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Terri

Burlington, Iowa
Ava~Hope for Congenital Diaphragmatic Hernia. I am passionate about teaching parents how to advocate for their child's health. My third daughter Ava was born with Congenital Diaphragmatic Hernia. CDH is when (inside of the womb) the diaphragm does not form properly. The abdominal organs move up... Full Bio
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Valentine’s Day by Terri Posted in: Blog Posts in Children's Health Hello to all out there in internet land! Things have been going great for us. In fact I am trying to let my “germ guard” down a bit. (That is extremely rare for me.) We ha ... Read on »
Attention CDH Parents…. by Terri Posted in: Blog Posts in Children's Health Good evening All! I was asked to pass along this survey to any and all of Congenital Diaphragmatic Hernia parents. It is a very brief survey that will help in a big way. ... Read on »
A Little Piece of Happiness. by Terri Posted in: Blog Posts in Children's Health Ava got into the band aids today and my what an artist she became. I had to catch it in video so you all could see her at work! Photo and video edi ... Read on »
Life Goes On…. by Terri Posted in: Blog Posts in Children's Health As the title reads, life has been moving along great for us. It is Amazing how it falls back into a normal routine as though she was never stricken with Congenital Diaphra ... Read on »
Calm Christmas by Terri Posted in: Blog Posts in Children's Health Hello Ava followers! We had a wonderful Christmas! Ava is just thriving. She did have a small cold but got over it very quickly. She has been mastering words left and right. ... Read on »
“HO HO HO it’s Santa! by Terri Posted in: Blog Posts in Children's Health Hello to all Ava’s fans. She is getting over a cold….well it is the lightest easiest cold I’ve ever seen. It started with Emeline then the next day she had it. The cold star ... Read on »
Bring the Rain by Terri Posted in: Blog Posts in Children's Health I had to share this song today. I too follow blogs and care pages. I’ve been following Stella for a while now. She has Spinal Muscular Atrophy (Type I). Her Mother Sarah i ... Read on »
Comparing by Terri Posted in: Blog Posts in Children's Health Well Hello Ava supporters! Things are great here in Iowa. The weather has been beautiful this last week. Ava is talking more everyday. In fact on Monday I was giving her a b ... Read on »
Halloween Happenings! by Terri Posted in: Blog Posts in Children's Health Ava was Po for Halloween. We fake trick or treated. She dressed and we took her outside and Lexis gave her candy in her basket. (Miss Lexis thoughts she was too old to t ... Read on »
Finally 30 Pounds…Party! by Terri Posted in: Blog Posts in Children's Health So I know I haven’t posted in a little while….that is because everything has been going so good. We are trying to stay out of the way of this nasty flu that seems to be hove ... Read on »
Singing with Mommy. by Terri Posted in: Blog Posts in Children's Health I had to share this video with you all. M iss Ava is so full of energy and life as you can see in this video. Photo and video editing at www.OneTrueMedia.com ... Read on »
Remembering the past by Terri Posted in: Blog Posts in Children's Health Ava sleeping with her favorite blankie about a week ago. Rest my precious daughter!   Hello to ALL of Ava’s followers. Miss Ava continues to amaze us. She seems to le ... Read on »
Ups and DOWNS….. by Terri Posted in: Blog Posts in Children's Health Ava loves to stump us. Last night she started getting the tipped head, which means her tummy hurts and she feels very sick. I hooked her up to the feeds at 9:30 pm and by ... Read on »
New Do by Terri Posted in: Blog Posts in Children's Health Well hello to all of Ava’s fans. We have been very busy. Brian and I have been painting the exterior of our house. It has been a pain to say the least. However it is a huge ... Read on »
Saying Goodbye by Terri Posted in: Blog Posts in Children's Health Ava is doing well. She gets into so many things. She is like a little tornado. I can’t believe one little girl can do as much damage to a house that she can do! It is great ... Read on »
Singing to Ava by Terri Posted in: Blog Posts in Children's Health Thought you might like to see her beautiful smile. She had a great day. We had a very small party. Brian’s mom and my mom and dad came over for supper, then we ate an ice-cr ... Read on »
Happy 3rd Birthday Ava! by Terri Posted in: Blog Posts in Children's Health Today is a wonderful day. This was the day Ava was born. I remember being so terrified of all she would have to endure. She was not allowed to take a breath on her own. As s ... Read on »
I’m Your Angel. by Terri Posted in: Blog Posts in Children's Health Make video montages at www.OneTrueMedia.com I made this video last year and posted it on September 27, not knowing that a few days later she would be fighting for her lif ... Read on »
Home!! Yippee! by Terri Posted in: Blog Posts in Children's Health We are Home! Wow am I tired. It hits me every time I walk in the door. Ava is doing great. She is literally running around the house with her sisters…….screaming, “NOOOOOOOO ... Read on »
Central line is OUT! by Terri Posted in: Blog Posts in Children's Health They took her to surgery at about 8 am. A lot earlier than we expected. She was very nervous as she knows all about every step. It amazes me how much she remembers. I again ... Read on »