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Vieiragirl

Boston, Massachusetts
I thought I would start a blog of adults with Congenital Heart Disease. Instead of talking about their disease, talk more about the stories, and how they see life. I want to ask a series of questions and see what answers I get. Also I want to be able to let some of the first generation of... Full Bio
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Adventures in Social Security Disability Part 2 by Vieiragirl Posted in: Blog Posts in Heart Health First off the people reviewing your case are not medical professional and most cases are denied because the medical document isn’t clear to point out what the disability i ... Read on »
Adventures in Social Security Disability Part 1 by Vieiragirl Posted in: Blog Posts in Heart Health Applying for Social Security Disability is not an easy process. Like anything it is about preparing, and knowing what you need to send along with your application. http: ... Read on »
Blog List by Vieiragirl Posted in: Blog Posts in Heart Health I will start linking other heart realted blogs from other adults and parent of Congenital Heart Disease patients. If you would like to be on my blog list please comment or e ... Read on »
I celebrate the person I have become from knowing him by Vieiragirl Posted in: Blog Posts in Heart Health Robert Kimani Mungai was born Nov 3 1975 and passed away on Feb 13th 2007 from CHD. Kimmie was the first person with CHD I actually connected with. Growing up there we ... Read on »
To the ones we lost this year! by Vieiragirl Posted in: Blog Posts in Heart Health Here we are again, Congenital Heart Disease Awareness Week, this past year we have been able to pass the Congenital Heart Future Act with the combined forces of the Adult Co ... Read on »
Why are you a planner? by Vieiragirl Posted in: Blog Posts in Heart Health One of my best friends asked me a few years ago in frustration, why I was such a planner, and I should relax a bit. I took this to heart, I wanted to explain to him why I p ... Read on »
Happy New Year! by Vieiragirl Posted in: Blog Posts in Heart Health For me 2010 was the year of challenges, where everything I spent trying to accomplish most of my life ended, due to the fact my heart could no longer take on the challen ... Read on »
The Heart that continues to beat... by Vieiragirl Posted in: Blog Posts in Heart Health As many of us get older we are more and more aware that many of us will eventually be faced with the idea of a heart transplant, or even a double organ surgery due to the pr ... Read on »
Life is ever changing by Vieiragirl Posted in: Blog Posts in Heart Health Some of you have emailed and asked why I walked away from this blog back in March. The truth is I didn’t really walk away; I had to take a break. I had come to a place in my ... Read on »
Steve Catoe by Vieiragirl Posted in: Blog Posts in Heart Health It is with a heavy heart to say goodbye to one of our best advocate and hero We will miss you Steve! Read on »
Oprah is not our answer .. Where our CHD Awareness should be spent by Vieiragirl Posted in: Blog Posts in Heart Health The question of spreading awareness keeps on coming up in conversations I have with adults and parents. I have to say I don’t think we are exactly going about it the right w ... Read on »
A man, a bike, LA to NY in the name of CHD by Vieiragirl Posted in: Blog Posts in Heart Health Who am I? I'm Nels Matson and I was born in 1982 with Partial Anomalous Pulmonary Venous Return and an ASD. I had open heart surgery a couple months before my third birthday ... Read on »
What about your privacy? by Vieiragirl Posted in: Blog Posts in Heart Health So I have been asked why I am not worried about my privacy. Since I started this discussion, I will be frank with this question that has been asked of me. Well one, live i ... Read on »
I am more then what is etched into my skin by Vieiragirl Posted in: Blog Posts in Heart Health I know what I wrote yesterday is starting a lot of discussion, and some are outraged by what I say and some have the strongly agree,d and disagreed with me. It is ok I unde ... Read on »
Truth about growing up with scars by Vieiragirl Posted in: Blog Posts in Heart Health A part of me wishes I was born now instead of back in 1978, for all we know now about CHD, the advancements that we have made in science and the ability to get information a ... Read on »
In Memory by Vieiragirl Posted in: Blog Posts in Heart Health Robert Kimani Mungai was born Nov 3 1975 and passed away on Feb 13th 2007. He was a man who seemed to always have so much life in him. He always had something he was ... Read on »
Meet Jeni Part 2 (HLHS) by Vieiragirl Posted in: Blog Posts in Heart Health First Name: Jeni Age: 24 Your defect: Hypoplastic Left Heart Syndrome w/ pacemaker When did you first become aware of your own mortality and how have you handled that? ... Read on »
Meet Jeni Part 1 (HLHS) Personal View by Vieiragirl Posted in: Blog Posts in Heart Health Name: Jeni Age: 24 Your defect: Hypoplastic Left Heart Syndrome w/ pacemaker What is something you always wanted to be asked about you disease that no one has asked or ... Read on »
New look and a New site by Vieiragirl Posted in: Blog Posts in Heart Health New look and a new site, Inspiring hearts I hope will grow in 2010. I hope to bring not only new stories, but also talk about issue that faces living with CHD. The road i ... Read on »
Getting a facelift by Vieiragirl Posted in: Blog Posts in Heart Health Inspiring Heart blog is getting a facelft in the next few days. So bear with me while I make changes. Read on »