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Vicky .. Patient Expert

Anderson, South Carolina
Hi, I am a mom with two toddlers living with a recently diagnosed autoimmune disease called Sjogren's Syndrome. This is causing my kidneys to fail and I am currently in the process of looking for a live donor to give me the gift of life through transplant. I write about my experiences as a mom... Full Bio
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Wordless Wednesday by Vicky .. Patient Expert Posted in: Blog Posts in Parenting MONKEYING AROUND! Happy Thanksgiving! Read on »
Attention Smokers.....You Stink! by Vicky .. Patient Expert Posted in: Blog Posts in Parenting Dear Avid Smoker, Do you realize that you smell? I am being honest here. I know I am far from perfect, but at least I don't stink. I can be 15 feet away from you and I sm ... Read on »
Check out Sjogrens & Me New Look! by Vicky .. Patient Expert Posted in: Blog Posts in General Medicine I decided it was time for a change.... You Likey? I took this picture about a month ago in York, Maine. We were up in Rhode Island visiting family an ... Read on »
Beautiful Maine by Vicky .. Patient Expert Posted in: Blog Posts in Parenting This was taken in the town of York in Maine. The lighthouse is on an Island and as you can see it was beautiful! This is our summer home....YEAH RIGHT!!! I WISH! ... Read on »
What Procrit Injections Have Done For Me by Vicky .. Patient Expert Posted in: Blog Posts in General Medicine I have noticed a great deal of hits on this blog for Procrit Injections....so I thought I would write a post on my personal experience with this drug. Procrit or Arnasep is a ... Read on »
A change of Pace... by Vicky .. Patient Expert Posted in: Blog Posts in General Medicine I thought I would put a couple of inspiring photos up of my 2 little pumpkins. They sure make the worst of days better. P.S. No news yet..... Read on »
Pictures on the Ocean by Vicky .. Patient Expert Posted in: Blog Posts in Parenting Nolan enjoying the day! Braydon posing on the rocks. Braydon loves smiling for the camera. Nolan liked the big rock out in the water with the birds. Read on »
AAAAAAAAAARRRRRRRRGGGHHHH! by Vicky .. Patient Expert Posted in: Blog Posts in General Medicine That is what I feel like doing right now....I still don't have the final thumbs up from MUSC! They can't seem to get a hold of my rhuemetologist. Is this my Rhueme from here ... Read on »
An update....kinda! by Vicky .. Patient Expert Posted in: Blog Posts in General Medicine Sorry for the delay. I couldn't post anything on blogger yesterday!! I do have what I think is good news.... First, let me say that I still don't have the FINAL answer, ... Read on »
Let's Go Fly A Kite! by Vicky .. Patient Expert Posted in: Blog Posts in Parenting When we were in Rhode Island visiting Poppy, Grandma, and Uncle Mark we took a little detour and flew a kite that John & I bought for the boys in a neat little toy shop in ... Read on »
HAPPY BIRTHDAY POPPY AND UNCLE MARK! by Vicky .. Patient Expert Posted in: Blog Posts in Parenting We love and miss you especially for your birthdays! We miss you too Grandma! Love, Nolan & Braydon Read on »
Home Made Chicken Noodle Soup.... by Vicky .. Patient Expert Posted in: Blog Posts in General Medicine A good friend of mine made me home made chicken noodle soup...with home made noodles too! It hit the spot and I swear it is a miracle attitude booster. As you probably re ... Read on »
Today is the DAY!!!!! by Vicky .. Patient Expert Posted in: Blog Posts in General Medicine I received word from my transplant coordinator that my case is up for review this morning at MUSC. I should know by this afternoon if I am put on the national transplant list. ... Read on »
Fall Foilage & A Great Friend's Wedding! by Vicky .. Patient Expert Posted in: Blog Posts in Parenting John and I had a great time a few weeks ago when we went to New Hampshire to go to a great friend's wedding. Poppy and grandma in Rhode Island watched Nolan & Braydon. ... Read on »
Fall Foilage in New England by Vicky .. Patient Expert Posted in: Blog Posts in General Medicine I thought I would post a few gorgeous pictures of nature painting a beautiful scene. Enjoy!! Read on »
One little...two little Indians.... by Vicky .. Patient Expert Posted in: Blog Posts in Parenting Yes....we now have pictures to blog with! I will be catching up on some long overdue blogging the next few weeks! Everything from fall foilage to kite flying on the oce ... Read on »
Twiddling My Thumbs by Vicky .. Patient Expert Posted in: Blog Posts in General Medicine Well....I am playing the waiting game now. I finished my last pre-transplant test a couple of days ago. (Honestly....it was just a pap needing to be done, but they still need ... Read on »
Go to Chat With Kathleen.... by Vicky .. Patient Expert Posted in: Blog Posts in Parenting OK....OK....for all those craving some vacation pictures...hop on over to my mother-n-law's blog Chat with Kathleen. She is doing a series of posts of our vacation. I promis ... Read on »
The social worker looking me over by Vicky .. Patient Expert Posted in: Blog Posts in General Medicine I also met with a social worker briefly. She asked a bunch of different questions related to mental health and who would be my primary caregiver. Social worker: "How do ... Read on »
Thursday Thirteen - 13 Pet Peeves of mine! by Vicky .. Patient Expert Posted in: Blog Posts in Parenting 1. Idiots that will not stop their cars when you are on the crosswalk. It is like they truly are blind or stupid...maybe both! 2. Heels that clank on the floor. Y ... Read on »