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WelcometoIllinois Patient Expert

Welcome to Illinois is a blog about Down syndrome (or Down's syndrome if you're British like me). I am a husband, a father, and a writer and I live in West London. In March 2008 my wife and I found out that our second son, G, who was born in September 2008, has Downâ??s syndrome. Our first... Full Bio
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Special education needs and the UK election by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Having stuck my beak into the US election, it’s funny that I don’t feel the same need to blog about the current UK election campaign in the context of Down’s syndrome and ... Read on »
Send a message to Sarah Palin by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome I’ve been neglecting this blog and my Down’s syndrome-related reading recently so I am very late with this, but if there is anyone reading this that has not seen The Oz Sq ... Read on »
Mother Superior jumped the gun by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Sarah Palin, the self-appointed Mother Superior of Down’s syndrome, has been at it again, this time describing an episode of Family Guy featuring a character with Down’s s ... Read on »
Sarah Palin is a f—ing hypocrite by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Rahm Emanuel has been rightly criticized for his description of liberals activists as “f—ing retarded”, including a call from Sarah Palin for him to be fired as White Hous ... Read on »
On terminations and survival rates by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome I recently wrote about the theory that an increase in the quality of care and medication had contributed to the increased number of children born with Down’s syndrome in t ... Read on »
The difference between treatment and cure by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome A few months ago I briefly mentioned some research underway at the Stanford University School of Medicine and Lucile Packard Children’s Hospital that could eventually lead ... Read on »
Getting it wrong and telling it right by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome My older sister is currently expecting her second child. Being a few years older, and therefore statistically more likely to have a child with Down’s syndrome, and also ha ... Read on »
“He’s a little Down’s boy isn’t he?” by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Since we received the diagnosis that G would be born with Down’s syndrome one of the things I have feared most, to be completely honest, is the comments that would be made ... Read on »
Survey to help new parents adjust to Down’s syndrome diagnosis by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome “Texas Tech University and Kansas State University researchers are seeking participants in an online survey to help develop support information and resources for parents ... Read on »
Why has the prevalence of Down’s syndrome births increased in the US, but not the UK? by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome It is not much of a surprise to see that the number of children born with Down’s syndrome has increased in the US, according to a recent study. What is surprising is the r ... Read on »
Recent news and views by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome We’ve been really busty with various work, home, and illness-related issues recently. Here’s some recent news stories I haven’t had time to blog about: Athletes with ... Read on »
Raoef Mamedov’s Last Supper by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Click the picture for the full size version. A few months ago I stumbled across a blog post about depiction of The Last Supper by Russian artist Raoef Mamedov. I w ... Read on »
In defence of Simple Jack by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Amid the furore against Tropic Thunder and the film-within-a-film Simple Jack last year I maintained that “the protesters against Tropic Thunder appear to be either misu ... Read on »
NHS figures on Down’s-related terminations are “wholly inaccurate” by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome The Daily Mail reports that the official number of terminations resulting from an ante-natal diagnosis of Down’s syndrome according to NHS statistics is roughly half the ... Read on »
Research contradicts Down’s syndrome stereotypes by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Anyone who’s had anything to do with Down’s syndrome will have heard the stereotypes about people with DS: they’re very loving; they’re very happy; they’re very stubborn ... Read on »
JFK and the National Plan to Combat Mental Retardation by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome I am in Boston this week with work and with a bit of spare time on my hands today went to visit the John F Kennedy Presidential Library and Museum. It is a fascinati ... Read on »
Human beings are not capable of deciding whether to continue with the pregnancy of their unborn... by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome The UK’s coverage of Down’s syndrome screening and statistics continues following the publication of a report in the BMJ. Tom Shakespeare, research fellow at the Inst ... Read on »
UK press wakes up to Down’s syndrome statistics by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Back in April I reported on the latest statistics on Down’s syndrome births in England and Wales from the UK’s National Down Syndrome Cytogenetic Register, noting that I ... Read on »
Motivational by WelcometoIllinois Patient Expert Posted in: Blog Posts in Down Syndrome Robert Pio Hajjar is a motivational speaker and founder of IDEAL-WAY.ca, an Ontario-based organisation focused on educating people about intellectual disability; providi ... Read on »