Health knowledge made personal

Victoria Tremlett Patient Expert

Essex, United Kingdom
22 Year old Cystic Fibrosis sufferer waiting for a double lung transplant. A blog about the highs and lows of life on the transplant list.
› Share page:

Posts

Sort by: Most recent | Name
A thought for today by Victoria Tremlett Patient Expert Posted in: Blog Posts in Cystic Fibrosis I'm sitting watching the coverage of the 9/11 tribute today and felt moved to say a few words. I have no specific connection to New York, I didnt' know anyone in the attacks ... Read on »
A difficult time to put into words... by Victoria Tremlett Patient Expert Posted in: Blog Posts in Cystic Fibrosis So sorry for lack of blogging, time seems to have dragged on and on and an awful lot has happened adding up to a very horrible time. I have been finding it really difficult ... Read on »
National Transplant Week by Victoria Tremlett Patient Expert Posted in: Blog Posts in Cystic Fibrosis This week is National Transplant Week and as well as writing a blog update which you can find here I also wanted to post a special one. Not only is it Transplant Week thi ... Read on »
Scared by Victoria Tremlett Patient Expert Posted in: Blog Posts in Cystic Fibrosis Huge apologies for lack of posts lately, I haven't forgotten you but as I said last time there just haven't seemed to be the right words. Usually when I write a blog post it ... Read on »
No words... by Victoria Tremlett Patient Expert Posted in: Blog Posts in Cystic Fibrosis Thank you for all your fantastic messages of support after false alarms 6 and 7, it really does mean so much to have so many people wishing me well. I have had several email ... Read on »
Sadness at 7 by Victoria Tremlett Patient Expert Posted in: Blog Posts in Cystic Fibrosis Well I never thought I would be posting again so soon with news of yet another call. I had been struggling much more than usual after the last call, really finding it imposs ... Read on »
Lightening, Clinic and number 6 by Victoria Tremlett Patient Expert Posted in: Blog Posts in Cystic Fibrosis I can't believe how long it's been since I last updated. It's been a really difficult month for me with lots going on so I'm going to attempt to write it all in a list. 1 ... Read on »
Threatened by Victoria Tremlett Patient Expert Posted in: Blog Posts in Cystic Fibrosis It's taken me ages to post and a lot has gone on since my last blog. Despite not actually posting, I have been writing whenever I get chance. The bold parts of my blog are s ... Read on »
Number 5 by Victoria Tremlett Patient Expert Posted in: Blog Posts in Cystic Fibrosis I started writing this post a few days ago; apologising for taking so long to write, telling you how busy I'd been with uni and various other things. Then along came transpl ... Read on »
One of a kind x by Victoria Tremlett Patient Expert Posted in: Blog Posts in Cystic Fibrosis I lost a very good friend before Christmas, I can't even believe I am having to write these words because deep down I don't quite believe that he is actually gone. When ... Read on »
Painful by Victoria Tremlett Patient Expert Posted in: Blog Posts in Cystic Fibrosis Hey Tor. Been following for a while now, you've done me much good-- oddly enough, most often with posts like these. I have a slow but fatal form of cancer; diagnosed at 24, ... Read on »
Number 4.... by Victoria Tremlett Patient Expert Posted in: Blog Posts in Cystic Fibrosis Post number 3. (the biggest news so far) Don't forget to check back to read 1 &2 written earlier today. Last Tuesday was a normal day, the next day would be my little nep ... Read on »
Tor's Christmas Wish by Victoria Tremlett Patient Expert Posted in: Blog Posts in Cystic Fibrosis On to my 2nd post to keep you all updated with lots of news. As many of you know I am an ambassador for the transplant awareness charity Live life then give life . This year ... Read on »
Helping hand by Victoria Tremlett Patient Expert Posted in: Blog Posts in Cystic Fibrosis I've had an eventful few weeks so think I'm going to do a few separate posts to fit it all in properly. Last time I posted I was struggling quite badly. The day after I ha ... Read on »
Little things by Victoria Tremlett Patient Expert Posted in: Blog Posts in Cystic Fibrosis I'll start off on a positive note, the response of you lovely people to my article in the Guardian. It is so fantastic to read all of your inspiring comments, they have kept ... Read on »
Times Update by Victoria Tremlett Patient Expert Posted in: Blog Posts in Cystic Fibrosis It's been a bit of a tough week since I last posted, nothing major but just the annoying little things that work together to wear you down a bit. I've still been having a lo ... Read on »
When will it be? by Victoria Tremlett Patient Expert Posted in: Blog Posts in Cystic Fibrosis I've had completely amazing feedback from all my new blog readers, and twitter followers who found me through the BBC piece. I honestly never expected so many people to see ... Read on »
Get involved! by Victoria Tremlett Patient Expert Posted in: Blog Posts in Cystic Fibrosis Two blog posts in 24 hours, very unlike me! The reason for this post is that I woke up this morning to 126 new emails, loads of new tweets and facebook messages. After wonde ... Read on »
A very tricky balancing act by Victoria Tremlett Patient Expert Posted in: Blog Posts in Cystic Fibrosis I'm a bit stuck for what to write today but felt I needed to unload some of my overcrowded mind. I don't know what to write because, although it sounds weird, I don't know h ... Read on »
Brand New Look! by Victoria Tremlett Patient Expert Posted in: Blog Posts in Cystic Fibrosis Welcome to the new look Past the Point of No Return! What do you think? Isn't it pretty?! My lovely friend Louise recently had her blog made over and very kindly nominat ... Read on »