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Talana Fairfax

I'm Talana, 27, married, and living with CF. For the first 20 years of my life, I was very healthy for a CFer, playing sports, working, going to school, and living vibrantly. Slowly over the last several years my health has slowly started to decline. While I now have less than 50% of the lung... Full Bio
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Major Changes by Talana Fairfax Posted in: Blog Posts in Cystic Fibrosis In March, I got the flu. April 1st, I went to the ER at Stanford and ended up in the ICU, fighting to live. I have been listed for lungs and am at the top of the list for m ... Read on »
Testing is Done and the Verdict is in! by Talana Fairfax Posted in: Blog Posts in Cystic Fibrosis So, testing is all done! Well, except for a pesky 24 hour pee collection, but I'll do that next week. So, the verdict is that it is still "too early" but that I will b ... Read on »
Hello Long Neglected Blog, Big Changes on the Horizon by Talana Fairfax Posted in: Blog Posts in Cystic Fibrosis I know it has been forever since I have posted. I'm trying to change that. Especially as my life is in a major transition now. As has been on the radar for a few years ... Read on »
Latest Clinic by Talana Fairfax Posted in: Blog Posts in Cystic Fibrosis Today's CF Clinic was interesting. For a few years now, my FEV1 (a measure of how much air can be pushed out in the first second) has been hovering around 30%. Sometim ... Read on »
One Year by Talana Fairfax Posted in: Blog Posts in Cystic Fibrosis I know where I was a year ago. Standing on the Hoover Dam, when I got the phone call... Eva was gone. I knew it was coming, despite my greatest hopes that the miracle wou ... Read on »
Bad Times by Talana Fairfax Posted in: Blog Posts in Cystic Fibrosis Bad times here at the Fairfax household. As of Thursday, Matt unexpectedly lost his job when his company shuttered their doors. They were the whole reason behind our move ... Read on »
Dear Eva by Talana Fairfax Posted in: Blog Posts in Cystic Fibrosis Dear Eva, 7 months since you left this world. Tonight another cystic friend left this world. Invite Gess to the party... he may be shy at first, but if anyone can pull s ... Read on »
Slipped Stitch Stripey Hat by Talana Fairfax Posted in: Blog Posts in Cystic Fibrosis I made this lovely hat with yarn that was graciously given to me by the lovely people at Crystal Palace yarns. I love the mochi line, with its rich colors, and amazi ... Read on »
Today's Clinic... by Talana Fairfax Posted in: Blog Posts in Cystic Fibrosis Didn't go so great. Despite being up 10 lbs, which should be cause for celebration, my PFTs were down 5%. Under 30%. They wanted to admit me, start me on IVs, but I have ... Read on »
Conner by Talana Fairfax Posted in: Blog Posts in Cystic Fibrosis I hate CF. When I can't breathe. When friends die. When the bills are too much to pay. But nothing is greater than the rage, sadness, and desperation for refuge ... Read on »
27, planning 30 by Talana Fairfax Posted in: Blog Posts in Cystic Fibrosis I'm already planning my 30th birthday. It doesn't matter that I'm yet to turn 29, or even 28 for that matter, I'm already thinking about what I want to do for my 30th. I ... Read on »
Holding Fast to Quicksand by Talana Fairfax Posted in: Blog Posts in Cystic Fibrosis This weekend was a study in all the parallels of the CF world. Of all the intrinsic parts of holding on to fleeting moments. I traveled to Boston this weekend for Paul' ... Read on »
Knitting :) by Talana Fairfax Posted in: Blog Posts in Cystic Fibrosis When you sit at home all day, unable to work, and your only vehicle with your husband at work, you have a little time on your hands. So you knit :) Also t ... Read on »
Eva by Talana Fairfax Posted in: Blog Posts in Cystic Fibrosis It's taken me a few days to be able to even write anything. To even process. The weight of you being gone, it just sucked the air out of me. A glance at my piano. T ... Read on »
I have a lot of little news bi ... by Talana Fairfax Posted in: Blog Posts in Cystic Fibrosis I have a lot of little news bits... *started on night time oxygen, and I'm loving it *changed enzymes to zenpep, hoping this will address some issures *I have a col ... Read on »
Silly Canada by Talana Fairfax Posted in: Blog Posts in Cystic Fibrosis When I was a very little girl, I thought that since both Heaven and Washington were up, that clearly, when I looked at the sky, I was looking at the bottom of Washington, a ... Read on »
The Elephant in the Room by Talana Fairfax Posted in: Blog Posts in Cystic Fibrosis A CF mom blog broke my heart today. The comments in it broke my heart further. Moms who plan on not telling their young CF kids that CF is fatal. Their reasoning is that ... Read on »
Ginger by Talana Fairfax Posted in: Blog Posts in Cystic Fibrosis Today Ginger was supposed to turn 29. Instead, her young son and devoted husband spend their first January 27th without her. By all measures, Ginger was healthier than ... Read on »
New Clinic by Talana Fairfax Posted in: Blog Posts in Cystic Fibrosis I had my first visit today with the Las Vegas clinic... something major for me, since I've never seen anyone for my CF except for the doctors at OHSU. First impressions? ... Read on »
You may think less of me, but this is what I think... by Talana Fairfax Posted in: Blog Posts in Cystic Fibrosis My friend Sarah, posted a link to this blog written by a breast cancer survivor about the recent meme that has swept through facebook. The one where women post their bra c ... Read on »