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I'm crashed from my day yester ... by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I'm crashed from my day yesterday. I had an appointment with my SSDI attorney to prepare for my hearing which is three weeks from today. It was the first time I'd met with h ... Read on »
"Is She Still Sick?" by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease Asked my new landlord as she was in the other room talking to Daphne. I silently cringed when I heard her ask. Just as I cringed when someone commented on how many supplements ... Read on »
2007 by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I can't say I'm sad to see 2007 end. Usually New Year's Eve brings with it a lot of reflection on how the previous year has gone while at the same time developing a vision of ... Read on »
21 Days by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease Today marks the last day of taking the 1800mg loading dose of Valcyte. I'm glad this part is over. Tomorrow I'll start taking 900mg one time per day (2 450mg pills). Because I ... Read on »
3 AM by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I woke up in the middle of the night last night with a sense of despair, loneliness, and feeling disconnected. As I lay there I found myself saying the words of the Serenity P ... Read on »
52 Pills by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I'm halfway through the bottle now at day 13. I'm still not sure what to think. It seems that the most consistently effected thing is my mood and my thoughts. I have body ache ... Read on »
A Collage of Thoughts by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease My energy was a tiny bit better today. I'm grateful for it. It's surprising since I was at my new doctor's office for almost 2 hours yesterday. Most of it spent waiting. ... Read on »
A letter to SSDI from my doctor by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease My attorney requested a written narrative report from my doctor to support my claim for SSDI which is now in the reconsideration stage. My doctor sent me a draft of the letter ... Read on »
A New Day by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease In my struggle to understand what this illness is it seems my dreams presented a definition. I dreamt I was on my way somewhere. I passed two women, one I knew from hi ... Read on »
A New Phase by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I'm feeling a bit stronger than I have for a couple years which is great news. I have a long, long ways to go but I'm feeling a little encouraged. I feel very protective of th ... Read on »
A Scary Halloween by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease There are many thoughts floating around in my head. Hopefully I'll get to all of them before they leave. I woke up out of a bad dream. There are days like today when I wa ... Read on »
A Sense of Community by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I've been moved by the offers of help from people. Daphne's best friend is flying out to help with packing and a garage sale. Her mom is going to buy a dehumidifier for the ne ... Read on »
A Step at at Time.... by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease The endoscopy procedure left my throat feeling so sore that I wasn't able to eat solid foods until today. Tuesday and Wednesday it was even difficult to swallow fluids so ea ... Read on »
A Stroke of Insight by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I'd heard of this book over the summer but didn't want to read it. One of my fears is having a stroke. I was afraid to read it because I didn't want it to increase my anxiety. ... Read on »
A Success! by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I went on an outing and was feeling pleased about it. I realized, as I was walking through the door, that when I have something I'm upset about or excited about or just want t ... Read on »
Accepting What Is by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease As many of you know I'm trying to figure out how to get to a place of acceptance. It graced my day on Friday. I felt more at peace about it while also feeling less fear. I've ... Read on »
Almost Made It... by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I owe phone calls and emails but instead I'm using my energy to write here. I'm having a lot of neurological symptoms and writing here is easier somehow. I have my ipod on l ... Read on »
Annette Whittemore's CFSAC Testimony by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease I spent the day today hanging out on the Whittemore Peterson Institute's Facebook page while at the same time watching the testimony taking place at the CFSAC (Chronic Fatigue ... Read on »
Annoyed Beyond Belief by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease The search for answers continues. So does my frustration with the medical system. My RNase L panel came back. This was supposed to be the definitive test that my doctor was go ... Read on »
Another Day Thank Goodness by T Patient ExpertHealth Maven Posted in: Blog Posts in Lyme Disease The good news is that I don't feel as bad as I did on Weds. I think that the acupuncture experience kind of shook me up. I won't be going back. I've had this feeling over th ... Read on »