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Drugs.

Posted Oct 23 2008 9:15pm

Beth likes Baked Brie.

I've been taking the low dose of Lyric@ for five days, one 75 mg. pill at bedtime, for seizure control.

What do I notice?  First, I haven't had any big seizures (that I am aware of) but then again, I haven't had any since starting medications, and this is the third medicine we have tried, all of them have held off grand mal seizures if I was going to have one.

I am still having those maybe-related-to-blood-sugar-changes-but-we-really-don't-know
(because that's my theory) "swooshes" that might be " complex partial seizures."  In fact, I just had one.  I was in the kitchen, washing the floor, when I found myself feeling super-swooshy, and wanted to test my blood sugar - I was feeling very woozy and faint - like I might go down. 

This is the same feeling I got in the store last weekend and we swapped medications because it "wasn't working."  I told my daughter, "That I needed my pocketbook."  I'm home with the kids - and I had enough brainpower to test my blood glucose.  My glucose was 76 mg, which doesn't necessarily explain my brain shutting off, so I went back to business and finished the floor (pretty mindless activity in itself) trying to shake off the "swoosh."  Had it been lower - or had I tested just prior and saw a much higher glucose reading - it would make sense to me to feel swooshy with a rapid change.  ( Again, this is my theory, the doc has told me that it's unrelated.)

At this dose of Lyrica, I am still "swooshing," and I am due to increase the dose the day after tomorrow.  I don't really want to - because the side effect profile of this drug is very worrisome to me.  On this dose, I have noticed some simple side effects:  dry mouth, graze-hunger increased, potty troubles and acne.  The dizzy/vertigo issues are much less than the last med, but I know with increased dosing it will be more intense, and the hungry-trigger will increase and terrifies me.  Other people have noted that this med makes me feel "high on pot," and they get the super-munchies.  I can't have that.  I can't have the "high" or the munchies, both would make me crazy.  It's also got addictive properties - and who the hell wants that?!  (Like I have said before, I would make a terrible drug addict.)  I know if I tell the doctor I am still "swooshing," he will make sure we increase the dosing, and then I will bitch about the side effects and we will have to swap again. 

We are already running out of options, and I have to decide what I would prefer: being dumbed down- unable to speak normally, having a constant spinning head, eating constantly and gaining fat, or wanting to climb out of my own head with constant anxiety and nasty ice queen bitch-ness?  Which would you prefer? 

(I'm not looking for drug suggestions, just venting.  I see the doctor on Monday for a follow-up.)

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