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More Next Steps by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease My brain fog is back bigger and better than ever! The one positive thing I can say about the brain fog is my delight in finding things I forgot I had. I've made quite a few di ... Read on »
Update and Next Steps.... by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I'm taking advantage of my fairly good mood so I can blog. The past couple weeks have been filled with a dark relentless depression. I wake up feeling okay but within two hour ... Read on »
Valcyte Update and Stuff by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease Its been a little over 4 months on Valcyte. There's not much to report in the way of improvement. I'm still holding out hope that I'll have more improvement by 5 months but th ... Read on »
International ME/CFS Awareness Day Today by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease On July 26, 2006 I was standing at a podium in front of a group of people defending my dissertation. On my committee sat three world renowned scholars in my field. Two of them ... Read on »
Accepting What Is by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease As many of you know I'm trying to figure out how to get to a place of acceptance. It graced my day on Friday. I felt more at peace about it while also feeling less fear. I've ... Read on »
Mother's Day by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I woke up this morning with a heavy heart. I couldn't quite figure out why until I realized today is Mother's Day. Even though my mom died over ten years ago I still miss her. ... Read on »
Assorted Friday Thoughts by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I've been graced today by a feeling of calm acceptance about this whole thing. My sister is helping me with preparing for the court hearing for SSDI. I've been denied twi ... Read on »
Measuring Improvement by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I'm laying here listening to my ipod feeling grateful for things like beautiful music, a comfortable bed, my kitty, and my laptop which allows me to connect with others in the ... Read on »
Crashing Badly by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease Ugh. If I had more energy I'd be feeling really frustrated. I am in a bad crash. The past week has had its share of stressors both good and worrisome. It's a drag having an il ... Read on »
Three Month Valcyte Update by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease These past three months have simultaneously gone by quickly and slowly. I have no idea if I'll be a responder. I had hoped to see some sort of consistent improvements by now b ... Read on »
Kindness... by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I wanted to thank everyone for their comments and for visiting my blog. It is moving to me to feel a part of something. I found this poem: Kindness, Naomi Shihab Nye ... Read on »
Twists and Turns by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I've been thinking about acceptance a lot. It's key to finding peace in the midst of all this illness throws at us. I believe that once I truly accept this illness then I'll b ... Read on »
Valcyte Update and Stuff by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease This morning I woke up from a dream in which I was actively part of a community. I felt useful, a part of something, and I was busy! I was sorry to wake up to my current reali ... Read on »
The Importance of Pacing by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I was reading through Sara Myhills free book on ME/CFS. It's very good and can be accessed at her site http://www.drmyhill.co.uk. She writes about the mitochondria dysfun ... Read on »
More by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease From cfids.org: This was written by a prominent CFIDS specialist MD who practices in Salt Lake City, UT: From day one of a CFS diagnosis, it’s bad news. People ar ... Read on »
Tips for Dealing with People with CFIDS by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease This is from the CFIDS Assocation of America's website: How to Help: General Suggestions The keys to helping a person with CFIDS are education, communication and e ... Read on »
Towanda! A Rant... by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I woke up this morning at a decent time-9:00 instead of the usual 11 or 11:30. This is the third time this has happened this week. I woke up feeling okay and better than ... Read on »
Ramblings by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I'm really trying to work on acceptance and am finding it's a circular rather than linear process. There are moments when I can accept this new reality. This is usually follow ... Read on »
Updates by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I've been feeling a bit guilty for not blogging much lately as well for the emails I have yet to send. I haven't been able to muster up the mental energy to write. Also, I've ... Read on »
Taken Down a Notch by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I think the Valcyte has taken me down a notch after 60 days now. For some reason I erroneously thought that because I made it through 8 weeks with some physical effects that s ... Read on »