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Struggling by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease It feels like all the improvements I've made have vanished. I've been practically bedbound for the past week. I've had a lot of stressors the past couple weeks and still have ... Read on »
Trolls by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I was forwarded this article today regarding trolls. I thought it might be helpful in case anyone else  finds themselves in this situation. I found it quite helpful. Read on »
Statement from Whittemore Peterson Institute Regarding XMRV Testing by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease The Whittemore Peterson Institute has issued a statement regarding XMRV testing. They recommend VIP Dx Lab. It's worth noting that all net proceeds from the test will go ... Read on »
Updates by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease A number of people have sent emails asking about XMRV testing specifically regarding the study my doctor's office is doing. Since I don't have the energy to respond to emails ... Read on »
Crashed by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I probably shouldn't be blogging today. I'm in a weird crash and feeling sad and upset by some things. This is one of those times I should just try to stay with my feelings an ... Read on »
Annette Whittemore's CFSAC Testimony by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I spent the day today hanging out on the Whittemore Peterson Institute's Facebook page while at the same time watching the testimony taking place at the CFSAC (Chronic Fatigue ... Read on »
XMRV Study Starting by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease NOTE: PLEASE DO NOT REPOST WITHOUT PERMISSION I don't mind the info being reposted on blogs. Everyone has been wonderful about asking and I feel like we all help each oth ... Read on »
First Three Days on Low Dose Naltrexone (LDN) by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease The liquid version of LDN arrived on Friday. Eager to start I took a full 3 ml (which equals 3 mg) at about 9:30 Friday night. That was a mistake because I was up the entire n ... Read on »
So Close Yet So Far by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease There's lots to catch up on. I feel the usual slight frustration knowing that my cognitive faculties aren't all there. When I was in school or writing my dissertation I'd get ... Read on »
XMRV Testing-Pricing by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I just spoke with Megan with VIPdx labs. She has been patient and friendly each time I've called. I can't imagine the volume of calls she is getting and her kindness is much a ... Read on »
Update-XMRV Testing by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I just spoke with VIP Labs again due to some conflicting information I've been getting. They are now saying that they are about 30-45 days away from releasing the test be ... Read on »
Strange Times by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I'm in another very broken sleep cycle and feel fried from it. It makes me a little nervous when this occurs because it usually means a crash is in the works. Add the broken s ... Read on »
Testing for XMRV by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I'm hesitant to post this until I can verify it but here's some info about how to get tested for XMRV. TESTING VIP lab in Reno, NV has several test kits for, or rela ... Read on »
Chronic Fatigue Syndrome is Over! XMRV Virus Discovery by T Patient ExpertHealth Maven 2 Comments Posted in: Blog Posts in Lyme Disease I think that most ME/CFS patients have heard the announcement from the Whittemore Peterson Institute about the discovery of a retrovirus implicated in ME/CFS and written up in ... Read on »
Birthdays by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease Today is my birthday or the tail end of it. It's been a good one. Sometimes I use certain dates to mark growth or, now that I'm ill with this, periods of recovery. Two years a ... Read on »
It's Been Awhile... by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease It's been at least two weeks since I last posted. I wish it was because I was really busy because of huge leaps in improvements. Sadly, Tiger Lily, our 11 year old kitty died ... Read on »
Article on How to Help by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I'm still laid out with this virus and can't do much. I'm trying to pace myself. It's been rough but I'm hanging in there. I've stopped Valcyte and started taking colloidal si ... Read on »
Still Here by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I thought I'd post a short entry. I want to thank everyone for your comments. They were thoughtful and caring and right on the money.I followed every suggestion and have signe ... Read on »
Volunteers Needed for Study-Can earn $50.00! by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease Unexplained Chronic Fatigue Questionnaire Study - Volunteers Needed From Kathleen O'Connor at The University of Utah: Participants wanted for study of chronic fat ... Read on »
Bad Day by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I'm having a pretty bad day. I find myself wanting to start off this post with an apology for another depressing post but I trust most people will understand. I'm trying to fi ... Read on »