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Vicky .. Patient Expert

Anderson, South Carolina
Hi, I am a mom with two toddlers living with a recently diagnosed autoimmune disease called Sjogren's Syndrome. This is causing my kidneys to fail and I am currently in the process of looking for a live donor to give me the gift of life through transplant. I write about my experiences as a mom... Full Bio
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It has been a bu ... by Vicky .. Patient Expert Posted in: Blog Posts in General Medicine It has been a busy couple weeks! We went to Disney and had so much fun. I need a vacation from vacation. Lol I behaved pretty well healthwise. Vasculitis tried to sh ... Read on »
chronic illness post by Vicky .. Patient Expert Posted in: Blog Posts in General Medicine Awesome read with those of us with a chronic illness. Just got back from vacation from Disney! Had a blast making memories with my family. As soon as I get back on my feet, ... Read on »
Sjogren's Syndrome and Kidney Involvement by Vicky .. Patient Expert Posted in: Blog Posts in General Medicine I have end stage renal failure ultimately caused by Sjogrens. Apparently it has been going on for quite a bit, but it was being sneaky. In fact, I am sure it was going on be ... Read on »
Sjogrens......good gravy, I am doomed! by Vicky .. Patient Expert Posted in: Blog Posts in General Medicine I do believe some of us have thought this a time or two or three or....you get the picture. There is no cure. Yes, we have been brought up a few times on the television ... Read on »
Vasculitis....My Nemesis! by Vicky .. Patient Expert Posted in: Blog Posts in General Medicine Cutaneous leukocystoclastic angiitis......to be exact. I like to call it an easier name, hypersensitivity vasculitis. It is the most common form of vasculitis and affects th ... Read on »
Hamster Wheel of Life..... by Vicky .. Patient Expert Posted in: Blog Posts in General Medicine I have felt like a Hamster. Puffy cheeks and all, thanks to prednisone. I have jumped on that wheel quite a few times. Running from my health. Running from symptoms. Running ... Read on »
Well....Long Time, No See! by Vicky .. Patient Expert Posted in: Blog Posts in General Medicine I have the urge to write again. Amazing. Yes, I am still here! Still waiting on my kidney transplant. It's a long story and I will be sure to fill you next week. I feel like ... Read on »
Wow...it's been awhile! by Vicky .. Patient Expert Posted in: Blog Posts in General Medicine First, let me apologize for just wanting to quit. I didn't expect to ever feel this way. Me??? Depressed?? OH PLUUUUUease. Yeah, I have had some obstacles thrown my way, but ... Read on »
Maybe....I'll jump back on the bandwagon! by Vicky .. Patient Expert Posted in: Blog Posts in Parenting Gee......I have not done this in forever. Seems like it anyways. I used to have great joy in blogging....then it seemed to become a nuisance. Seeing my friends blog may jus ... Read on »
More photos from the past few months by Vicky .. Patient Expert Posted in: Blog Posts in Parenting All aboard! He is fearless! My little cowboys!! Read on »
It has been too long! by Vicky .. Patient Expert Posted in: Blog Posts in General Medicine Hi to all my friends out there. It has been awhile since I last posted and I am sorry for that. I plan to get into the swing of things soon. I am doing good and still waiting ... Read on »
Nolan's first day of school by Vicky .. Patient Expert Posted in: Blog Posts in Parenting Nolan's first day of kindergarten. I did well...had tears in my eyes, but didn't cry! Read on »
Canadian Guardian Angel... by Vicky .. Patient Expert Posted in: Blog Posts in Parenting I have one. I really do. I don't even know her her by any other name but yrhelper. Yrhelper is holding a tweetparty for me. It was kicked off today, my 38th birthday! She ... Read on »
Canadian Guardian Angel.. by Vicky .. Patient Expert Posted in: Blog Posts in General Medicine I have one. I really do. I don't even know her her by any other name but yrhelper. Yrhelper is holding a tweetparty for me. It was kicked off today, my 38th birthday! She ... Read on »
Happy 38th Birthday Hubs! by Vicky .. Patient Expert Posted in: Blog Posts in Parenting Happy Birthday John! The boys and I love you! August 1st 1971. We are getting old!!! LOL Read on »
Home again...home again...jiggety JIG! by Vicky .. Patient Expert Posted in: Blog Posts in General Medicine I have made it home after 3 weeks in the hospital. I am tired and a bit overwhelmed at what has happened the past month.... I guess I am not as strong as I thought I was. ... Read on »
hospital update by Vicky .. Patient Expert Posted in: Blog Posts in General Medicine Yes.....it is going on 2+ weeks in the hospital. The DVT became infected and needed to come out. I had surgery on the 15th. It is healing slowly. My hemoglobin levels w ... Read on »
who am i ??? by Vicky .. Patient Expert Posted in: Blog Posts in General Medicine i have been here for 10 days. i know all the nurses, doctors, and vampires on the first name basis. i am going to get a blood infusion. My morphine pump is my b ... Read on »