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Article on C3a and C4a by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I found a good article on C4a and C3a for anyone who is interested. Here is the link: Click here More later.... Read on »
In Search of Answers by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I have a hard time trusting doctors. I didn't have issues with trusting them until my mom got sick and died 44 days after being diagnosed with cancer. The first sign that some ... Read on »
Stopping Valcyte by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I have to say I'm very grateful that I went to the local doctor who decided to run CBC and CMP both of which are supposed to be done monthly while on Valcyte. My ME/CFS doctor ... Read on »
Another Doctor Visit by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I saw a local doctor today (the slow virus one). He specializes in HIV and Infectious Diseases. I didn't sleep well at all last night so I was in even worse shape cognitively ... Read on »
Doctors by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I'm still in search of a local doctor. I'm pretty fed up with my cfids doctor and have decided to see him very sporadically until I get SSDI. There are problems with both he a ... Read on »
Friday by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I wanted to thank everyone for your thoughts, prayers, and comments about the death of my friend. They all meant a lot to me. I'd respond to everyone individually but I'm not ... Read on »
Bobby... by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I met Bobby during a job interview in 1993. We clicked and became fast, close friends spanning the next 15 years and bridging various tragedies that beset each of us. He an ... Read on »
Rambles by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease "Fool!" my muse said to me "look in thy heart and write." Phillip Sidney And now that I've written that quote my mind goes blank as it often does with this illness. I nee ... Read on »
Is It The Flu or a Crash? by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I'm pretty much laid out flat on my back today feeling horrible. Doing anything feels like an effort. When I feel this badly I want to figure out what it is so I can do someth ... Read on »
Slices of Heaven by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I've had a really great week. I've had enough energy to be able to see people I haven't seen in years-specifically my cousins Katie and David. All of my cousins mean the world ... Read on »
Georgetown ME/CFS Study by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I've had a wonderful week. Will post updates this weekend but wanted to post this information I found while perusing the web. The CFIDS Association of America is on Facebook a ... Read on »
Doctor Visit by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I met with my doctor today to discuss the next steps. I had finished my six months on Valcyte on Saturday and was expecting to feel better simply by being off Valcyte but surp ... Read on »
A Success! by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I went on an outing and was feeling pleased about it. I realized, as I was walking through the door, that when I have something I'm upset about or excited about or just want t ... Read on »
Trying to Put Together the Puzzle Pieces by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease Now that I'm in the midst of my last week on Valcyte I'm trying to figure out what to do next. I will see my CFS doctor next Thursday. Hopefully he will put me on Aviptidal (V ... Read on »
Time by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease Where do I begin? I haven't blogged because I've been trying to absorb the latest news. One of our kitties has been diagnosed with terminal mammary duct cancer. The tumor is v ... Read on »
Hmmm... by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease After really thinking about it I've decided not to go private. I'll deal with the other stuff in some other way or at some future time maybe I will go private. It doesn't quit ... Read on »
A New Phase by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I'm feeling a bit stronger than I have for a couple years which is great news. I have a long, long ways to go but I'm feeling a little encouraged. I feel very protective of th ... Read on »
Living The Surreal Life by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I'm a bit at a loss for words as I once again digest the consequences of having an illness like this. I feel a certain responsibility to be very honest in this blog as well as ... Read on »
Improvements by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I'm now four months and almost three weeks into Valcyte, nine months into the Simplified Methylation Protocol, one week on lamictal, and one day doing the Amygdala Retraining. ... Read on »
Synchronicities by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease Carl Jung wrote a lot about synchronicity which in its most simple definition can be translated as "meaningful coincidences." I'd like to write about it but have neither the b ... Read on »