fine and he doesn’t even need to go for any more check-ups. We were pretty confident he was okay ... Read on »
Death panels for Down’s syndrome and the disappearing population by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Congresswoman Cathy McMorris Rodgers gained a lot of respect from me for her involvement in the Congressional Down Syndrome Caucus and its role in promoting the US Prena ... Read on »
Developmental milestone by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome G just shoved his first thing (his hand) into the video recorder. You won’t find it in Gina Ford, but in my experience shoving things in the DVR is a critical modern ... Read on »
Don’t pray4trig.com by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Long-term readers (hi Mum!) may remember an exchange of views played out on this blog last year with a blogger who set up a blog called End Down Syndrome in a misguided ... Read on »
Down’s syndrome and cancer by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome I meant to write about this the other day but I didn’t have time. Now it has been reported everywhere it is easier just to link to the reports: Nature has published a re ... Read on »
Down’s syndrome and health care reform by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Here are some excerpts from a statement by the US National Down Syndrome Congress on Health Care Insurance Reform. They really speak for themselves: “People with Do ... Read on »
Down’s Syndrome Association campaign to improve information for parents by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome June 8-14 is Down’s Syndrome Awareness week in the UK and I just found out that the Down’s Syndrome Association’s campaign this year is a topic that I have written about ... Read on »
Down’s syndrome is awesome by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Adjective: awesome 1. Causing awe or terror; inspiring wonder or excitement. As I was sat watching G feeding himself his lunch the other day I was suddenly stru ... Read on »
Entries from March 2009 Spread the word All clear Happy World Down Syndrome Day... by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome I’m not going to say much about this as it’s not a word that’s actually used much over in the UK, and I do think some people have a tendency to get carried away about i ... Read on »
Father knows best? Male perspectives on Down’s syndrome suaght for new book by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Via The Accidental Advocate and Mommy Life comes news that a Mike Burgess is planning to collate the views of fathers of children with Down’s syndrome into a book. Wi ... Read on »
Getting it wrong and telling it right by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome My older sister is currently expecting her second child. Being a few years older, and therefore statistically more likely to have a child with Down’s syndrome, and also ha ... Read on »
Good arrows! by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome I’ve been really busy at work and at home which is why I haven’t posted much here and is also why I only just noticed that this blog has been awarded the Premios Dardos ... Read on »
Happy birthdays by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome We were so busy celebrating J’s 3rd birthday yesterday I forgot to wish Prince Vince a Happy 3rd Birthday too. Happy Birthday Vince. Read on »
Happy World Down Syndrome Day by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome As previously mentioned today is World Down Syndrome Day, marking 50 years since the publication of Professor Jerome Lejeune’s discovery that an extra copy of chromosome ... Read on »