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Terri

Burlington, Iowa
Ava~Hope for Congenital Diaphragmatic Hernia. I am passionate about teaching parents how to advocate for their child's health. My third daughter Ava was born with Congenital Diaphragmatic Hernia. CDH is when (inside of the womb) the diaphragm does not form properly. The abdominal organs move up... Full Bio
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Halloween Happenings! by Terri Posted in: Blog Posts in Children's Health Ava was Po for Halloween. We fake trick or treated. She dressed and we took her outside and Lexis gave her candy in her basket. (Miss Lexis thoughts she was too old to t ... Read on »
Finally 30 Pounds…Party! by Terri Posted in: Blog Posts in Children's Health So I know I haven’t posted in a little while….that is because everything has been going so good. We are trying to stay out of the way of this nasty flu that seems to be hove ... Read on »
Singing with Mommy. by Terri Posted in: Blog Posts in Children's Health I had to share this video with you all. M iss Ava is so full of energy and life as you can see in this video. Photo and video editing at www.OneTrueMedia.com ... Read on »
Remembering the past by Terri Posted in: Blog Posts in Children's Health Ava sleeping with her favorite blankie about a week ago. Rest my precious daughter!   Hello to ALL of Ava’s followers. Miss Ava continues to amaze us. She seems to le ... Read on »
Ups and DOWNS….. by Terri Posted in: Blog Posts in Children's Health Ava loves to stump us. Last night she started getting the tipped head, which means her tummy hurts and she feels very sick. I hooked her up to the feeds at 9:30 pm and by ... Read on »
New Do by Terri Posted in: Blog Posts in Children's Health Well hello to all of Ava’s fans. We have been very busy. Brian and I have been painting the exterior of our house. It has been a pain to say the least. However it is a huge ... Read on »
Saying Goodbye by Terri Posted in: Blog Posts in Children's Health Ava is doing well. She gets into so many things. She is like a little tornado. I can’t believe one little girl can do as much damage to a house that she can do! It is great ... Read on »
Singing to Ava by Terri Posted in: Blog Posts in Children's Health Thought you might like to see her beautiful smile. She had a great day. We had a very small party. Brian’s mom and my mom and dad came over for supper, then we ate an ice-cr ... Read on »
Happy 3rd Birthday Ava! by Terri Posted in: Blog Posts in Children's Health Today is a wonderful day. This was the day Ava was born. I remember being so terrified of all she would have to endure. She was not allowed to take a breath on her own. As s ... Read on »
I’m Your Angel. by Terri Posted in: Blog Posts in Children's Health Make video montages at www.OneTrueMedia.com I made this video last year and posted it on September 27, not knowing that a few days later she would be fighting for her lif ... Read on »
Home!! Yippee! by Terri Posted in: Blog Posts in Children's Health We are Home! Wow am I tired. It hits me every time I walk in the door. Ava is doing great. She is literally running around the house with her sisters…….screaming, “NOOOOOOOO ... Read on »
Central line is OUT! by Terri Posted in: Blog Posts in Children's Health They took her to surgery at about 8 am. A lot earlier than we expected. She was very nervous as she knows all about every step. It amazes me how much she remembers. I again ... Read on »
You Take the Good you take the Bad. by Terri Posted in: Blog Posts in Children's Health Ava has been so good today. She has eaten a little bit. She gets so impatient here and bored. Her temp has stayed under 100 all day today.We got to the hospital at about 7:3 ... Read on »
Line? by Terri Posted in: Blog Posts in Children's Health Ava’s fever went away for most of the day. I took her to the ear doctor that confirmed with a test that she had no ear infection. She woke up from her nap with a 101.4 tempe ... Read on »
Something Up? by Terri Posted in: Blog Posts in Children's Health Okay so the last two nights Ava has not been sleeping well. Today she spiked a fever. It was 99 for awhile then got to 101. (I was waiting to give her meds to see how high i ... Read on »
Ava’s Tea Party! by Terri Posted in: Blog Posts in Children's Health Ava has been great. I did have to change her g tube on Thursday night…it came halfway out. It had been in three and a half months so it was time to renew anyways! HOWEVER it ... Read on »
The Wiggles LIVE…Go bananas! by Terri Posted in: Blog Posts in Children's Health Hello to our Internet world friends! I’ve worked hard on putting this video together of Ava’s “WIGGLES” Live Concert. I am warning you it is VERY long. She enjoyed herself a ... Read on »
Ava loves the Wiggles! by Terri Posted in: Blog Posts in Children's Health I am happy to tell you Ava saw the “Wiggles” LIVE in concert last night. She was excited talking about going to the show. Then when we got there she was a little afraid. ... Read on »
Gorgeous Day! by Terri Posted in: Blog Posts in Children's Health I just have to share how great Ava is doing. She is over her cold. It really didn’t mount to much of anything. She is back up to 3 cans of formula at night…..even at that am ... Read on »
Attentions CDH Parents..... by Terri Posted in: Blog Posts in Children's Health I need your help. I know I have a lot of Congenital Diaphragmatic Hernia parents that follow Ava's blog. I have created a poll at the right of the blog. If you are a cdh paren ... Read on »