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Terri

Burlington, Iowa
Ava~Hope for Congenital Diaphragmatic Hernia. I am passionate about teaching parents how to advocate for their child's health. My third daughter Ava was born with Congenital Diaphragmatic Hernia. CDH is when (inside of the womb) the diaphragm does not form properly. The abdominal organs move up... Full Bio
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"Just Being a Girl." by Terri Posted in: Blog Posts in Children's Health Hello friends and family. It has been a wonderful few months. Ava is staying healthy and learning SO much. I love to watch her "Just being a little girl". Her speech t ... Read on »
"Living with Scars" Project by Terri Posted in: Blog Posts in Children's Health Hello Ava friends! Many of you know I started a face book page for parents with congenital diaphragmatic hernia survivors. Well today marks our 3rd Birthday! I am so excit ... Read on »
"Walk for Wishes" by Terri Posted in: Blog Posts in Children's Health Good afternoon Ava followers. It is such a beautiful day here in Iowa. Our family was invited to attend the third annual Burlington "Walk for Wishes" put on by the Iowa Ch ... Read on »
“Celebrating Life with Ava.” by Terri Posted in: Blog Posts in Children's Health   Okay so it has been a little while since my last post but that means all is fabulous here in Ava’s world. We celebrated her 4th birthday tod ... Read on »
“Thank you Lord for the Good days!” by Terri Posted in: Blog Posts in Children's Health Ava had a SUPER day today. It seemed as though all pain and discomfort was gone. Her tummy was not as distended and she ate GREAT! I will stop typing and let you see for y ... Read on »
"I think I can.....I think I can." by Terri Posted in: Blog Posts in Children's Health Ava has been hanging in there. On Monday she seemed better and started to get her appetite back. Then on Tuesday the throwing up started She only did it once but the volum ... Read on »
6 Year CDH Check-up by Terri Posted in: Blog Posts in Children's Health Hello Ava fans. Brian and I took Ava to her 6 year cdh follow-up. No you didn’t miss her Sixth birthday that is August 31st but we decided to get her appointment over with ... Read on »
A Barney Kind of Day. by Terri Posted in: Blog Posts in Children's Health Hello internet friends! There is so much to report. First the good weight news. Ava has gained THREE pounds in the last month. I myself just could not believe it. It took ... Read on »
A Day at the Park. by Terri Posted in: Blog Posts in Children's Health Hello Ava friends! Ava is continuing to do extremely well. I dolled Ava up the other day and for a good “five” minutes. She was ALL mine for some Gorgeous photos. ... Read on »
A Leaky drain by Terri Posted in: Blog Posts in Children's Health So yesterday was never short of excitement. As soon as I woke and checked on Ava I was a little taken back by what looked like red blood coming out of her JP line. (The colo ... Read on »
A Little Piece of Happiness. by Terri Posted in: Blog Posts in Children's Health Ava got into the band aids today and my what an artist she became. I had to catch it in video so you all could see her at work! Photo and video edi ... Read on »
A New Day! by Terri Posted in: Blog Posts in Children's Health Hello to All! I feel like it’s been ages since I posted. Ava has been doing pretty good. We are praising God that she is staying well. It is hard to imagine last year at t ... Read on »
A Rough Week. by Terri Posted in: Blog Posts in Children's Health Hello Ava friends! Ava is battling a cold. It started with a cough on Monday. We started her Albuterol inhaler right away. By Monday night the cough had gotten much worse. ... Read on »
All about the girls and Daddy’s girl. by Terri Posted in: Blog Posts in Children's Health We are just loving life! We are extremely blessed with God’s goodness. Ava’s body is healing and she is just so happy. I feel like I keep repeating myself……”She is so fu ... Read on »
Amazing ANGELS amoung us. by Terri Posted in: Blog Posts in Children's Health Karen, one of my grade school friends that I haven’t talked to in many, many years sent me this video today on my facebook page. Her brother just got into a horrible accid ... Read on »
And a COLD strikes again by Terri Posted in: Blog Posts in Children's Health Well Hello Ava followers. I can’t believe Summer is finally here. Ava has been doing so well. She got over her last cold and then a week or so later Lexis got a really bad ... Read on »
Attention CDH Parents…. by Terri Posted in: Blog Posts in Children's Health Good evening All! I was asked to pass along this survey to any and all of Congenital Diaphragmatic Hernia parents. It is a very brief survey that will help in a big way. ... Read on »
Attentions CDH Parents..... by Terri Posted in: Blog Posts in Children's Health I need your help. I know I have a lot of Congenital Diaphragmatic Hernia parents that follow Ava's blog. I have created a poll at the right of the blog. If you are a cdh paren ... Read on »
Ava has RSV. by Terri Posted in: Blog Posts in Children's Health Hello all! Ava’s been down with a TON of coughing, sneezing and a leaky nose. I’ve never treated a “cold” that did not improve with medicine. I’ve been doing breathing tre ... Read on »
Ava holding her own. by Terri Posted in: Blog Posts in Children's Health If I could describe Ava in a few words I would use these…….warrior…..fighter……fire-cracker. But the one she is the most is enduring! She tries hard not to let her health s ... Read on »