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TiffanyAndLupus Patient Expert

New York, New York
I'm a luscious lavender lupus butterfly spreading my social media wings to promote Lupus Awareness. Diagnosed in January 2010 with Lupus SLE.  I advocate for lupus non-stop! Laughter is thee BEST medicine; and always remember you're never alone with lupus! Besides having my own... Full Bio
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#140 Conf: Social Media Gone Good by TiffanyAndLupus Patient Expert Posted in: Blog Posts in Lupus While rambling on Twitter nine days ago I stumbled upon an intriguing tweet from Jeff Pulver mentioning his #140conf contest. The prize being free tickets to attend the two ... Read on »
30 Things About My Invisible Illness You May Not Know by TiffanyAndLupus Patient Expert Posted in: Blog Posts in Lupus September 12th, 2011 hails "Invisible Illness Week" and I've taken some time to share 30 things about my particular invisible illness that several of you may not know. You c ... Read on »
30 Things About My Invisible Illness You May Not Know (for Invisible Illness Awareness Week) by TiffanyAndLupus Patient Expert Posted in: Blog Posts in Lupus Hello Lovies!  I've been itching to write a post for " Invisible Illness week " ! Finally feeling up to the task after some rough days with Lupus! Now ... Read on »
A Day With Shante... & Snoop! by TiffanyAndLupus Patient Expert Posted in: Blog Posts in Lupus Oh! Where to begin? Yes, I'm SO behind in sharing all the happenings going on with me. Well lets get to the good stuff, because we're gonna talk about how fightin ... Read on »
A Little Light in the Darkness! by TiffanyAndLupus Patient Expert Posted in: Blog Posts in Lupus The days are bright, and so I write... I am Me. Forever, Will be. Bona fide. Never emulating. Always maintaining, My beauty, With its bitterswee ... Read on »
A Love Letter to Myself (HAWMC Day 9) by TiffanyAndLupus Patient Expert Posted in: Blog Posts in Lupus Image from TheHealthyCity via Tumblr Ever wonder what it would be like to write yourself a love letter? What would you say? I think we all should take som ... Read on »
A Love Letter to Myself (HAWMC Day 9) by TiffanyAndLupus Patient Expert Posted in: Blog Posts in Lupus Image from TheHealthyCity via Tumblr Ever wonder what it would be like to write yourself a love letter? What would you say? I think we all should take some time for "Self Lo ... Read on »
A Message to Lupus & Poetry as a question! (Health Activist Writer's Month Challenge) Day 7 & 8 by TiffanyAndLupus Patient Expert Posted in: Blog Posts in Lupus * Today's post will feature Day's 7 and 8 from the Wego Health "HAWMC" challenge!  Leave your health a text or voicemail. Time to check in with your health! You call, rea ... Read on »
A Message to Lupus & Poetry as a question! (Health Activist Writer's Month Challenge) Day 7 & 8 by TiffanyAndLupus Patient Expert Posted in: Blog Posts in Lupus * Today's post will feature Day's 7 and 8 from the Wego Health "HAWMC" challenge!  Leave your health a text or voicemail. Time to check in with your health! You ... Read on »
Antiphospholipid Antibody Syndrome: Defined by TiffanyAndLupus Patient Expert Posted in: Blog Posts in Lupus Today we welcome Guest Blogger Tina Pohlman; President, cofounder, and patient at the  APS Foundation of America .  Image from apsfa.org What is ... Read on »
Antiphospholipid Antibody Syndrome: Defined by TiffanyAndLupus Patient Expert Posted in: Blog Posts in Lupus Today we welcome Guest Blogger Tina Pohlman; President, cofounder, and patient at the APS Foundation of America.  Image from apsfa.org What is APS? A disorder th ... Read on »
Art Provoked Thoughts (Health Activist Writer's Challenge Month)- Day 12 by TiffanyAndLupus Patient Expert Posted in: Blog Posts in Lupus Image from ReCareered Day 12: Ekphrasis ( writing about another art form ). An ekphrasis gives life to a piece of art through storytelling. An example of ... Read on »
Art Provoked Thoughts (Health Activist Writer's Challenge Month)- Day 12 by TiffanyAndLupus Patient Expert Posted in: Blog Posts in Lupus Image from ReCareered Day 12: Ekphrasis (writing about another art form). An ekphrasis gives life to a piece of art through storytelling. An example of an ekphrasis is wh ... Read on »
Camouflage Make-up & Lupus Scars by TiffanyAndLupus Patient Expert Posted in: Blog Posts in Lupus *this post is part of my earlier blog post titled "Despite our scars we are beautiful". Which includes natural health option to caring for your skin. This portion is specifi ... Read on »
Camouflage Make-up & Lupus Scars by TiffanyAndLupus Patient Expert Posted in: Blog Posts in Lupus Early last year I attended a Camouflage Make-up class at the  S.L.E. Lupus Foundation . I learned about two different products that are amazing in covering Lupus sca ... Read on »
Case of the "Prednisone Blues"! by TiffanyAndLupus Patient Expert 2 Comments Posted in: Blog Posts in Lupus  I know it's bad news to be in a funky mood around the holidays, but lets face it! Lupus usually doesn't give a toot whether we've got a lot to be thankful for or even if we ... Read on »
Case of the "Prednisone Blues"! by TiffanyAndLupus Patient Expert Posted in: Blog Posts in Lupus  I know it's bad news to be in a funky mood around the holidays, but lets face it! Lupus usually doesn't give a toot whether we've got a lot to be thankful for or even if we ... Read on »
Change Your Perspective by TiffanyAndLupus Patient Expert Posted in: Blog Posts in Lupus How I Envision Lupus Warriors "Superpower Day. If you had a superpower – what would it be? How would you use it?" - Wego Health As fascinat ... Read on »
Dear 18-Year Old Me... by TiffanyAndLupus Patient Expert Posted in: Blog Posts in Lupus Today's  Wego Health  Writer's prompt is: Dear 18-Year Old Me... "Write a letter to yourself when you were 18. Be sure to tell yourself what to do more of, wh ... Read on »
Despite our Scars, WE ARE BEAUTIFUL! by TiffanyAndLupus Patient Expert Posted in: Blog Posts in Lupus Hello Lovies! First! I must apologize for being unpredictable with my posts! I cannot afford a laptop and so I must use my grandfather's dusty desktop to keep al ... Read on »