Health knowledge made personal
› Share page:

Posts

Sort by: Most recent | Name
Fifty Two Days by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease Today is the 52nd day on Valcyte. It's been a rough ride but I think I might be having improvements. Since Saturday I've been able to leave the house for at 2-4 hours at a tim ... Read on »
Thank Goodness for Poetry by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease Oceans by Juan Ramón Jiménez translated by Robert Bly in The Soul Is Here for Its Own Joy (HarperCollins publishers, 1995) p. 246.). I have a feeling that my boat ... Read on »
Is It Worth It??? by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I committed to writing down my experience with CFIDS and then with Valcyte. I really wish I were in a different state of mind. It sounds like I'm always depressed. Although it ... Read on »
The Priest by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I have lots of thoughts and emotions running around. In keeping with my cognitive difficulties I doubt I'll be able to do justice to them but I'll try. Yesterday, my mom' ... Read on »
Behind by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I'm behind in everything. Not that I have much to do but the few emails I need to write, blogging, mailing a letter, going to the bank, and other small things are all still wa ... Read on »
Eye of the Storm by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease It's nice to have a break in the Valcyte mood storm although storm isn't really the word that captures the experience. I'm twenty six days into it and still here. The pas ... Read on »
21 Days by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease Today marks the last day of taking the 1800mg loading dose of Valcyte. I'm glad this part is over. Tomorrow I'll start taking 900mg one time per day (2 450mg pills). Because I ... Read on »
Best Laid Plans... by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I started reading a book called West of Jesus about a man who suffered from Lyme disease for 2 years and his experience trying to make sense of everything that happened. I was ... Read on »
52 Pills by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I'm halfway through the bottle now at day 13. I'm still not sure what to think. It seems that the most consistently effected thing is my mood and my thoughts. I have body ache ... Read on »
One Week by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I made it through the first week. In reality it's going to get much tougher but one of my strengths is a sense of determination and perseverance. Yesterday as I described ... Read on »
Endure by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease That's the word that comes to mind today as I experience another episode similar to what I did on Tuesday. I can't find words to describe it. It's like I have all th ... Read on »
CFIDS News: Myhill et al paper on Mitchondrial Dysfunction in CFS by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease Rich VanKonynen,PhD who is responsible for the development of a simplified methylation protocol (a relatively new treatment that came out in the past two years or so) for CFID ... Read on »
Friday by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease Today is my fifth day. My sense of time has shifts depending on the hour. Sometimes all I want is for the next six months to pass so I know what the outcome of this experiment ... Read on »
The Man Made of Rain by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease Many lifetimes ago, it seems, my dissertation advisor recommended a book. He was in the midst of reading it and loved it. It's a poem by Brandon Kennelly. He experie ... Read on »
Day Three by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease A much better day than yesterday. Thank goodness. I really appreciate everyone's help yesterday. I needed it. Every comment helped. The experience reminds me of something a fr ... Read on »
Day Two by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I hardly slept last night so already my day was off to a bad start. About 90 minutes after taking my dose of Valcyte I began to experience horrible anxiety. I really can't des ... Read on »
Day One-Valcyte by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I took my first dose of Valcyte (900mg) today at 11:46. A couple hours later I began to feel the side effects of it-some nausea, wooziness at times, increased fatigue. Tonight ... Read on »
Robins, Deer, and Door Number 2 by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I'm behind in blogging. It's been an interesting 10 days or so. I hesitate to say this-it's like tempting fate, but I don't feel that crushing fatigue that I did after moving ... Read on »
In Search of a Doctor by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease My search for a new doctor continues. I saw the HIV doctor today for the second visit. I figured I would see if I had a similar experience as the first time. Most of my m ... Read on »
A New Day by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease In my struggle to understand what this illness is it seems my dreams presented a definition. I dreamt I was on my way somewhere. I passed two women, one I knew from hi ... Read on »