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Terri

Burlington, Iowa
Ava~Hope for Congenital Diaphragmatic Hernia. I am passionate about teaching parents how to advocate for their child's health. My third daughter Ava was born with Congenital Diaphragmatic Hernia. CDH is when (inside of the womb) the diaphragm does not form properly. The abdominal organs move up... Full Bio
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I Never Imagined… by Terri Posted in: Blog Posts in Children's Health Ava would be as GOOD as she is today ;) Hello Ava followers. I can’t thank you enough for your love and support. We have so many supporters. We have had 2930 ... Read on »
Enjoying Life… by Terri Posted in: Blog Posts in Children's Health Hello everyone! That title is exactly our life right now. We are enjoying life thoroughly! As you can see she looks wonderful and healthy too! Ava’s so full o ... Read on »
Saying Good-bye is never easy. by Terri Posted in: Blog Posts in Children's Health Hello to all of our loyal Ava followers. She is doing great. She had her stitches removed from her index finger last Thursday. Daddy surprised us by taking off work and me ... Read on »
Ava’s Art of Healing. by Terri Posted in: Blog Posts in Children's Health Hello Ava followers. Miss Ava is hanging in there. She is still on pain medicine but is weaning off them quite nicely. We have been keeping her finger bandaged and dry so ... Read on »
Dealing with it. by Terri Posted in: Blog Posts in Children's Health Ava is coping as well as possible. She was upset this morning that she had a bandage on and immediately tried to take it off. I assured her it had to stay on to heal her f ... Read on »
Ava’s Ordeal tonight by Terri Posted in: Blog Posts in Children's Health So all was going well today until the window came down on Ava’s finger. One of my friends were over to visit with me from Idaho. We heard her cries…Brian got to her before ... Read on »
Living Life! by Terri Posted in: Blog Posts in Children's Health Hello Ava fans! Life is going spectacular for Ava! We are doing more and more exciting things as a family. This might sound odd to many, but I can count on one hand how ma ... Read on »
A New Day! by Terri Posted in: Blog Posts in Children's Health Hello to All! I feel like it’s been ages since I posted. Ava has been doing pretty good. We are praising God that she is staying well. It is hard to imagine last year at t ... Read on »
Wonderful Opportunities. by Terri Posted in: Blog Posts in Children's Health Hello Ava fans. She has been a little fire-cracker lately. She wants to do everything “her” way. She is not afraid to climb, hop, bend over backwards, jump off furniture o ... Read on »
Surgical Check-up by Terri Posted in: Blog Posts in Children's Health Hello Ava followers. I have some great news to share. Ava’s check-up went really well this afternoon. We were pleasantly surprised with Ava’s growth chart. Her weig ... Read on »
Valentine’s Day by Terri Posted in: Blog Posts in Children's Health Hello to all out there in internet land! Things have been going great for us. In fact I am trying to let my “germ guard” down a bit. (That is extremely rare for me.) We ha ... Read on »
Attention CDH Parents…. by Terri Posted in: Blog Posts in Children's Health Good evening All! I was asked to pass along this survey to any and all of Congenital Diaphragmatic Hernia parents. It is a very brief survey that will help in a big way. ... Read on »
A Little Piece of Happiness. by Terri Posted in: Blog Posts in Children's Health Ava got into the band aids today and my what an artist she became. I had to catch it in video so you all could see her at work! Photo and video edi ... Read on »
Life Goes On…. by Terri Posted in: Blog Posts in Children's Health As the title reads, life has been moving along great for us. It is Amazing how it falls back into a normal routine as though she was never stricken with Congenital Diaphra ... Read on »
Calm Christmas by Terri Posted in: Blog Posts in Children's Health Hello Ava followers! We had a wonderful Christmas! Ava is just thriving. She did have a small cold but got over it very quickly. She has been mastering words left and right. ... Read on »
“HO HO HO it’s Santa! by Terri Posted in: Blog Posts in Children's Health Hello to all Ava’s fans. She is getting over a cold….well it is the lightest easiest cold I’ve ever seen. It started with Emeline then the next day she had it. The cold star ... Read on »
Bring the Rain by Terri Posted in: Blog Posts in Children's Health I had to share this song today. I too follow blogs and care pages. I’ve been following Stella for a while now. She has Spinal Muscular Atrophy (Type I). Her Mother Sarah i ... Read on »
Comparing by Terri Posted in: Blog Posts in Children's Health Well Hello Ava supporters! Things are great here in Iowa. The weather has been beautiful this last week. Ava is talking more everyday. In fact on Monday I was giving her a b ... Read on »
Halloween Happenings! by Terri Posted in: Blog Posts in Children's Health Ava was Po for Halloween. We fake trick or treated. She dressed and we took her outside and Lexis gave her candy in her basket. (Miss Lexis thoughts she was too old to t ... Read on »
Finally 30 Pounds…Party! by Terri Posted in: Blog Posts in Children's Health So I know I haven’t posted in a little while….that is because everything has been going so good. We are trying to stay out of the way of this nasty flu that seems to be hove ... Read on »