Health knowledge made personal

Terri

Burlington, Iowa
Blog: http://avaslifewithcdh.blogspot.com/
Ava~Hope for Congenital Diaphragmatic Hernia. I am passionate about teaching parents how to advocate for their child's health. My third daughter Ava was born with Congenital Diaphragmatic Hernia. CDH is when (inside of the womb) the diaphragm does not form properly. The abdominal organs move up... Full Bio
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Why I’m the way I am. by Terri Posted in: Blog Posts in Children's Health So here is the rundown.  Yesterday Ava was feeling pretty miserable. Pictures are worth a thousand words. When Ava is in extreme pain she goes into herself. It is as ... Read on »
“Thank you Lord for the Good days!” by Terri Posted in: Blog Posts in Children's Health Ava had a SUPER day today. It seemed as though all pain and discomfort was gone. Her tummy was not as distended and she ate GREAT! I will stop typing and let you see for y ... Read on »
The great lesson….. “Shaking it off” by Terri Posted in: Blog Posts in Children's Health Isn’t life funny? I was doing an update on Twitter today and ran across a very wonderful blog. http://dynamicliving4u.blogspot.com/ Diane really made me step back and see ... Read on »
Swallow study…;( by Terri Posted in: Blog Posts in Children's Health Today was a very long day. We got to Iowa City ay about 10:25 am. Ava was not interested at all. Who can blame her from what she remembered last week with the enema study? ... Read on »
"I think I can.....I think I can." by Terri Posted in: Blog Posts in Children's Health Ava has been hanging in there. On Monday she seemed better and started to get her appetite back. Then on Tuesday the throwing up started She only did it once but the volum ... Read on »
Happy Memorial Day! by Terri Posted in: Blog Posts in Children's Health If you would like to add this to your blog you can email me at mycdhlife@gmail.com. Ava is hanging in there. We went to Grandpa Helmick’s grave tonight. Grandma put ... Read on »
Uh-Oh by Terri Posted in: Blog Posts in Children's Health This is Ava’s favorite word. See this is what “Po” from Telletubbies says. (By the way if anyone has any old Telletubbies VHS or DVD shows around let me know as we only ha ... Read on »
Amazing ANGELS amoung us. by Terri Posted in: Blog Posts in Children's Health Karen, one of my grade school friends that I haven’t talked to in many, many years sent me this video today on my facebook page. Her brother just got into a horrible accid ... Read on »
Surgery is a GO. by Terri Posted in: Blog Posts in Children's Health Hello Ava followers. Ava is doing great today. She is back to eating whatever she likes. We took her to the University this morning for an enema study test. They looked at ... Read on »
Ava holding her own. by Terri Posted in: Blog Posts in Children's Health If I could describe Ava in a few words I would use these…….warrior…..fighter……fire-cracker. But the one she is the most is enduring! She tries hard not to let her health s ... Read on »
Knowing the right thing to do. by Terri Posted in: Blog Posts in Children's Health So Miss Ava is taking a step backwards. The last few day we have noticed her tummy is becoming louder. The grumblings are stronger. This is a warning that the bacterial ov ... Read on »
Clydesdale Horses by Terri Posted in: Blog Posts in Children's Health The Budweiser Horses came to Burlington yesterday. Actually we saw the semi trucks when we came back from Ava’s appointment yesterday. We passed them! They are gorgeous ho ... Read on »
Long day…..of appointments by Terri Posted in: Blog Posts in Children's Health Yesterday Ava was seen by two of her doctors. Dr. Brophy who is her bladder /kidney doctor. He thinks she is doing fabulous from his point of view. So he told us that unle ... Read on »
Fun - Ava by Terri Posted in: Blog Posts in Children's Health Ava is still doing fine. She has been eating  really well but also having lots of diarrhea from the antibiotics. She seems like it doesn’t bother her at all, so that is go ... Read on »
Mother’s Day by Terri Posted in: Blog Posts in Children's Health It is such a beautiful day here in Iowa. Ava is napping and I thought I would sit here, relax and chat with all of you. I have been giving Ava her antibiotics at about 7 a ... Read on »
Improvement by Terri Posted in: Blog Posts in Children's Health Well we had a great day. Ava is doing really well and feeling great. I don’t know if it is the combination of the antibiotics or cutting her carbs but whatever it is we ar ... Read on »
Snuggle time by Terri Posted in: Blog Posts in Children's Health So we are still home. I am a bit surprised. I thought foe sure we’d be at the hospital. Thursday she was really starting to get dehydrated. I called out to our local peds ... Read on »
Teeter-totter by Terri Posted in: Blog Posts in Children's Health Hello everyone. Ava has been wanting to do the back and forth good and bad thing these last few days. Monday she had a great day. We went outside and played. She knows how ... Read on »
Touched by a song. by Terri Posted in: Blog Posts in Children's Health Hello everyone! I switched Ava’s antibiotics and she is now doing so much better. I really think that with this bacterial overgrowth you have to kill a variety of bad “bug ... Read on »
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