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Terri

Burlington, Iowa
Ava~Hope for Congenital Diaphragmatic Hernia. I am passionate about teaching parents how to advocate for their child's health. My third daughter Ava was born with Congenital Diaphragmatic Hernia. CDH is when (inside of the womb) the diaphragm does not form properly. The abdominal organs move up... Full Bio
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Home and Check-up by Terri Posted in: Blog Posts in Children's Health So we made it home fine from St. Louis. We had a super time with my sisters. Ava had a follow-up surgical appointment today. All is going well. I asked to keep the centr ... Read on »
Home precious home! by Terri Posted in: Blog Posts in Children's Health Ava resting up before the big journey home. It feels marvelous to be home. It felt surreal to drive home today. I was half expecting to wake up and find I was dreamin ... Read on »
Home!! Yippee! by Terri Posted in: Blog Posts in Children's Health We are Home! Wow am I tired. It hits me every time I walk in the door. Ava is doing great. She is literally running around the house with her sisters…….screaming, “NOOOOOOOO ... Read on »
HUGE Favor by Terri Posted in: Blog Posts in Children's Health Hello Ava fans. A few things going on in Ava’s world right now. She has had so many small accidents this last week. It started with the cut finger, then she got hurt ridin ... Read on »
I Never Imagined… by Terri Posted in: Blog Posts in Children's Health Ava would be as GOOD as she is today ;) Hello Ava followers. I can’t thank you enough for your love and support. We have so many supporters. We have had 2930 ... Read on »
I See… by Terri Posted in: Blog Posts in Children's Health Hello all. We are fine now but Ava had to make my heart beat a little faster this morning. Lexis had decided to give the dog a bath and she hates blow drying him so I step ... Read on »
Improvement by Terri Posted in: Blog Posts in Children's Health Well we had a great day. Ava is doing really well and feeling great. I don’t know if it is the combination of the antibiotics or cutting her carbs but whatever it is we ar ... Read on »
Iowa and Cows by Terri Posted in: Blog Posts in Children's Health Ava felt much better with that stupid drain gone. I couldn’t believe the end that was inside her was about 7 inches long and curved at the end. She is much happier now. W ... Read on »
Is the Cross You Wear Too Heavy to Bear? by Terri Posted in: Blog Posts in Children's Health One of my dearest friends sent me this poem and I had to share. Complainingly I told myself, "This cross was too heavy to wear!" And I wondered discontentedly Why ... Read on »
I’m Your Angel. by Terri Posted in: Blog Posts in Children's Health Make video montages at www.OneTrueMedia.com I made this video last year and posted it on September 27, not knowing that a few days later she would be fighting for her lif ... Read on »
Kindergarten by Terri Posted in: Blog Posts in Children's Health Hello Ava friends! Our Summer wound down with a trip to the Peoria Zoo and a baseball game. We had such a great family day.   She is growing SO much! ... Read on »
Knowing the right thing to do. by Terri Posted in: Blog Posts in Children's Health So Miss Ava is taking a step backwards. The last few day we have noticed her tummy is becoming louder. The grumblings are stronger. This is a warning that the bacterial ov ... Read on »
Late but here’s Halloween by Terri Posted in: Blog Posts in Children's Health Hello friends and followers. It’s been super busy here at our house. I’m sorry for not updating sooner. Ava was sick with a cold around Halloween time so she missed school ... Read on »
Lexis and Emeline (Ava's Sister's) Blog Giveaway by Terri Posted in: Blog Posts in Children's Health I thought some of Ava's loyal supporters would love a chance to get in this Giveaway. The girls are working so hard on hair candy! Hope everyone is doing well. Ava is sl ... Read on »
Life changes by Terri Posted in: Blog Posts in Children's Health Hello Ava followers! I'm sorry it's been awhile since an update. Things have been a little crazy around here lately. We did have several good things happen with Ava that I ... Read on »
Life Goes On…. by Terri Posted in: Blog Posts in Children's Health As the title reads, life has been moving along great for us. It is Amazing how it falls back into a normal routine as though she was never stricken with Congenital Diaphra ... Read on »
Line? by Terri Posted in: Blog Posts in Children's Health Ava’s fever went away for most of the day. I took her to the ear doctor that confirmed with a test that she had no ear infection. She woke up from her nap with a 101.4 tempe ... Read on »
Living Life! by Terri Posted in: Blog Posts in Children's Health Hello Ava fans! Life is going spectacular for Ava! We are doing more and more exciting things as a family. This might sound odd to many, but I can count on one hand how ma ... Read on »
Long day…..of appointments by Terri Posted in: Blog Posts in Children's Health Yesterday Ava was seen by two of her doctors. Dr. Brophy who is her bladder /kidney doctor. He thinks she is doing fabulous from his point of view. So he told us that unle ... Read on »
Make a Wish Reunion and Back to School! by Terri Posted in: Blog Posts in Children's Health Hello Ava family and friends! We went to the Iowa Make a Wish reunion a few days ago. Our family had a great time. First there was a picnic. The kids could participate in ... Read on »